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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About jamer

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    Community Member
  • Birthday 08/06/1977

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  • Gender Female
  • Location USA
  1. Thank you all so much for your suggestions! We are actually going out of town to my brother-in-laws in the DC area. We staying almost a week. My husband and I have already been pulling up all of the bakeries and restaurants on my find me gluten free app. He gets as excited as I do about being able to safely eat a more variety of food. We live about an hour from Asheville, NC which is AWESOME for our community. Love them. We frequent it a lot and hubs always eats gluten-free with me. <3   My husband is also very, very observant when cooking and cross contamination. In the ten months since my diagnosis, he has never glutened me. Now, myself, I have caused cross contamination to myself a few times.   I'm beginning to feel less nervous. I've heard him and his brother discussing the meal. We decided I will take a lot of my own foods too. I'm addicted to rice chex so breakfast will be taken care of. I think it just feels so good to not be treated like I'm causing problems. My own family I feel like I'm not taken seriously.   Again, thank you all so much for your help, suggestions, and support. I love the overall support in this community.
  2. I know Thanksgiving is only a month a way, but I'm already becoming anxious. I have gluten-free since my celiac diagnosis in January. I have never had meals at other family/friends home since becoming gluten-free. That is mainly because my immediate family on my side just refuses to get it. Only my husband and teenage daughter get how serious it is and have seen how sick contamination makes me.   This year we were invited to my husbands brother's home for Thanksgiving. My husband immediately volunteered to cook the turkey so he knows it will be gluten-free. His niece graduated from culinary school in NYC last year and took a semester in gluten-free baking, cross contaminiation, and all other aspects. Her bff was diagnosed Celiac while they were in culinary class together. So, in a sense I do feel safer with them as I feel they will take my condition seriously and not treat me as if I'm doing this on purpose like my side of the family does.   My question, do any gluten-free vets out there have any suggestions of how to enjoy the holiday without making myself sick?    
  3. I feel like I post on here so much with my crazy questions but I'm just starting this new life with celiac. I'm going on 3 months of gluten-free. I'm quickly figuring out when I've been contaminated or accidently had gluten. It only took one time to make me OCD about being careful.  My question is this? Can old symptoms reappear with out ingesting gluen as one is healing? I'm personally sticking to a whole foods diet. I've discovered it's easier on my stomach. Things I had no problem digesting four months ago now hurt my stomach (non gluten foods) as soon as it hits my stomach.   This newest old symptom to reappear is tender, sore ankles that have now led to swollen ankles.   I'm so confused..just as I think I'm figuring things out..poof!
  4.   I guess it could have been. Anything is possible. Seems I'm having allergic reactions to medicines since going gluten-free. Never had a problem for now, nothing new in my diet, soaps, detergents, shampoos, ect.  Just trying to locate the source...I hate itching! scalp was itching like crazy, too!
  5. A lot of gluten-free things taste better to me. They don't have that overly packaged, to much salt or sugar taste to the. I make breakfast every weekend at home and my non celiac disease kids love my food and prefer to eat the gluten-free stuff. I'm all for it, then I don't have to try to make seperate dishes.
  6. I'm  new on this whole gluten-free journey. I'm 2+ months into the celiac disease diagnosis and the diet. I've been able to identify that horrendous reflux is one of my signs that I've been contaminated or glutened. I'm fairly positive I was contamined last night. My husband and I were out of town and we ate dinner out. I thourghly question staff, even talked to the chef last night about gluten and cross contamination. Last night about 5 or 6 hours afte dinner, I started by having itchy palms and feet, then it progressed to my thighs, stomach, arms, and that order. I also noticed a fine petichae rash wherever I was itching. This lasted for hours!! It was still present today but not as bad. Benadryl has it under control right now.   Can this happen from cross contamination, is this even associated with celiac disease?
  7.  I think that is valuable information, thank you for sharing!!
  8. Thanks Gemini. Luckily, I've never had fertility issues and as far as this miscarriage, it was twin to twin transfusion. Pathology also indicated a chromosonal defect. Still doesn't make it easier but I was super nervous it was from the Celiac. All of my blood levels are within normal limits. They were before my diagnosis. The only change from October to now is that my folate and B12 are on the lower end of normal. I've already added extra supplements in addition to my prenatal. We plan on trying to get pregnant again as soon as I have my first post D&C period.    I hope I get to where I can tolerate oatmeal again. It's always (since childhood) been one of my favorite foods for anytime of the day.
  9. I LOVE rice. It's one of my go to foods when my stomach is upset. Brown, white, whatever. I can tolerate that very well. I think I may try Bob's Mill. I always loved oatmeal and ate it regularly before the diagnosis. This disease just sucks.
  10. The chocolate I had was in Pamela's chocolate chip cookies and the oatmeal was certified gluten free. I think maybe half a cup. I'm having a hard time figuring out what I can eat and what is hurting my stomach. When I was diagnosed two months ago, I was pregnant at the time. I didn't know it until a few days later. When I'm pregnant, my stomach can handle anything. I can eat spicy, chocolate, oatmeal, and so on. I was following the gluten free diet a few days before the biopsy came back. The reflux was gone in a matter of days. Sadly, I had a miscarriage a month ago. So, now it's like starting over as to what my body is able to handle. I guess I will now add chocolate and oatmeal to the do not eat list.  Any flavorful suggestions on how to get fiber now? I've thought about getting some flax pills for it but is that as good as eating non gluten containing grains?
  11. Just curious if anyone has ever had a gluten type reaction to eating gluten free oatmeal? I'm having horrendous reflux since eating some this morning. I've also notice chocolate does this to me too...normal?   I never had a problem with either before my diagnosis with celiac disease. This is also the first time I've ate the oatmeal since going gluten-free in January.   Stumped.
  12. Eye Discomfort

    My contacts do that at times. Have you tried using clear care solution to clean them? It's more like an enzyme and will seriously clean them. As for eye sight...I have both of you beat! My glasses are a -8.0 and my contacts are -7.5.  I'm so blind, I sleep with my glasses on so I can see when I wake up!
  13. Within a few days, my reflux and gas disappeared. Over a few weeks, depressiona and anxiety started to life. The mental fog also went away within a few weeks. I'm two months into my gluten-free lifestyle and I've noticed I no longer have issues with neuropathy or even knee pain. Crossing my fingers that with time maybe my PVCs will even go away...oh and I'm starting to loose weight without much effort. I was a Celiac that couldn't loose weight no matter how much I tried. Now after diagnosis, it's coming off.
  14. Thanks. I don't injest my shampoo/conditioner. I make a point to keep it ouf of my face in the shower b/c I don't want to loose my contacts. I don't wear lipstick, never have liked it. When I do need chapstick, I already made sure it was gluten free.
  15. I'm confused when it comes to using gluten free makeup, shampoo, and soap. Do all those with celiac disease need to use these or is it just the ones with the skin reactions to gluten? I don't have a reaction via skin and I've never had the rash but I also don't want to use gluten products if there is a chance its affecting my recovery. I'm new this and finally feel like I'm getting a good handle on my diet, cross contamination, and even toothpaste to this.   Any advice?