This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
Thank you SO much for responding. I do have a doctor that can help me. I really feel for you guys as it is such a hard thing to deal with. I really wish I found out at 10 though, it would have saved me from so many problems, and so much pain. Good luck to you and your family! <3
Anybody find out they have and overgrowth of Candida? 2013 was fully a year of trial and error for me. After all the testing in regards to gluten(Celiac,sensitivity, or intolerance?)...I finally go back to what I already knew, but didn't think it was the root problem. I know now that it is, and always has been since I was a child. I'll keep this short, and not go into the length of how and why I developed Candida overgrowth, however I had my AHA moment last month. I finally got to buy some gluten-free beer and gluten-free apple cider. Well, I broke out in a rash the next day-totally on fire! It's the sugar and yeast!!!! I don't know why it took me so long to realize this...I was told by my doctor that I my body can't really tolerate sugar, and of course to stay away from gluten, soy, and dairy. I know I needed to as, all my symptoms clear up when I do. However, on a emotional-social standpoint....I was so irritated when people would ask, well are you Celiac? And when I would say I don't know, I never had the test, blah blah blah. They wouldn't take me serious. Like I'm making this all up or something. So I tortured myself, and went back on gluten to do the endoscopy/colonoscopy. They said I looked nice and normal in there. So, since then I've been on and off of eating good-kinda in limbo trying to figure out what I need to do for myself. And then the gluten-free beer incident happened, had my AHA moment, and am now working on getting back on track.
Sorry for the novel. Anybody else suffering from Candida? What has helped you? I do take a 7 day probiotic supplement every 2-3 months, and I know the protocols that I have to follow as far as diet goes. I'm just having a hard time dealing with this on a emotional level....withdrawals aren't fun. Sugar is ADDICTING!!!
Thanks for any input!
I've been gluten-free for two weeks now(well, I actually fell off the wagon yesterday by having several bites of my husband's takeout). I actually got a really bad cold the day I went gluten-free that lasted for a week, so I actually had a hard time deciphering the cold symptoms from withdrawal symptoms. But looking back, the symptoms that I still have are: headaches, fatigue, bloating, extreme moodiness, brain fog, and sometimes I feel like I have the flu. After the first week of going gluten-free, the wonderful itchy rash came back. It's actually flared up really bad since poisoning myself yesterday.
I definitely am having a harder this time around. I had gone back on gluten for testing-thank God that's over!. We have a bunch of family visiting this summer and it's really hard to feel this way when they are around. I feel so anti-social, and grumpy. And the last thing I feel like explaining or talking about with people right now is food(which is not the norm for me, I love to cook, and talk about and help people with nutrition). I guess I feel very edgy.
From what I've read, and what the previous posters have mentioned...is that it will get better with time. We just gotta hang in there. Good luck with everything New2GF!
Ugh, I know the feeling. I've been gluten-free for two weeks now since my endo/colonoscopy....Was SO strong about not eating gluten, until: yesterday! My hubby got some take out....he was like, are you sure you don't want anything? I was like, babe....I CAN'T eat that stuff. You know that, don't ask me. HAH, we got home(I even bought some gluten-free frozen dinners from the store so I could feel like I had my own "take out"), and I was like I want a bite!!!! I don't know how the heck I rationalized that one in my head! 5 to 10 bites, and about 30- 60 mins later: BAD rash! It lasted all night long and still on and off today.
It's slip ups like these that make me stronger for the next temptation-knowing the horrible consequences. But, as another poster mentioned, I know with time it does get easier.
Hi Belle, thank you...and me too! Im glad there doesn't seem to be anything else going on. Total peace of mind after months of worry. I'll post the biopsy results as soon as I get them- I'm very curious. The doc also suggested the Fodmop diet to see if maybe those foods are causing problems for me if it's not Celiac. For now though, I'm just going to stick with what I'm doing. Very clean, wholesome food eating. If I still seem to be having problems down the line, then I'll try Fodmop elimination diet.
