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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About janpell

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    1. janpell added a post in a topic Unbelievable!   

      Well, I don't really have pain but inflammation and stiffness in my ankles right now. I should be happy where I am but I have had a few days where I felt nothing - no tightness or inflammation and that is what I am really striving for (and for my CRP to be 0). But I am too weak (diet wise) to keep it up though.
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    2. janpell added a post in a topic Unbelievable!   

      I was diagnosed almost 10 years ago but had joint pain for about 20 plus. It was the worst in my late 30's/early 40's. I couldn't even close my hands. My right knee made me feel the worst as it took away comfortable mobility. I have been gluten free for about 4 years now and can make a tightly closed fist. I have no deformities. I do have some tightness in my right leg as getting full extension isn't quite there yet but almost. This is a muscle thing though not joint. I don't think I have any joint damage either. I noticed I was getting a slight twist on my index finger two years ago (as the fine hair on my knuckles was more to the side) and now it is more centered again as if it self corrected.
      Can't wait to try this!
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    3. janpell added a post in a topic Unbelievable!   

      Whaaaat? I thought I heard everything for joint pain. I don't have lupus but psoriasis and PsA. If I am extremely strict with my diet I can be completely joint pain free but then it is a very, very limited diet and I have to be honest with myself that I just can't do it. I keep out gluten, dairy, soy, tomatoes but need corn sometimes and rice. This will be amazing if it works. Were you sure to use golden raisins? If not I am making in tonight with my Sunmaids. I will get the goldens tomorrow if I really need them! I have some ankle swelling to clear up which has been reoccuring too often this past summer.
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    4. janpell added a post in a topic Well, I Now Know The Sheetrock I Puchased Today Contains Soy   

      I find when I do renos I feel horrible! I do question the drywall and compound used because when I do the taping and then the sanding my face burns up, breathing feels laboured and my joints swell up over the next few days.
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    5. janpell added a post in a topic Elimination Diet Timing   

      I am lucky as my symptoms usually appear within 1/2 hour of consuming certain foods. Symptoms usually last a full day. I can tell by how my body feels when I wake up in the morning.  Three years later I am still playing with what bugs me - as in full denial over some food choices. I am talking to you potatoes!
      My body took 2-3 years before I felt really good on my diet change. A full week of bad eating brings me down but it rarely happens. BTW, I am fully gluten and cow dairy free and have been for many years. It's the other stuff that does me in now (corn, nightshades, citrus, soy).
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    6. janpell added a post in a topic Good News And Bad News And Need Some Help   

      You can make a cream sauce with soaked cashews - for pasta.   I made a macaroni and cheese sauce and didn't mind it unfortunately, the cashews didn't agree with me so it's off limits also. I use nutritional yeast for a parmesan-like taste for something like garlic noodles.  I really miss dairy but can't have so I don't let myself dwell over it. I make a creamy caesar dressing with homemade mayo, a bit of vinegar (lol, can't have citrus either but you can use lemon or lime for a twist), cracked pepper and a shredded clove of garlic - you can thin it with a bit of olive oil. You can use the same base to make a creamy dressing also - tex mex, add chili powder, cumin, garlic powder, oregano, etc. There are a lot of options. Coconut milk gives you some options for cream sauces. I buy a 7 lb bucket of coconut oil for cooking. You can use it on popcorn too with s&p. For coffee creamer I use a tsp of coconut oil in my coffee and blend it with my magic bullet and it is just as creamy as a regular cup of coffee.
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    7. janpell added a post in a topic Urticaria   

      I get it at times. Mine comes on with exercise, usually with outdoor activities. I hate it as I find the itching almost unbearable.
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    8. janpell added a post in a topic Curious... Long Eyelashes?   

      Even though I haven't been diagnosed with Celiac I gave up gluten (and many other foods) close to four years ago. I have very long eyelashes. I used to cut them shorter when I was younger because people kept commenting on them - almost obsessively so I felt like a freak. My two boys also have very long eyelashes and are also gluten free due to health issues which have since been resolved. We don't present classically so haven't been tested but we do have other autoimmune issues.
      I used to have many symptoms of Lupus but have since resolved.  I am still getting the rosacea flareups when my diet gets off. I find Penatin (the diaper cream) helps calm the redness overnight. I also take zinc supplements during flareups. Dairy and the wrong wine can set my face on fire within minutes of consuming. I am fair skinned so it's very obvious on me.
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    9. janpell added a post in a topic Diagnosed W Both Celiac And Anklyosing Spondolitis   

