This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
Well Zebra007, you got it I have no problem admitting when I'm wrong, but in this case, this supposedly "great guy" had serious issues. The allergy testing came up with a few minor allergies but nothing severe. The doctor said I had no need to take a daily antihistamine, and I didn't need allergy shots. I get a little bit of morning breath most likely from the hernia, but as my friends and the doctor reassured me, most people do have morning breath.
I did flat out ask the ENT about my breath, and he said I did not have halitosis. Instead he told me the guy I had been seeing was a dud and that I needed to do a better job finding better suitors hahaha I never saw the guy again after I went to the doctor because he disappeared on me. I've never had a guy disappear on me before so that was incredibly hurtful, but the cliche live and learn definitely comes into play.
I work with elementary school age children who can always be counted on for their honesty, and they never said anything about me smelling. I was asking friends to smell my breath. I have good friends This supposedly great guy made me feel so insecure about things, but karma keeps me going.
Positive outcome about the situation...I started using Therabreath products, and they're great!!
I didn't let that other guy stop me, so I'm back out on the dating scene. Bring it on
so the outcome from the ENT's office was that I don't have halitosis. He did find that my nose was slightly stuffed, there were no signs of active reflux and everything else looked normal. It is an ENT and allergy clinic in one, so I am going back for allergy testing in a few weeks. Until that time I am not supposed to take any kind of antihistamines, so this change to spring should be an interesting one. I've been using a neti pot, and that definitely seems to help. The doctor also said since I've never had a guy or any friends complain about this before, it could just be a difference of the bacteria in our mouths...attractive haha He prescribed me Peridex for right now to see if that helps any. It only seems to be affecting this guy which is really upsetting because I do really like him. I will brush/floss/use mouthwash/chew gum, but in the end if it bothers him that much and he doesn't want to continue seeing me then he's not worth keeping around anyway.
so March 10th will mark two years gluten-free, and I feel so much better! However here's what's going on...
I'm dating this great guy but earlier this week he told me that my breath and body odor really turn him off. I'm an extremely hygienic person...brush and floss at least twice a day, shower once a day, wear deodorant...so when he told me, quite honestly I was shocked and dumbfounded I ended up crying in front of him, and I am NOT a crier. It didn't seem to scare him off, and I could tell he felt really bad, but at the same time despite having my ego bruised, I'm glad he told me.
He asked me if it could have anything to do with being gluten-free, and I said I didn't think so, but now I'm not so sure. Before going gluten-free, I always had a thick white coating on my tongue, but since going gluten-free that has pretty much disappeared.
I've never liked using mouthwash because it burns my mouth, but in the last few days I've used it, I'll notice I'll be good for about an hour, but then I get my normal taste back in my mouth. My nose is still continually stuffed up, and I've read that having sinus problems can contribute to halitosis, but I don't know why it's stuffed up. I always have to breathe out of my mouth instead of my nose. My GP's suggestion was to take Zyrtec all the time...not doing that.
I'm just so frustrated because I feel like I keep trying to fine tune my diet, but then something else gets out of whack. I don't want to take pills continuously for anything, I just want my body to cooperate. Does anyone have any natural remedies to suggest?
ETA: According to my endoscopy report, I have a medium-sized hiatus hernia in my stomach.
I'm not sure if it's in all Target stores, but in the two near me in Delaware (Brandywine and Christiana Mall locations) have started selling all of these http://udisglutenfree.com/product-category/frozen-meals/
I've seen these in several grocery stores locally, but Target sells them for $1.50-$2 cheaper.
These Targets are also carrying WOW brand cookies as well. http://www.wowbaking.com/
I was a big C sufferer, and when people ask me what led me to get tested for celiac it was because of the C and bloating. For reference I'm a 29 year old female. I was always regular and then that started changing. My Mom tried to convince me everything was fine, but I knew something wasn't right. It's one thing if you've been irregular all your life, but I hadn't been and I knew I needed to get it checked out.
I consider myself the queen of laxatives and C remedies Before I knew gluten was poison to my body, I loaded up on fiber products like Fiber One and boatloads of water but nothing moved and I felt huge. I dabbled in Dulcolax, smooth move tea, Exlax, but I knew I didn't want to take those for the long term so I kept searching. My GP prescribed Miralax, but I knew I didn't want to take that long term either and it didn't even help me anyways. My GP and GI kept saying more fiber, exercise and water, but it wasn't helping. Hands down the best relief I've found is magnesium and liquid glycerin.
My GI agreed to test me for celiac and I tested positive and removed gluten from my diet. After some other tests I was diagnosed with fat malabsorption and exocrine pancreatic insufficiency, but thankfully I took Creon, and I've lost both those diagnoses. The best C remedy I've found is magnesium. My C got better after the celiac diagnosis, but since my pancreas was out of whack I still had bloating and occasional C problems. I used to have to take a whole lot of magnesium to feel relief because fat malabsorption also causes you to lose magnesium. Magnesium is important in so many bodily functions. I take Super Magnesium from GNC. I don't recommend anything with magnesium oxide because it's harder for your body to absorb.
