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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About runsuzannerun

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    1. runsuzannerun added a post in a topic 2Nd Opinion Help!   

      Hello! I would hardly call myself an ultra-runner. I run about 65 miles a week and specialize in the 5/10k, but it's nice to meet another runner on here! I will definitely check out that part of the site and keep you posted! I'm sorry that you're not able to train right now! That's always so difficult.

      As for the blood panel, no, I never did that. I went straight to the GI, because it's the "gold standard," and they did the endoscopy. I went gluten-free as soon as I had the procedure, because I was so certain that it was my problem, and I didn't want to wait to start the diet. I'm regretting it now. I absolutely will not do the "gluten challenge," because it really affects my running, and I can't afford any setbacks and do not want to experience those problems again.

      Being a competetive runner (and a hypochondriac), I actually get blood tests, CBC, metabolic panels, and my thyroid checked quite often so that I know I am at my very best. The only two things that I have really struggled with in the past were getting my thyroid levels and my iron/ferritin levels up. No matter how much synthroid or liquid iron I was taking, they never seemed to go up. I am really looking forward to seeing what they are now after being gluten-free for 4 months.
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    2. runsuzannerun added a post in a topic 2Nd Opinion Help!   

      Thanks for the advice. I will be looking into getting a second opinion over the next couple of days. It's not that I need a doctor to actually tell me that I have celiac disease in order to stay off gluten, it would just be nice to have a simple response when I see doctors to check my thyroid/ferritin/metabolic panels and so forth without having to explain myself to death as to why I think I have it.

      I am in the process of finding a new endocronologist and getting my thyroid levels checked. I am definitely experiencing hyperthyroid symptoms for the first time and have been reading how a gluten-free diet can significantly improve thyroid function. This is great news!

      I would love to post my pathology report on here, but I'm not sure how to do it. I can't figure out how to attach an image. I could post a PDF. I would love to hear anyone's thoughts!
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    3. runsuzannerun added a post in a topic 2Nd Opinion Help!   

      Hi, thank you for your response. This is my first time using the boards, and I think I may have clicked on the wrong button to respond. I don't know what I did there, so sorry about that.

      Yes, the results were sent to a pathologist. How do I find another pathologist to look at them? I do have an endo who I see regularly, but she didn't seem to really "buy" the celiac thing, which has really turned me off, and I am now searching for a new doctor.
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    4. runsuzannerun added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      2Nd Opinion Help!
      I am an emerging professional distance runner and have suffered from all of the celiac symptoms in the book. I have also had hypothyroidism for about 12 years and have had to increase my dose after every visit due to malabsorption. My symptoms started about 3 years ago when I started running and were almost unbearable, and I have also been suffering from anemia.

      I only became aware of celiac disease after another runner suffering from the same symptoms was diagnosed. Not knowing much about it, I skipped the blood tests and went straight to the GI. The nurse practioner said it sounded like classic celiac and had no problem getting me in for the endoscopy. When I went in for the procedure, the official "doctor" asked me what my problems were. I told him that I am convinced I had celiac disease, and his reply was, "you don't have celiac." This really concerned me, but I was already hooked up to the IV and prepped.

      When I called for my results, they said that they were negative, but they found some redness and chronic inflammation that was from gastritis. They said I should come back in for a follow-up and think about getting a colonoscopy. Completely unconvinced and frustrated, I asked to see the results for myself. They sent me the actual pictures from the biopsy, and I spent hours comparing them to other biopsies of people with celiac disease. Clearly, I am not a doctor, but my biopsies looked identical to other biopsies with a celiac disease diagnosis! The vili are definitely blunted and much shorter than they should be.

      I self-diagnosed myself with celiac disease and went gluten-free for what's been 4 months now. I started feeling almost 100% better after about a month, but now I am having some other problems that are representing a hyperthyroid. I feel that my gut is able to absorb my synthroid much better now, that I am actually overmedicated.

      This has now brought me back to the frustration of getting the proper diagnosis for celiac disease and seeing a doctor who actually knows about the connection between celiac disease and other autoimmune disorders such as Thyroiditis. I feel really helpless and am looking for some advice as to who I should see. I live in the San Diego area and would appreciate any feedback. Is it possible to just take my biopsy results to another doctor?

      Please help!
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