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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About ChristinaPro

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    1. ChristinaPro added a topic in Celiac Disease - Parents of Kids or Babies With Celiac Disease   

      False Positive Blood Work?
      I am so conflicted on what to do for my 19 month old daughter.  I am so mad at myself for not being better informed when this all started.  Long story short: my daughter had a diaper rash for 2 months that we could not get to go away no matterwhat we did,  then her poop went crazy, it was wheat grass green, smelled like dead fish and she would poop up to ten times a day.  I had a gut feeling that wheat was causing her symptoms and her doctor said wheat allergy (never in a million years did I suspect celiac) was very common and told us to go gluten free and see how that worked.  It was amzazing how everything cleared up!!!!  A month and a half later they did blood work.  I had to plead for them to even do it   They swore that it didn't matter if she were eating wheat or not.  They were assuming it was the same as allergy testing.  Anyhow, it came back borderline postive by 3 points (I don't even know what that means) but since then they LOST they results and the lab cant find them either.  The specialist won't even talk to us unless we do a month of gluten to retest.   The smallest amount makes her sick  Poops all day the following day and the rash comes back.   she is miserable!  We have also had to go dairy free but haven't done any testing.  She had ear infections for 2 months, lost 10% of her body weight in 2 weeks and ended up in the hospital. 
      I can't decide if I should retest or not..   Is there something else that would cause a false positve test?  I am trying to find a new doctor but live in a very rural area and chioces are limited and when we did go to the city, the doctor treated me like I was crazy. 
      Has anyone done genetic testing?   I realize that when she goes to school it will be helpful to have proper diagnosis   I have no doubt she is intolerant to gluten and most likely dairy.    Is it worth making her sick for a month?
      • 5 replies
    2. ChristinaPro added a post in a topic My 16 Month Old Daughter Got A Borderline Positive   

      Oh my! We are at children's hospital because my daughter has RSV that turned into pneumonia They have not listened about her celiac at all whicj i Have brought crackers and such to the room. Anyhow, I have been told by three doctors that she doesn't har celiac because her wheat allergy blood work came back negative Sorry just had to vent. I don't know where to go for answers sometimes..... They look at me like I'm crazy to even bring it up
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    3. ChristinaPro added a post in a topic My 16 Month Old Daughter Got A Borderline Positive   

      Thanks everyone! It's been so frustrating dealing with her doctor. I mean, who wants to argue that your child has celiac but that's what I like right now. Instead of support and advice, I feel like they think I'm nuts.
      Anyhow, thanks for te responses!
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    4. ChristinaPro added a topic in Celiac Disease - Parents of Kids or Babies With Celiac Disease   

      My 16 Month Old Daughter Got A Borderline Positive
      Symptoms started in June. My daughter had a diaper rash for two months, we tried everything to make it go away and then for 10 days things got crazy with pooh. At the end of ten days it was wheatgrass green and smelled of dead fish. Her doctors office told me I wasn't changing her diapers enough and then that she probably just had an intestinal infection and to feed her toast. Anyhow, long story short, my daughter and I went gluten free (gut instinct that wheat was the issue for her and I was still nursing). her rash disappeared and everything else returned to normal. I was amazed at how fast things cleared up and how much more happy she was as well!

      After 2 months of being wheat free they did blood work. Wheat allergy came back negative so her Doctor told me that she could eat wheat (did NOT trust this) and got celiac back yesterday (i guess they forgot?) and it was borderline positive. I was told again, that it was probably fine to feed her wheat. I'm changing doctors after yesterdays visit but my question is: How accurate would the blood work be after being gluten free for 2 months when the blood was taken and what does borderline positive mean?

      I'm still planning on having a gluten free household but should I follow up on this blood work for better knowledge of whats going on?

      The other issue is that we live in a rural area with only one pediatric office and to find another would be almost 2 hours away. Resources are limited
      • 8 replies

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