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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About Jamie1450

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    1. Jamie1450 added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      Eaten Gluten Twice With No Obvious Reaction?
      My now 3 year old son was diagnosed with Celiac Disease at 18 months after having problems maintaining his weight. I actually asked his pediatrician to run the blood test on him after reading all the symptoms on line. All his levels were normal except his TTG was was point over normal. Anything 4 and over was considered abnormal per the test and his was 5. Because he was only a year old we decided not to do the biopsy and just went gluten free. Since going gluten free he has grown right on track but he also stopped being such a picky eater. He's had some loose stools here and there and we thought he was being glutenized but he's been fine in that department for a while now. Then 2 days ago he ate half of a regular gluten filled hamburger bun. No obvious reaction what so ever. This has now happened 2 in the last couple of months. Ate something with gluten and did not have a reaction. I don't know what to think. 
      • 5 replies
    2. Jamie1450 added a post in a topic 2 Year Old Violent And Hostile After Eating A Ritz Cracker...   

      We were at a playdate once and he found a piece of pizza from my friend's daughter's lunch, and he took a bite. BAD poop with in 30 mins, diarrhea the very next morning and horrible horrible mood. Symptoms lasted about a week and a half, that time. This time around is very different, more mood issues, less bowel issues it seems. He also seems to be running a little warm too. Not sure if that is connected.
      It's becoming very clear that we cannot take our son anywhere. Raising a gluten-free toddler in a non-gluten-free world is challenging. I love him being my little guy but on the other hand I can't wait for him to be a bit older and have an understanding of his eating restrictions.
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    3. Jamie1450 added a topic in Celiac Disease - Coping With   

      2 Year Old Violent And Hostile After Eating A Ritz Cracker...
      We were at my sister in law's house Sunday night when my son found a Ritz cracker on the floor and of course shoved it in his mouth. He didn't have diarrhea, which is is usual "glutenized" sign, in fact he didn't have a bm at all yesterday. He was violent, hostile and kinda spacey all day though. Can anyone relate to that after gluten exposure? Today he doesn't have the big D but his poop has that awful chemically smell that clears out your sinuses and he still seems a little off. He's 2 don't get me wrong, he throws stuff, screams and well...acts 2 but not like this usually.  
      Can your symptoms of gluten exposure vary? Thanks! 
      He was diagnosed via blood test and improvement on a gluten free diet (Oct 2012/19 month old) by his pediatrician. 
      • 3 replies
    4. Jamie1450 added a post in a topic My Brother Possibly Has Celiac But Is Dragging His Feet On Diagnosis   

      Thanks so much for the responses everyone! I gave him some space to decide on his own, and he has his biopsy tomorrow. He also told me recently that he has decided to go gluten-free after he gets his formal diagnosis.  
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    5. Jamie1450 added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      My Brother Possibly Has Celiac But Is Dragging His Feet On Diagnosis
      My 2 year old son was diagnosed with Celiac last October, his pediatrician recommended that our immediate family gets tested and that we encourage our extended family as well since it runs in families. We've been tested and all my siblings and my mom (dad is working on it) have been tested and my brother tested positive on one test. I don't know what test it was but one out of five was out of range. He said the base line was 22 and his number was 58. I said he needed to see a GI doc and to keep eating gluten. He called me specifically and seemed on board with the whole possible Celiac idea. That was a month ago.  He has tons of the symptoms, gastric issues, headaches, anxiety, edema, short stature as a child and more. Then all of a sudden if you bring it up he gets defensive and changes the subject. He won't respond to my messages about it now and I haven't been pushy at the least. My brother is pretty lazy when it comes to taking care of himself and doesn't take well to change, he eats an awful diet, and basically his idea of vegetables is lettuce on his cheeseburger and olives on his pizza. I'm really scared for him. About 2 years ago his doctor told him he is pre-diabetic, he's severely overweight and now possibly celiac disease. He's only 34 but I worry that he won't be around in 10 or 20 years. 

      What information should I give to him to let him know how serious untreated Celiac is? I want to be able to throw hard core facts at him. 

      Thanks for any info or advice you may have.