My vote is for magnesium and liquid glycerin. I no longer use either of those on a regular basis. I can't even remember the last time I used the liquid glycerin. I will say that when I get super stressed from work around concert time, I teach elementary music, that makes the C reappear, but I take one dose of magnesium and it levels me out quickly. The trick is to find the right dose of magnesium for you because if you take too much it causes D. Hope this helps!
thanks everyone I've been resting more and am definitely getting back to feeling like myself. I was told the pink coloring is back in my face which is a good sign. No more dark circles under my eyes and my headaches/brain fog are much better, but my intestinal area is still a bit sore. The gluten-free diet may be a little challenging at times, but feeling like myself is the best reward. I do not miss feeling like this regularly at all!
I've been strictly gluten-free since March 2013 and to my knowledge have only been glutened three times. Unfortunately I'm still feeling the effects of the third one. I can't pinpoint it exactly, but I think it either came from Thanksgiving dinner or Black Friday lunch out.
In general I have delayed reactions. I read about people knowing they've had gluten within a half hour, but that's usually not my case. Instead on Sunday morning I woke up with a killer hangover except I hadn't had a single thing to drink, and I've woken up with one each morning, but thankfully they've been reducing in intensity. I've had periods of brain fog, kidney pain and the dreaded C so I took some magnesium. My intestinal area is so tender. Drinking large amounts of water only makes me feel more bloated even though that's what I've been doing since that's what suggested. I feel huge even though the scale only says a three pound gain. I know the effects are being enhanced because it's that time of the month too, but I also know that so many of these things have not been happening monthly, and that most of it is from the glutening. I ended up taking the day off from work, which I never do, but my body just needed the rest. I can't believe I used to live like this daily, and think it was all normal. Thanks for letting me vent, and now it's time to go back to sleep. This too shall pass...
I ended up being able to go off Creon about two months ago because my elastase testing went from 72 (indicated severe pancreatic insufficiency) up to a 414 (anything over 200 was considered normal), and things had been going really well! Unfortunately I got glutened sometime last week...can't pinpoint it, and I'm still feeling the effects. I ended up taking the day off work, which I never do, to just rest. I know it will pass, but I can't believe I used to think feeling this way all the time was normal.
so living in the northern Delaware/Philly area, Wawa convenience stores are all around! They really stock some great on the go things for the gluten-free crowd. They've started carrying Krave jerky and Wai Lana yucca chips. My favorite flavors are the black cherry pork bbq for the jerky, and the herb and garlic for the Wai Lana chips. Maybe two months back I sent them a nice e-mail letting them know I appreciated that they carried these products and other products that were convenient for those of us with celiac disease/NCGS, and then they sent me a small gift card for my positive comments. That was something I wasn't expected, but it made their value go up even higher. Their restrooms are always clean, so I know I can wash my hands before eating whatever I buy. I promise I'm not a Wawa spokesperson, but my friends tell me I should be along with Wegmans because I love Wegmans too
my GI ordered a MRI of my abdomen and pelvis, small bowel series and a capsule endoscopy. Those all came back normal with the exception of a ulcer in the illeum section of my small intestine. I didn't show pancreatitis, so that was ruled out as a cause for EPI, and I didn't have Crohns or CF. Check out table 4 in this article which lists the different causes of EPI http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3132852/#!po=0.925926
I had all these tests done, and when everything came back pretty much normal, my GI decided my EPI was all related to celiac. I hope this gives you some other ideas!
Are you taking your ZenPep with your food and not before or after? I know Creon works best when taken with your meal.
back to update after getting all my follow-up testing completed. For reference, I am a 28 year old female. warning...long post ahead
Back in August I went to my GP to have my yearly exam. Some things of note:
-My TSH has gone from a 2.490 back in April 2012 to a .945 in August 2014.
-My Vitamin B12 has gone from a 824 in February 2013 to a 521 in August 2014. I believe this is related to fat malabsorption/EPI, but mainly related to the I haven't been supplementing this one regularly, so I'm back on that.
-Vitamin A has a ref. range of 18-77 and mine was 46 in February 2013 and 30 in August 2014
-Vitamin E has a ref. range of 4.6-17.8 and my level was 11.2 in February 2013 and 9.6 in August 2014
-Vitamin D has a ref. range of 30-100 My level has been 25.3 in February 2013, 35.1 in May 2013, 28.3 in June 2013, 40.7 in August 2013, 38.4 in December 2013 and 31.8 in August 2014. It's bounced around, but still not high enough, so my GP put me back on the 50000 iu once a week dose for the foreseeable future.
