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clafran added a topic in Celiac Disease - Coping WithSlow Metabolism? Glutening Symptoms Take Their Time...Howdy friends,
I'm working through a probable glutening as I type. Although I have been fortunate not to have gotten glutened too often in the past 8 months I've been gluten-free, I have noticed that it takes anywhere from 6-12 hours for me to register any sort of symptom.
As far as I can tell, my metabolism is a bit sluggish -- always has been. I know some of you can tell very quickly when you've been glutened; does anyone else get an unpleasant surprise much, much later???
Thanks, and eat clean!
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clafran added a topic in Celiac Disease - SleepNightmares - Glutened In My Dreams!This isn't exactly a sleep problem, but it's been occurring more frequently, at least in the last 6 months since I've gone gluten-free. I have recurring nightmares of intentionally eating something with gluten, or eating something that I find out just after eating it that has gluten.
Anybody else in this same boat? Yes, there are a few other stressors in my life, but I find it odd that I'm dreaming about gluten.
Last night, I was dreaming that I was eating French fries (from McDonalds -- a no-no IRL, obviously) when I grabbed one that was attached to a 'chicken' nugget. I ate it, but then tried to spit it out and/or make myself vomit.
There have been at least 2 other dreams of this nature. Is this normal? Will it stop?
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clafran added a topic in Celiac Disease - Coping WithI Got Glutened, Quasi-On Purpose. Bad Cathy...Please bump if this isn't the right forum/thread.
I have been gluten-free for more than two months, and I can honestly say I feel the difference. I never had (discernible) tummy troubles, but tons of "other" issues. The most concrete difference is my mood, my focus, and my energy level. Eating at home is fine; DH and children are more than supportive, and we are working (slowly) toward testing the kids and having a completely gluten-free home.
So this weekend, I had a chance to see some old friends, and we went to Buffalo Wild Wings. I knew right off the bat most things would be off-limits, so I settled on something "safe:" chips and "molten buffalo dip." Little did I know (and failed to ask), the fryers are multi-use, and the cheese dip came out in a deep-fried flour tortilla bowl.
I decided to run a test, as I had no idea what kind of symptoms I might exhibit, should I be accidentally glutened. Long story short, I found out. In addition to the cross-contamination from the bowl, the cheese dip was evidently loaded with gluten.
The next morning, I thought I had a hangover. I only had two ciders! I felt hot, flushed, almost like a fever. My ankles got sweaty! After a bit, I was sick to my stomach. I honestly though (hoped?) it was stomach flu, but no one else in my house got it, including two small ones who must stay in constant physical contact with me. My mom, who is Celiac/DH, was sure immediately that I had gotten glutened.
I felt like crap the rest of the day, and the following day was a little rough for this high school teacher. I finally feel like I'm on top of it (two days post-glutening), although I"m still really tired. Despite my fatigue, my sleep has been poor, and it's been harder to fall asleep.
Sorry for the ramble -- I just didn't know where else to turn! I know I can't be 100% sure, but I really do feel that I got glutened -- and suffered the consequences. And no, before you ask, I will NEVER do that again!!
And a small post-script: My MIL sent a lovely package of chocolates for us and the kids -- some of it has gluten, but all labels warn of cross-contamination on machinery. Rats. South Bend Chocolate Factory goodies.... *sigh* That's OK. I need to lose weight anyways, right?
Love and good health to all,
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clafran added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsBlood Test Received -- Endoscopy Or Not?Hi everyone,
I am new to the forum, although I'm not completely new to Celiac/Gluten Intolerance. My mother is Celiac/DH, and was diagnosed about 4 years ago. She has been pushing for all of her children to get tested (2 down, 1 to go) since she is a first-degree relative. (FWIW, Mum is 70, I am 40, female, married).
I had my blood work done a few weeks ago, and I received the results. My family practitioner ordered the tests, even though I am not currently exhibiting any debilitating or outward symptoms -- as far as I can tell. The labs were done through Prometheus, and my printout has the following information:
DGP IgG = Positive (5.9 EU/ml, reference <4.9)
DGP IgA = Negative (4.6 EU/ml, reference <6.1)
TTG IgA = Negative (6.5 U/ml, reference <10.3)
EMA IgA = Positive
Total IgA = 143 mg/dl (reference >44-441 mg/dl)
Prometheus report adds that "Results support a diagnosis of celiac disease," and "Serological markers for celiac disease detected."
My FP was honest enough to tell me he wasn't sure how to interpret the results, and that he would be happy to refer me to a specialist.
I know that a biopsy/endoscopy is generally used to confirm findings, but since I have a first-degree relative with Celiac, and my EMA is positive, do I really need the endo?
Really, I'm in denial. Big time.
Thank you in advance for any advice or support you may be able to offer.
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