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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About chickpea77

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  1. So, we went to see the pediatric gi today to get C's results (Marsh 3a), and when I asked if I could get a copy of the results she said that I would have to go through the medical records department to get a copy of them because they are only put into his file, not given out. Is this common practice? I have read that I should be getting a copy for my own personal records. Just wondering if anyone else has experienced this? Thanks
  2. Results are in and he tested......POSITIVE!!!! So happy to have an answer now!!! I am not excited that he has Celiac Disease, but it could be a lot worse. Counting our blessings! Thank you for all of your support through the testing process, and putting up with my craziness! Xoxo! You guys are wonderful!! Thank you!!!
  3. Fantastic!! Congratulations!!
  4. Waiting, waiting, waiting, lol. I called the Dr's office last Friday and left a message for someone to call me back. A nurse called me back on Monday and apparently the Dr is on vacation until next Tuesday. She told me to call next Tuesday and she would probably give me the results over the phone. Things are going well here otherwise though. I just watched my son eat 3 slices of gluten free pizza when it has always been a struggle for him to eat one slice of normal pizza without curling up in a ball afterwards! And no more complaining about belly aches after eating! The dark circle seem to have faded from below his eyes somewhat, and his cheeks have colour in them again. 2 weeks and 1 day gluten free and already such a change in his physical ailments and appearance! Such a great feeling when we have spent the past two years watching him waste away and become so pale and ashen..... I just hope to goodness that the biopsy results come back positive so that we have 100% proof.... I am the worrying kind, and negative results wouldn't convince me to change his diet, but I would always worry that there was something else wrong that the Dr missed. Send some good vibe out into the universe for us if you get the chance if you can! Xo!
  5. Argh.. the Dr said she should have the results approx 2 weeks from the scope.... I will call her then! As for the time being.... I am slowly going crazy, 1, 2, 3, 4, 5, 6 switch!
  6. Thank you for your responses He has been gluten free since Wednesday and I can already see a difference in him. He has more colour in his cheeks, his face sees fuller, he has been eating a lot more, and the scale has gone up 3 pounds!! Since Wednesday!! I KNOW that he has Celiac Disease, I guess I am just so worried about not having a definitive diagnosis that I am graping for other people's experiences..... Having to wait a whole month for results is going to make me crazy!!
  7. I guess the title of this thread says it all, lol. I am not very good at waiting for results, and our follow up test is almost a month away Just wondering what the likelihood of getting a negative biopsy result is in a 6 year old with this bloodwork along with visible changes during the endoscopy? He has been gluten free since Wednesday, just curious of your experiences.... Thanks
  8. So, we just got back from the scope. The Dr told us they saw some slight redness, and then in recovery the nurse was reading the chart and said that they found some scalloping.... any opinions on what that might mean?
  9. My son eats some gluten every day, but not much at all. We took him off of gluten altogether for 2 weeks over Christmas just to see how he would respond. His total demeanor changed, no more belly aches, much happier.... We decided to take him to the dr after seeing the results. We had bloodwork done and his ttg iga came back 25 (20-30 weak positive). We had repeat bloodwork done 2 1/2 weeks later after boosting his gluten intake (it was supposed to be 3 weeks later,  but he lost 4 pounds in the 2 1/2 weeks and I freaked out  ). The results of the second test was 37 (>30 moderate to strong positive). I know it isn't much of a jump, but still enough to see a difference in a short period of time.... The rest of the panel came back negative, but we are booked for the scope and biopsy for next Wednesday....
  10. Thanks!

    My doctor says he always checks anyone with low iron for Celiac Disease because it is often one of the major signs.
  11. So we went to the Ped. GI this morning and my son is booked for his scope next Monday morning. They will take 6 biopsies. I was concerned that because his only positive test (tTG iga) was only at a 37 (20 - 30 weak positive/ >30 moderate to strong positive) that the biopsies would be negative/inconclusive but the Dr didn't seem too worried about it and told us we could start on the gluten-free diet immediately after the test! She seems to be pretty sure that Celiac is the issue here, which makes me very glad because the alternative to elCeliac when it comes to elevated ttg are much more ominous. Wish us luck! And once again, THANK YOU!!!
  12. 2 days until we see the Pediatric Gastroenterologist.....I don't know why I am freaking out so badly because, regardless of what s/he says the issue is, he is going gluten free.... a weak positive ttg, then a positive ttg, a tummy ache every single time he eats and they seem to be getting more painful, plus I have celiac disease too.... There is no way I am going to keep poisoning him just to keep scoping him until enough damage shows up to diagnose him! *blush* perhaps I am getting entirely too ahead of myself.... guess we still have 2 days until we find out what the next step will be..... thanks for letting me freak out........
  13. Thank you for your suport This has bee a stressful time. Honestly I am most worried about the scope because of what happened last time he was put out (he was tongue-tied and had to go for corrective surgery at 4 years old). They practically tore him off of me while he was letting out blood curdling screams staring at me and reaching for me as they took him down the hall to the OR.... And the fact that one of my best friends had a hole punched through her intestine during a colonoscopy--I know it isn't exactly the same, but still scares me! Argh... I just can't wait until all of this is over:-(
  14. So, we got the results from the repeat blood test today. His ttg iga went from a 25 (weak positive 20-30) to 37 (moderate to strong positive >30). He was still negative in his gliadin iga (he got a 4) and gliadin igg (he got a 13) {both of these are <20 negative}. His total iga was in the normal range and his EMA came back negative. Dr. said he is pretty positive that he has Celiac Disease (between my own history, his weight loss, tummy aches, constipation since upping his gluten intake, and the ttg results). We have the pediatric gastroenterologist appt on Tues., February 19th. not sure what she will say from here on in... relieved about the results (at least we finally have some sort of idea of what is going on), but broken that my 6 year old will soon be missing out on pizza days, bday cake, play dough.... Just want to get an official diagnosis
  15. Thanks for your words of support.... did i mention that i love it here?!