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I am 10 months gluten free, and starting about 2 months ago my stools became looser and looser. It is now bordering on diarrhea, although it is still kind of hard to get out, i.e. still a little constipated but not at all like it was 6 months ago.
I am 10 months in gluten free, still not well. Stomach issues improved, but I´m still dealing with fatigue. I read that it´s recommended to quit dairy products. But what about lactose free dairy products?
You are not alone dealing with fatigue long after diagnosis. Myself I am (almost) 10 months in and dealing with fatigue and exercise intolerance. I get so pissed with all these happy go lucky people that run marathons after a week off gluten and assume that´s how things work out for all of us.
But I´m not jumping to the "Chronic fatigue syndrome" diagnosis just yet. This diagnosis should only be given when there´s no medical explanation for your fatigue, in other words when theres no treatment and all hope is out. We have an explanation for your fatigue * celiac * so don´t label yourself with a useless CFS diagnosis or trick yourself or your doctor to skipping all the testing and giving the lazy man´s diagnosis.
There´s a lot of tests you could take to rule out all the diseases of the world that cause fatigue. I for myself I´m waiting eagerly to see the follow-up biopsy. If the villi healed, then we seriously need to look for other explanations, and there´s a lot of tests that could be done.
I am 9 months into the diet and things are improving but it never happened overnight as I might have hoped at the beginning.
At first I was worse, then gradually I started getting a little more energy. Then constipation started to clear up. Then I started gaining some weight. Still dealing with less energy than most, but not at all bed bound most of the day like I was a year ago. I even work now!
For some people things clear up quickly, for others it takes more time. Its hard *I know* but one day you´ll be strutting with energy. Till then, take it easy on yourself.
You are 1 year into GFD and still have elevated tTG IgA. It may be that this is the cause of your fatigue. Is it improving or is it getting worse? Your triglycerides levels may be indicating issues with your hypothyroidism. I think there are at least two possible causes for your fatigue as you have both hypothyroidism and celiac. I am no doctor but I think the tests speak for themselves.
What kind of doctor are you seeing? I guess you already know that "adrenal fatigue" and "DHEA" belong in the alternative sphere of medicine. I am no expert but it sounds kind of strange to prescribe cortisol when levels are normal. Didn't quite understand what you are doing with B12. Levels are normal, so now you are taking extra B12 supplements? Your doctor may be caught up in the wrong things.