So hallelujah, I've been gluten-free since Friday after my procedures! Other than developing a nasty cold that same day, I'm slowly starting to feel better. I already lost 7 lbs of bloat since then-finally looking less "pregnant" and finally starting to experience a little more mental clarity too.
I'm still waiting for my doc to call me back with the biopsy results, which he said I would have heard from him by now...I just figured they are busy and Im not in too much of a rush here...after all- I already went gluten-free.
The only thing he told me on the day of, was that everything seemed to look good- no evidence of Crohn's or Ulcerative Colitis, etc. He also said he didn't see any damage, but we'll wait for the biopsy to come back as far as Celiac goes.
My report from that day just says: No gross evidence for inflammatory bowel disease or celiac sprue.
I've read a few other posts, where the doc says they can't see any "visual" damage etc, and then the biopsy comes back and there's damage. Anyone else have the same scenario happen to them?
blckchr8, I hope you find out soon! Im curious as to how long the biopsy report will take to come back myself. Tomorrow is my endo/colonoscopy, and as Im sitting here, drinking this awful gallon of prep stuff , I too have done this to get the final check to see if it could be Celiac. But, Im SOOO happy I can finally go gluten-free tomorrow, and be back on track with starting to feel better. And know that, I did all the tests, and don't have to have the what if's in the back of my head driving me bonkers.
Like whitepine said, if you know the diet works for you and makes you feel better, than stick with it.
However, I do have a question...can you eat what ever you want after? Or are there restrictions because of the biopsies.
I gotta thank you guys again!!! For keeping me sane and letting me know Im not the only one that's had to go through all this craziness! The GI was pretty cool, has years of experience, and used to diagnosing Celiac a lot. He is doing the endoscopy-biopsy of duodenum, and colonoscopy-biopsy of the ileum. Now, after a couple months of impatiently waiting, and shoving everything gluten into my mouth possible, and drinking lots of my fav beer, lol....I feel confident for the procedures. Im SO happy now that I can finally go gluten-free without looking back. I know I probably won't have the results for a while, but I will update with them. Then I can hopefully stop flooding this area of the forum with all the what if's? And start swappin' recipes!
Thank you guys!!
I was wondering what kind of problems Celiac disease can cause for the colon? I've tried googling, but I haven't found anything other than the serious, colon cancer. Are there any non-serious problems that it could cause?
Hi greenbeanie, thank you for responding. What you said totally makes sense! The good news is, that I had only gone gluten-free for like a month and half. Which means, by now, I've been on gluten for about 4 months now. I've gained weight like crazy! And my stomach is rock hard and hurts...surely, if I have Celiac, it should show some damage. I don't think I went gluten-free long enough for things to heal up in there.
You mentioned you were gluten-light for 15 years...this is why Im going through this horrible challenge now. I know it presents a problem for me, I want to know for sure "how much" of problem it really is and if there's a potential that it can cause problems for my future children. Since I've been back on gluten I too am suffering from hair loss(talking more than the usual handful a day that hairstylists say), and I too have a bunch of white hairs now- Im 24. I noticed the white hairs this last year or so.
Thank you for sharing your experience with me! I sure hope they call me to come in sooner! Im going to be a whale by the time this is all over!
Sorry, I think I put the wrong title to my question. I know all over the internet it says about 2-4 slices of bread a day. Im just wondering because I've been eating so much gluten the last 3 months, if I cut back just a little, will it matter too much?
What were your experiences on the gluten challenge, biopsy results, etc.?
I finally saw my GI. Im scheduled for a endoscopy/colonoscopy(biopsy of duodenum & ileum) in about 3 weeks cause that is the soonest one available . I had to wait a month for my GI appointment that I just had...so I ate gluten everyday, and well Im eating it almost all day long now. I feel so sick and depressed and my stomach aches all day. This is so hard.