      I know what you mean about the meds not working. I used to go to support groups (online) before the diet change and many of us were/are in the same boat. Just take one step at a time, be aware and research other avenues, and you will notice results. I was gluten light for the first year before I gave it up completely. It just takes time and commitment and then habit change will happen.
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    10. janpell added a post in a topic Diagnosed W Both Celiac And Anklyosing Spondolitis   

      I do have arthritis in my spine which is thankfully in remission. I have to expand my diet restrictions to beyond just gluten. One of my biggest offenders are tomatoes. I also have to avoid dairy, potatoes, most vinegars, most legumes, citrus, most corn chips and corn (there is still one brand I can have, yay) high sugar, soy, fermented foods, and a few gluten-free grains. I am hoping to reintroduce these but after eliminating for 6 weeks I noticed once reintroducing they are bringing back cervical pain so they are off the list again. I have been gluten free for three years and it took a long time to really see results and I do elimination diets here and there. Nothing was immediate but it results were certainly there so I am glad I stuck it through. I hope it is just a gluten thing for me and maybe in another year I can reintroduce some of these foods I have to avoid.
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    11. janpell added a post in a topic Does Dairy Affect Your Mood And Mind?   

       I find dairy sets me off and puts me in a foul mood (irritation and anger) for 5-6 hours afterwards. I stay away from it. I can do some hard goat cheese but that's it - no cow or anything with casein.
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    12. janpell added a post in a topic Questioning My Daughter.   

      I have never been tested for Celiac because I didn't present classicly. I went gluten free years ago because my other autoimmune conditions weren't being helped with medication so I tried alternative therapy and wow, the diet change changed my life and I will never go back to eating to the traditional low fat, high grain diet again and we ate healthy then.
      My problem is the doctor doesn't want to test her for Celiac. He says the stomach aches are from constipation and we got a prescription to address that. We eat properly - plenty of veg, only 1.5 fruit per day but definitely 4-5 servings of veg a day which is pretty high. She drinks water regularly. He hasn't seen the sores on her yet so I should get her in before they heal. Not sure exactly how DH presents itself because hers are individual dots which never appeared as pimples or anything but just like open sores. Part of me thinks bug bites but it's winter and no one else in the family has them. She has 7 on her forehead (between her eyes and just above) and 10 on her right arm. They are all concentrated in the same area. DH looks more like a rash to me but she gets that occasionally encircling her mouth which disappears the next day if we put zinc cream on it the night before.
      A couple of other things I have noticed are her paper thin finger nails. I trimmed them yesterday and they seem to be peeling off in layers at the top. She has very fine, thin,dry hair almost like she is malnourished I find. It comes out quite easily too (for a 7 yr old, anyways). No one else in the family presents like this and we all eat the same diet except she gets gluten still but not at home but weekends at friends homes. I guess I just buy some gluten products and get her started for a challenge.
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    13. janpell added a post in a topic Questioning My Daughter.   

      I guess so. I will bring her in to address the sores on her arms along with prolonged stomach aches and I will up the gluten for the next couple of weeks.
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    14. janpell added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      Questioning My Daughter.
      I have gluten intolerance as do my two boys. I didn't think my daughter was affected by it so I let her consume it when she goes out places, which is often enough. I notice lately she is getting weird behaviour afterwards, some sores on face and arms, rash around her mouth (almost like a beard), has many stomach aches. I brought her to the doctor for the stomach pains and he assured me it was constipation even though she has 1 or 2 BM a day and it is usually typical in texture and not hard. At times I notice there is even some blood stains on her underwear (at the back end). She is 7 years old. She has been to a party or sleepover almost every weekend, so consuming hot dogs, pizza, cake, pancakes, toast, etc. and I notice that she is getting, not quite pimples, but more open sore like markings on her face and arms (DH, I'm thinking). Plus she has been getting an eczema like rash around her mouth here and there - not necessarily if she had gluten but with foods that she normally is okay with.  I rarely have to bring my kids to the dr. I'm thinking of insisting on some bloodwork just to see if there is something I have look into. We are gluten free at home so she isn't getting constant exposure and I wonder if this is a sign that gluten is a problem for her?
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    15. janpell added a post in a topic Blood Tests, Enterolab, Iga Deficient...   

      I stay away from oranges because they are like trigger foods for me. I can't have just one it usually turns into 4 or 5. Same with grapefruit, can't stop at 1/2 but end up eating 2 large ones and then get a very stiff neck with piercing pain. I don't go crazy on lemon and limes so I don't really notice anything.
      Stress is also pretty bad on your system. Do you workout? I find a very demanding HIIT or Tabata workout clears my brain a lot. A food journal helps a lot. It took me years to give up tomatoes and potatoes and I miss them more than dairy and gluten. Two weeks nightshade and mostly citrus free  (along with above mentioned) and am fully at the place where I want to be.
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