      • 7 replies
    6. Jamie1450 added a topic in Dermatitis Herpetiformis   

      2 Year Old Skin Rash (Diagnosed Celiac)
      Yesterday morning my 2 year old woke up with a horrible rash on his lower back. He was pretty fussy and also woke up 2 or 3 times that night crying for me which is abnormal. The only thing I can think of is I gave him and his sister a shower the night before and used my conditioner on my daughter. He was on the other side of the shower but while rinsing it out her hair he moved over and it got on him. I check the bottle and sure enough it has wheat in it. It seems to really itch and be bothersome. He has a few dots on his tummy too. The only other time that I can remember him having a similar rash is when I used sunscreen on him a few weeks ago. The next day he woke up with a rash but it went away on it's own a few days later. I did not see any gluten ingredients on the packaging, but we tossed it just in case and I did the same with my conditioner. 
      It is a possibility that the conditioner caused this? Does it even look like a rash having to do with Celiac? 
      Here's a link to a photobucket album with pics.
      • 1 reply
    7. Jamie1450 added a post in a topic Sharing Good News   

      That's great!
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    8. Jamie1450 added a topic in Celiac Disease - Parents of Kids or Babies With Celiac Disease   

      Mucus In Stool? 2 Year Old.
      I just changed my son's diaper, it smells awful and almost knocked me over when I opened his bedroom door this morning. The think that is so strange is that it's covered in mucus and I mean copious amounts. I've never seen anything like it. He was diagnosed with Celiac 6 months ago and has been gluten-free ever since. Any idea what could have caused it? Or is this normal? The only place we went yesterday was church and the nursery is gluten free but I guess if he was out of my sight it's possible for him to have been exposed to gulten. I have 3 kids and changed thousands of diapers and never seen that much mucus in a child's stool. 
      • 1 reply
    9. Jamie1450 added a post in a topic Could My Couch Be Contaminating My Son?   

      Thank you kareng!!
      Hose-offable furniture....hmmm....
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    10. Jamie1450 added a post in a topic Could My Couch Be Contaminating My Son?   

      Wow, I really didn't mean for that to sound defensive. I had a REALLY rough morning with the kids today!
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    11. Jamie1450 added a post in a topic Could My Couch Be Contaminating My Son?   

      I'm careful but I'm certainly realistic about keeping my son safe from gluten. I'm not freaking at all. We don't eat out, have a grandma's house near by to go to, nor do we keep playdough in the house. I'm not trying to come up with something to worry about. My husband and I actually watched him magically pull a binkie out of the couch (I thought they were all in the kitchen) and stick it in his mouth yesterday evening. Today, he's already pooped 3 times and it's only 8:30am and he is terribly fussy. Maybe it's just coincidence  I don't know, maybe this is his normal but my child having diarrhea and a bright red bum is not ok with me. I think I'm picking up a slip cover today. 
      Oh and what got me thinking about the whole couch thing is because he has been glutened somehow several times over the last month and I have no idea how. I found some toys and a binkie in the cough the other day and they were covered in crumbs. 
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    12. Jamie1450 added a post in a topic Could My Couch Be Contaminating My Son?   

      I think i need to do something, I just felt the fabric that covers the springs and it's covered in a microscopic crumb dust even though I've vacuumed it several times since then. 
      I do think about selling my kids but for different reasons!
      I'll look into the slip cover thing and or cleaning it (just did 2 months ago), or our couches are still in good condition but are 8 years old so I might be able to sweet talk the hubs into a new one.
      Edit to add: Not sure if I should just take the money for cleaning and a slip cover and put it toward new couch or not. What would you do? Am I being paranoid? 
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    13. Jamie1450 added a post in a topic Could My Couch Be Contaminating My Son?   

      He was also in a completely different room while we did it, and we made sure to clean up very carefully, cleaned the floor and vacuumed the couch the best we could. 
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    14. Jamie1450 added a post in a topic Could My Couch Be Contaminating My Son?   

      I didn't elaborate enough. Since he was diagnosed 5 months ago we haven't let anything thing with gluten enter our house, unless by a rookie mistake. We all eat gluten-free at home, all the kids eat the same gluten-free snacks. The cheerios and goldfish crackers could have been 3 years old. They were really deep in there! We cleaned out every single thing in the craves (there is a space were you can stick your hand in between the springs and the back & arms of the couch) so he could not have found a rough cheerio. 
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    15. Jamie1450 added a topic in Celiac Disease - Coping With   

      Could My Couch Be Contaminating My Son?
      My 2 year old son (dx Oct 2012) keeps getting 'glutened' and I haven't been able to pinpoint how but a thought popped in my head this morning. A couple of weeks ago my husband and I cleaned the deep crevasses of our couch and found TONS of old (like maybe up to 3 years old) cheerios, goldfish crackers and crumbs. Since his dx our whole family eats gluten free at home and while around him. We are very careful, which is why we cleaned the couch after discovering the nasty pre-gluten-free snack collection hidden in the couch. I made sure to vacuum the fabric really well but the crumbs were almost like sand. I clean the part of the couch under the cushions but it was staggering just how much was shoved in there. We have 3 small kids and we don't let them eat out in the living room very often, well that's my rule that dad likes to break. Our kids take the cushions off daily, toys get shoved in/out from under the cushions all the time so it would be very easy for gluten to come in contact with something he is playing with. What would you do? Thoughts? 
      • 15 replies

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