This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
I figured I am already going to have to for breakfast. She gets tired of taking sandwiches everywhere. It wouldn't be so bad if it was just one girl, but there will be others that my daughter doesn't know. She will have to explain why she is eating different. That is fine for her friends that she sees all the time, they get it. It is hard for the first time. We are all still so new to this.
My 10 yo daughter is supposed to go to a sleepover this weekend. I was OK with it, but now I am not sure. She was dx'd in January and has been doing great. However, we were staying at a hotel for a softball tournament and I thought I did everything in my power to avoid any problems, but she ended up with a stomach ache all 3 mornings. This is the first time she has had a stomach ache since going gluten-free. The mom of the friend says she is gluten intolerant and can manage the disease for one night. My concern is the cross contamination. My daughter doesn't know about the sleepover yet. I don't know what to do.
Whole foods are just that; meats, veggies, fruit, whole (non-gluten) grains, etc. I would try it for a while until things calm down and then add in other foods. A lot of places say to skip the gluten free substitutions (i.e nuggets, pizza, fish sticks etc..) until you are more healed. It does mean cooking from scratch most of the time.
I don't know how old your daughter is. Mine is 10 and was dx'd in January. Mine was still having severe stomach pains after going on the gluten-free diet. She ended up with a colonoscopy and another endoscopy. Her small intestine was almost healed after 1 month on the gluten-free diet and there were no signs of and IBD's. We finally concluded her stomach pains were STRESS! Can you believe it? We started stress reduction techniques and she started to improve. She is doing very well now.
It sounds like you are doing everything right. It does take time for the antibodies to go down. We go back in September for her blood work.
DD also was off dairy and soy for almost 2 months.
My daughter is 10. She likes the gluten-free breads and baked goods now. She never liked their wheat counterparts. So, she is not feeling deprived. The only thing that would be nice about a pill is to prevent CC. Otherwise, we are good with the gluten-free diet.
My daughter doesn't watch much TV, so I hadn't heard about this. How awful! I do have to say though, that Walt Disney World is absolutely fantastic with special diets. They treated my daughter like royalty at every meal. So, it isn't company-wide. Someone obviously made a stupid decision not only to create the episode, but to air it as well.
I know how you feel. I was feeding out family whole wheat this and whole wheat that. Now, I feel like I was poisoning my daughter. I know I wasn't because I didn't know, but hindsight is 20/20.
My daughter is 10 and was dx'd at the end of January. She had an endoscopy at that time. She was still having a lot of pain and other problems, so we were concerned that she may have Chron's disease on top of the celiac. So, we did another endoscopy and a colonoscopy. I was nervous about the prep at her age. I can sure understand you concerns. Push electrolyte fluids as well as the prep. DD drank her prep in gatorade, but it wasn't enough. She complained in the evening about being dizzy. They did give her a liter of fluids IV prior to her procedure. It was the same people and at the same place as the first endo. They gave her medicine to sedate her, did the scope and she came back. She was a bit unsteady on her feet when she first woke up and had to go to the bathroom, but quickly woke up. I hope this helps. My daughter does not have Chron's for which we are very thankful!
Granted, My daughter was only 10 when diagnosed, but she had intolerances to whey, casein and soy. She was gluten-free, DF and SF for a while. She is now back on soy and dairy. Test showed she is still somewhat lactose intolerant still but we expect that to clear up soon.
I am in the same boat. My 10 yo daughter was just diagnosed 2 weeks ago. Her main symptom was extreme abdominal pain. She has been gluten-free for 2 weeks, Dairy and soy free for 1 week since we found out she was intolerant to those as well. Her pain has not changed at all. It is still a 9 out of 10 on the pain scale. I put her on a very bland diet as of Friday. Still no change, but I hope something will help soon. I have her on a probiotic, but I have no idea if it is helping. I know she most likely has a few years worth of damage to her gut, so it will take time. It is just so hard seeing her in this much pain all the time. It has been over 9 weeks of this pain.
I am extremely careful about cross contamination. I read labels like they are on the best seller list, LOL! I cook from scratch.
I hope you find answers soon.