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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About ktienken

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    1. ktienken added a post in a topic Help- Eczema After Stopping Gluten :(   

      Thanks so much for you reply! My doctor told me it was Eczema...but I'll still check out those forums for sure. It doesn't sting, itch, or have blisters. Basically, my face is just very dry and it gets red and forms tiny little bumps in between my eyebrows, the sides and beneath my nose and my chin. So, do you think it started as a reaction to all the gluten still coming out of my system?
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    2. ktienken added a post in a topic Mysterious Glutenings   

      I know what you're saying about the soy...BUT there is an article on that talks about how if a product is not "certified gluten-free" and it has soy in it, then it's not safe. This is not because of the soy itself, but because the soy is contaminated with gluten...because it's grown in the same fields as most grains and wheat, transported on the same tractors, processed in the same facilities, etc. The article says that a study tested and found up to almost 3,000 parts per million of gluten in products that were supposedly/labeled as "gluten-free" (20 ppm or less is considered gluten free). So, apparently we can only trust products that contain soy if they are "certified gluten-free", which promises that the product was batch tested or that the soy was grown in a safe place, etc.
      Just a thought....I've been so overwhelmed by this too :/. Ugh... just found out in October and I developed Eczema AFTER stopping the gluten and soy. I've never had it before, and it won't go away! Why?!!
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    3. ktienken added a post in a topic Hair Salon...gah!   

      Sounds to me like you definitely need to avoid the gluten. One thing I read was that soy is a BIG time contaminator. Are you eating soy still? In a study that tested supposedly "gluten-free" products (but did contain soy) they found that some of the products had up to almost 3,000 ppm of gluten! (when less than 20ppm is supposedly considered gluten-free!). They determined that soy is typically grown in the same fields as wheat and other grains, transported on the same tractors, processed in the same facility, etc. etc., so the contamination can be awful!
      You may already know this...just thought I'd mention it
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    4. ktienken added a topic in Celiac Disease - Coping With   

      Help- Eczema After Stopping Gluten :(
      Hi everyone...I'm desperate for answers. I was diagnosed at the end of October. About 3 weeks AFTER I cut out the gluten, I developed Eczema on my face. I also cut out all soy, as I learned soy often has very high levels of contamination. I have never had Eczema before now...and it's only getting worse .

      I've heard that after you cut out gluten symptoms can sometimes get worse before they get better. However, my symptoms (hives, bloating, lethargy) have gone away.

      Has anyone else experienced Eczema after the fact? (or any new symptoms?). I feel so discouraged and don't know who to turn to anymore :/.

      • 3 replies
    5. ktienken added a comment on a blog entry Had Spices On Fish. Not Sure If Safe....   

      I'm curious- what do you mean by "[color=#282828][font=helvetica, arial, sans-serif][background=rgb(226, 234, 246)]what ingredients were most important in the vitamins i should start supplementing with as well." What did the nurse tell you? I have horrible eczema that started AFTER I stopped eating gluten (once diagnosed with Celiac in October). I'm so scared it won't go [/background][/font][/color][font="helvetica, arial, sans-serif"][color="#282828"]away :/[/color][/font]
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    6. ktienken added a post in a topic This Normal For Starting Out Gluten Free?   

      totally going through the same thing! I was diagnosed in early November and my bloating has just settled down. two thing that I would say (in case you don't already know): avoid soy at all costs . it is one of the biggest contaminates . I read a few studies where they tested products that were supposedly gluten free. they found that the products contained almost 3000 parts per million!!! 20 ppm is typically considered gluten free. If the product has been certified gluten free, and contains soy, then it is safe . I thought I was Gluten-Free for awhile, and then found out about the soy.

      The second thing I would.'re commend is a cleanse/detox program. I really enjoyed the Clean Program ( this a good way to reintroduce things in your diet and find out what else your' 're sensitive to.
      I've developed Eczema since I've stopped the gluten etc. . I don't know what to do, or if it will go away

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    7. ktienken added a post in a topic Insane Detox?   

      Wow... I'm sooo sorry to hear that!!! You may have already done this, but have you done a serious change in your diet? I mean, like more than just stopping the gluten (AND soy... It's THE BIGGEST contaminator! Seriously.)...? I just finished the Clean Program. Seriously- it's amazing. Go to, and read about it all. I did not buy any of the products they sell. You can do it all w your own products (which I can tell you about). The program has you eat specific foods, and avoid all of the allergen producing foods. It allows your body/system to reset, and then detox. Like some of the others have said, it's a way to find out what other things you may be reacting too. Again- you may already know all of this, or have tried an elimination diet, etc. Just thought I'd mention this one, along w the soy issue. Also- are you taking an antihistamine of any sort? I had full body hives for the past year (prior to finding out I had Celiac). A specialist I saw told me it was perfectly safe to load up on antihistamines to "retrain my body to stop producing histamine". So, I took Allegra 180 3-4 times a day. It really helped them to stop. Have you seen an allergy/asthma specialize? He/she might be able to tell you more. I will want to help you! I called myself Quasimodo because I was so deformed that I couldn't leave the house either :/.

      I wanted to know- what is "tonne", that you said you ate for 2 months?

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    8. ktienken added a post in a topic Celiac Disease And Eczema   

      I'm really hoping someone can explain to me WHY I got Eczema when I stopped the gluten...?? I've never had it before now. I was just diagnosed w Celiac in October, and in November I developed Eczema all over my chin, upper lip, nose , and part of my forehead . Does anyone know why? AND, will it go away???
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    9. ktienken added a post in a topic Insane Detox?   

      After reading your post, I was doing a little researching about your painful acne. I've been dealing w eczema, and I don't really understand why....really hoping it will go away :/. Anyway, you may have already figured this out, but do you think the acne really could be "Dermitis Herpetiformis"? Sounds like its pretty painful
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    10. ktienken added a post in a topic If Not Super Damage Still Being Done?   

      I think I've read that the less sensitive people will have less damage. If the damage were occurring, then your husband would know because he wouldn't be absorbing all of the nutrients, because the villi would be destroyed. For example, my iron levels were very low. Think that's what you mean....?
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