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Lisa

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About Lisa

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  • Birthday 10/26/1954

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  1. Businesses such as bakeries or those who use flour in a commercial manner can very well have air borne gluten that can be breathed in, can kick off a reaction. Since your father was using flour a week ago, it's most likely something you came in contact with after that, unless he is a very, very messy baker with flour everywhere. Smelling burned toast would not create a reaction for someone with Celiac, unless the toast was ingested. Many of us have been so sick previously to a diagnosis, the thought of being around gluten in any form can give us the 'creap out response', smell included. But only ingesting gluten into our system will trigger an autoimmune response. 1398, I would recommend a food diary. That would help you identity a reaction. Some will always be a mystery, unfortunately. Also, after your intestines have been damaged due to Celiac, most foods, gluten or not will be bothersome until healing can take place. Hope this is helpful.
  2. Bartfull, I have always admired your attitude and even more so now. I hope you are surrounded by family, great friends and enjoy every day to your fullest.
  3. Trip to Clearwater Florida

    I travel to St. Pete frequently and have had no issues with restaurants or grocery shopping. In larger cities, most of the staff, I have found, is knowledgeable regarding gluten. And nothing is better than fresh gulf shrimp!!! Publix is a super grocery store, where I buy my gluten free Van's waffles. As mentioned above, you can Google 'Gluten Free in Clearwater'. I'm certain you will be pleased with your options. Enjoy you trip.
  4. I have never had an issue with Lipton Tea. Not even on my radar. Please state why you consider Lipton Tea unsafe HauntedEyes.
  5. Welcome Cara! Glad you found us. Determining your level of sensitivity may take a year or more. Lots of time being totally gluten free, because it takes a varied time to heal to feel what a glutening is. In the beginning, most foods, gluten or not with bother an unhealed gut. As you indicated, you have family who prepares their gluten containing foods in your kitchen. Do they clean up after them selves, do you have a dedicated toaster that's only for you, do they double dip in the condiments in your fridge, are you gluten pasta pots cleaned well? If flour pasta is made in your kitchen, it's likely that you will be glutened. Airborne flour will get into your nasal passages and possibly make you sick, but not too sure about steam exposure. I would revisit your kitchen and it's use. And hang out here for a while...I learn something every day and I've been at it over ten years. Hope this helps and welcome.
  6. Sorry, I guess I was not clear about the reason for the SIBO test, my apologies. My reply was less than helpful.
  7. What did you blood work indicate? It might show some essential deficiencies you may have. When I was first diagnosed, I had B-12 shots once a week - it helped me tremendously with my balance and speech . Folic was low as well. After four weeks, I went to once a month and was able to orally supplement after that. Eat as cleanly as you are able. Hope you find your way to recovery.
  8. No, I am not familiar with that test, but I do know that a breath test cannot diagnose you with Celiac Disease. General means toward a diagnosis is with a blood test, endoscopy exam with a biopsy, gene testing and, in association, a positive dietary response. If you would like the specific blood test, we can provide that information, which you can present to your primary care physician.
  9. I'm not too sure if you mentioned this already, but dairy may be an issue for him until some healing can happen, in most cases. I still can't enjoy milk after over ten years gluten free. Perhaps you can switch to almond milk or a non-lactose milk and see how it goes.
  10. As Karen said, it took me six months of healing before I recognized a gluten experience.
  11. I am certainly not knowledgeable about night shades. I have no experience, nor issues. But I will say, that being gluten free for two weeks (assuming you do have Celiac, as your tests are not in yet) is a relatively short period of time to be symptom free. It takes time for the gluten to do damage, as well as heal. With most people, it will take a few weeks and in some severe cases a couple of years to healing. Mastering eating 100% gluten free is quite a task and the learning curve is steep. It all takes time. Until you intestines heal, all foods, gluten or not, will cause discomfort. Hope you feel better soon.
  12. The origin of this post is over three years old. After being gluten free for more than ten years, I decided it was time to try all the wonderful named brand cereals after such a long hiatus . Yes, the lactose intolerance reared it's ugly head once again. I may try the non-lactose milks, but I'm not too big of a cereal fan either. Back to the Eggo's. Sometimes, the issue may be a simple one.
  13. Keep a food diary. Breakfast, lunch an dinner - and in between meals Gluten free is to feel good again. Document foods you eat and what brand. Document every thing you eat. If you have a questions about a product, ask us. Read the label, and if in question, ask us.
  14. As said, welcome to the club and the road to recovery - free of drugs, nor surgery. Please, let us know how we can be helpful to you.
  15. I am not going to get into the details of the on going discussion, because, I can't afford to. But I will say, that everyone has a different way of coping when diagnosed. Eleven years ago, I found myself crying in the middle of the grocery store, restaurants and at homes of friends, in total frustration and grief. I get that. I've lived that. Today, I don't give it a second thought. I live a life that is not deprived. Although, I have not mastered the art of Southern Fried Chicken, but that's okay, too. And the dinner invitations have dwindled. Were they friends anyway... um no. I have healed enough that a little bit of gluten, unintentional, gives me mild symptoms and I'm grateful for that, yet it keeps me vigil. A life long of gluten free dining is not a life noose around your neck. I say this, not to diminish the struggle of others, but yet, to offer hope that "normal" can be found. Labels have have never failed me. Restaurants, I must "choose wisely". I eat ice cream and rely on their labels, with comfort.