-My celiac panel consisting of TTG IGA/IGG, DGP IGA/IGG, Total IGA and EMA continues to be negative, except that nagging DGP IGG marker haha
-My lab's normal reference range for DGP IGG is negative 0-19, weak positive 20-30 and strong positive >30
*Pre-gluten-free my levels were 43/41 back in Jan/Feb 2013
* Now gluten-free-32 in June 2013
* 24 in December 2013
* 28 in August 2014
-This is a little frustrating because I can't get this level to drop. I eat out very occasionally, and other than that I am as gluten-free as humanly possible. I keep coming back to this article, and the fact that my body lines up with this statement, ""One possible explanation of the persistence of antibodies against dGP despite complete removal of gluten from the diet is the presence of T-cell clones that have evolved antigen independence and continue to stimulate dGP antibody-secreting plasma cells. This phenomenon has been previously described, and pools of memory T- and B-cells can be maintained at constant levels for years even in the absence of the eliciting antigen.[45,46] In addition, plasma cells can continuously secrete antibody even after the disappearance of memory cells. Further studies will be necessary to confirm the presence of dGP-specific memory B-cells or plasma cells in NRCD patients. Therefore, the mechanism responsible for the persistence of anti-dGP IgG antibodies remains to be elucidated." http://celiac.org/blog/2014/03/10/antibody-linked-to-celiac-disease-that-does-not-respond-to-gluten-free-diet/
Now onto the good stuff After being diagnosed with neutral and total fat malabsoprtion and EPI earlier this year, I've been on a 48,000 unit dose of Creon with meals and a 24,000 dose with snacks since April. My pancreatic elastase level was at a 72 in March 2014 with a reference range of anything under 100 indicating severe pancreatic insufficiency, 100-200 indicating moderate pancreatic insufficiency and over 200 being normal. I am happy to say that my September 2014 level was a 414!! I had all the testing run earlier this year to make sure EPI was related to celiac and my levels climbed even faster than in this study, but I am 30 years younger than the mean age evaluated http://www.ncbi.nlm.nih.gov/pubmed/20458623
My February 2014 testing showed positive for both neutral and total fat malabsorption, and my October 2014 testing showed that I am no longer malabsorbing fat! My Vitamin K has done the following:
February 2013 <0.13 with a normal range of 0.28-1.78
June 2013 0.16
December 2013 0.18 (After this test, my GI then tested me for fat malabsorption. I had been taking a supplement that was 1,000 mcg of Vitamin K which is equal to 1250% of your daily value. I was taking 7 times that amount at his recommendation for two weeks intermittently, and the levels weren't jumping like they should have been.)
August 2014 0.34 (I had been on Creon since April 2014, so I attribute the jump in the level to that.)
Everything is starting to work itself out! As soon as my current prescription of Creon runs out, I was told I am allowed to go off it to see how I feel. If I start to randomly bruise again, it will indicate a problem with Vitamin K. Sadly, my fantastic GI left the practice in August, so I'm seeing another one within that same practice. I'll always be thankful for all of the help from this board and from a doctor that actually listened. I actually wrote him a thank you note He could have simply said you aren't losing weight without trying, you can't possibly have fat malabsorption or EPI, but he listened and tested me and now everything is coming together.
I still occasionally get bloated, have problems with C, and sometimes my stool sticks to the bowl, but now I can genuinely attribute that to stress and other intolerances. I have a problem when doctors attribute everything to stress right away because you're female I still take magnesium because it's a wonder mineral for me, a daily multi and 50000 units of Vitamin D once a week. I'm more in tune with my body about which foods make me feel good, and what I need to stay away from. I really don't care that my diet may not be what's recommended by the FDA because I've found the foods that are right for me.
So the plan for now is to go off the Creon, and be aware if anything changes. I'm so thankful to finally see everything falling into place!!
To whom it may concern:
I absolutely loved eating your Utz Natural Gourmet Medley chips! As an individual with celiac disease, I was very sad when I realized the new packaging for these chips contained the new allergen warning, "Processed on a production line with other products that contain milk, wheat and soy." After searching unsuccessfully for the past few months trying to find a substitute for your chips, I decided I'd at least try this e-mail. *The product link is included at the bottom of this e-mail for further clarification.
Is there any way these chips can be made on a line that doesn't come into contact with wheat and soy, and can be labeled once again a gluten-free food? I don't know all the logistics of your processing, and perhaps running these chips on the same lines as wheat and milk is more cost effective, but if there's any way they can be made on a different line, you would have a happy customer once again.
Although I live in Delaware now, I grew-up in Central PA, and have always loved Utz chips! In fact, my sister lives in Hanover, and I've been to your factory and taken the tour. I realize my request to run these chips on another line might not be possible, but I appreciate your consideration. Thank you.
I received this response:
Thank you for taking the time to express your concerns. I have made your comments heard in our Marketing Department and Quality Control to see what can be done about this. Hopefully, we can get this changed back in the near future.
Sincerely, UTZ QUALITY FOODS, INC Customer Care Center Diana
Here's hoping they change things back because I loved those chips!!