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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About luckyald

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    1. luckyald added a post in a topic Confusing Diagnosis   


      I went to a rhuematologist who ran a million tests. The only thing he found out of whack (besides my chronic neutropenia) was Vitamin D at level 25. As of Jan. 1, I decided to try going 100% gluten-free and lo and behold - I have ZERO GI problems. So whether or not my biopsy was conclusive or not, going gluten-free helps me a great deal. With the high likelihood genetically and the clearing of symptoms with no gluten, I am ready to diagnose myself as Celiac or non Celiac with gluten intolerance. Either way, gluten is not good for me so I am done with it.
      • 0
    2. luckyald added a post in a topic Confusing Diagnosis   

      Hi there - I just picked up a copy of my results from my GI. Here they are:
      Genetic test from Prometheus Lab:
      Celiac Genes Detected:
      Genotype: DQ2/other high risk gene
      Increased Risk: 16X
      Relative Risk: VERY HIGH

      The duodenum was examined, and, while normal in appearance in many ways and while there appeared to be a villous pattern, there was a mildly gray discoloration to the mucosa because of a patchy white punctate appearance, as well as mild granular appearance.

      Assessment and Recommendations:
      The pateint has no marked abnormalities but there is a mild granular appearance to the duodenum. She has a history of chronic diarrhea that is unexplained, as well as neutropenia and thrombocytopenia. Autoimmune processes have been considered as a possibility of a hematological issue. She has had an extensive workup for the diarrhea with no diagnosis forthcoming.

      - No villous abnormality
      -No enteritis/granulomas/microorganisms
      -Morphologically normal

      Microscopic exam:
      1. Tissue includes through a layer of muscularis mucosae and nodules of submucosal Brunner glands and several oriented tall thin villi are represented. No increase in crypt regions or stromal mononuclear cells, no nuetrophils, and no granulomas. Columnar absorptive entercytes without inflammation and no surface organisms. Good quality biopsies and within normal limits, Six levels.

      Gross Description:
      1. Designated "duodenum" are FOUR tan tissue fragments ranging from 0.2x0.2x.15 cm to .35 x0.2 x0.2.

      My GI wants to wait for my rheumatologist work up. Meanwhile, I went gluten-free anyway and have had NO diarreha. In general, I don't wat a lot of gluten since it makes me sick but now I am trying to be very mindful of where it lurks.

      As far as the time of year - the endo was just performed. I live in LA so no frost freezes here. I was not keeping a food journal. My GI ruled out EE.

      Thanks for taking the time to look at this!
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    3. luckyald added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      Confusing Diagnosis
      Hello -

      I have tested positive for the Celiac gene. I have a laundry list of Celiac symptoms including chronic D, stomach pain, bloating, joint pain, neutropenia, psoriasis, sporadic cracks on the sides of my mouth, sporadic canker sores, tingling feet and hands etc etc. If I eat gluten, I feel absolutely awful immediately. Hands swell, fecal incontinence the next day, stomach pain, swollen hands, itchy skin and eyes etc. In 2004 I tested negative for Celiac on the non-genetic test and was told I have IBS. This month, I demanded the genetic test due to increased symptoms (and more research on my part). Between the negative non genetic test and the positive genetic test, I gave birth to three children and have experienced more than usual stress. My doctors (a hematologist for neutropenia, regular MD and GI all decided I needed an endoscopy to confirm the suspected Celiac. BTW - this would be my third endoscopy. I had two others in 2010 for an emergency food impaction and a retest because of raised eosinophils (that turned out negative upon second exam). I just recieved the results - NEGATIVE for Celiac. No real villi damage. My doctor said my villi looked "sandy" but not flat. I do not have anemia (just neutropenic and also low platelets) or low B12 so I am clearly able to absorb nutrients.

      I am SO confused. I suppose the answer is to just go gluten-free? Possibly just latent Celiac? But what about all the zillion symptoms? Anyone have any advice?

      Many thanks in advance!
      • 8 replies

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