Anyways, the doc just said maybe go gluten free until a week before...I looked at him like huh? Then he said, well maybe about two weeks before load up...like really load up. And I still looked at him like he was crazy. So I told him, that Im just going to continue eating it...it's too hard for me to stop, go through withdrawals, all to consume it again. He is knowledgable about Celiac, I just think that he, like other articles I've read, thinks that if I/you truly have Celiac that eating just two weeks prior should trigger a response to do something to the intestines-if you "truly" have it.
Well, I think that's a load of poo....Im just going to keep eating it everyday. My question is, If I just eat gluten in the morning would that be okay-enough? I was doing that in the beginning of my 4 week wait before, but found I actually felt a little less nauseous and sick if I ate it all day long..Does that make sense? It's like I feel worse with small amounts, but Im SO HUGE and bloated right now and sore...I think I need less? Ugh.
Also, he was concerned about my Ferritin levels that I showed him from previous blood work. They are/were VERY low. He said that the small intestine is where iron is absorbed, and Celiac affects that area....and that could be an indicator of it in the very early stages-hence why I don't have chronic diarrhea yet. SOOO, we won't know much until he goes in and investigates. lol.
I don't have the "specific" genes...so we'll see. I have HLADQ 1,1 (Subtype 5,6)
IM SO CURIOUS RIGHT NOW!
Me too, the timing thing. For me, it just sucks all around. If I cut back and only eat it one meal a day, the symptoms get more severe. Also, the lack of gluten also starts the withdrawal process...so I feel awful....then I eat it, and the symptoms feel worse. It's a lose, lose situation. So I decided to just eat it throughout the day...the symptoms stay at a constant level....but then the weight gain and bloating! Ugh! I have to say, I TOTALLY feel for you Mum in Norway, cause at the moment, I'm not working...due to years of this crap. But, all I gotta say once again, is hang in there. If this testing is that important to you, I know you'll find the strength within to push through. I know I've had too, and let me tell ya, I seriously mean that I had to dig deep! So many times I wanted to give up...but, I felt Im already into deep...so I just stay here....waiting unhappy. Miserable. Tomorrow is my consult with the GI doc. Im being positive in that the doc can schedule me in soon for the procedures...like I mentioned before, no matter the outcome, I just know at the end of all of this I'll have a piece of mind. That's all I want. Good luck to you, once again....Pls hang in there girl. For your daughter, for you!!!!
Also, Greenbeanie, I've noticed within the last two months... my hair is just falling out! I also noticed with more severity this last year that Im getting more white hairs!!! Lots! Im only 24! My husband used to tell me that it was blonde hairs, but now there are so much more...lol, I've returned to highlighting my hair!
I feel for you...Im going through the same thing. I was on and off prior to making my appointment...but have been consuming it everyday now. I had to wait a month(app. this Friday). It seemed like a year honestly... lol. But, this is just a consultation. I have no idea how long Im going to have to wait for the actual procedure. It's very hard....I had lost 12-15lbs when I went gluten-free for a month...well, when I started eating it again everyday...my weight shot back up within like a week. I literally look like Im 5 months pregnant, and after eating I bloat even more and look like Im 7 months. I hate it. Especially because it is summer time, and I don't want to put a bathing suit on. Very depressing. The other symptoms go on and on.
As for coping everyday...I just try to take one day at a time. That's all we can do. I know this diagnosis of knowing is just as important for you as it is to me. Just know, going through this for this small amount of time(although very hard), will be so worth it in the end...because you'll have your answer for the rest of your life...and that's a long time. After this last test, you can go gluten-free...no matter the results. And start to feel better. Like I said, just try to take one day at a time.
Im so happy that you got the answer you needed.
Two books that I really like:
The Gluten Free for Dummies series by Danna Korn
My ultimate favorite cook book, because I have other allergies as well, and the recipes are easy and yummy! is by Tammy Credicott
These books have helped me in so many ways! It can be quite overwhelming the first couple times grocery shopping, but eventually you'll get it. If it's not a "health" store, and just a regular grocery store...I find myself walking around the perimeters of the store- as that's where all the naturally gluten free foods usually are: fruits, veggies, meat, dairy if you can have it.