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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About uglyhen

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    • Birthday March 29

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    uglyhen's Activity

    1. uglyhen added a post in a topic Is Diagnosis Necessary?   

      Thank you all for your input! I am definitely going for the blood panel! ASAP. This board is so helpful, I'm amazed. Thank you.
      • 0
    2. uglyhen added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      Is Diagnosis Necessary?
      Hi all, I am very new to this site as well as the celiac and gluten-free world. I have not been "officially" diagnosed. Apparently a diagnosis can be very hard to get. I have had the worst symptoms since last March following the birth of my second child. I have been seeing a gastroenterologist. I've had an endoscopy, colonoscopy, ultrasound, small bowel follow through all completed. All results within "normal" ranges. What gives? I've had what I've called IBS since childhood. My symptoms that have become extremely evident over the past year are as follows:

      Abdominal pain/cramping
      Extreme bloating
      Excessive gas
      Geographic tongue
      Chipping/cracked teeth
      Psoriasis on my hands and upper thighs
      Intestinal sloughing

      I've had most of these symptoms for a long time but they have all become part of my daily life in the past year. My PCP is clueless. He is very kind but just wants to write prescriptions for anything under the sun to mask the symptoms. He gets upset when I don't fill the prescriptions. I don't want to cover up what is going on, I want it solved and treated properly. I don't think there is anyone in my family with celiac disease so my doctor is quick to throw it out the window because he says it is hereditary. During the colonoscopy they did do a biopsy for celiac sprue(sp?) but that came back normal as well. I can't live like this any longer. I have been so down and out. I have two young children and I never intended on parenting from the couch! So upon doing my own online research and reading about celiac disease, I decided to give gluten-free a try. Within 24 hours the bloating and stomach pain vanished! Within 48-72 hours I was feeling like a whole new woman. I seriously have not felt this good in a loooong time! Now, I'm only on day 8 of my gluten-free experiment but I can't believe how good I feel. I'm being super vigilant about what I put in my mouth. I've also been keeping a food journal to show my doctor. My PCP told me to go with my gut (no pun intended lol) and follow the gluten-free diet to see what happens. I understand now further testing wouldn't have true results because I am no longer eating gluten.

      My question to all you seasoned celiacs or parents/family/friends of such: What would you recommend I do next? And is an official diagnosis necessary? If I feel better and symptom free following a gluten-free lifestyle, is that good enough? At the end of a certain time, a month or 6 week+ gluten-free, should I reintroduce gluten to see what happens? Please let me know what you all think, I'm open to any and all advice. Thank you so much!
      • 13 replies

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