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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About NodakMom

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    1. NodakMom added a post in a topic High Alt And Ast Even After Gluten Free For 6 Months   

      We have three children, two are adopted and one is our biological child. Our biological child is the one with celiac.

      Two weeks ago, his AST and ALT were retested and they were getting very close to normal. I knew the enzymes were getting better because his poop was starting to actually look normal. Two days ago he started having classic celiac symptoms again: diarrhea, white poop, bad rash, tummy ache. I'm sure if they tested his liver enzymes, they'd be high again.

      I have noticed one thing, which is that he has celiac symptoms whenever they have corn for lunch at daycare, so we need to cut out corn. The other piece of this puzzle is that he was on an antibiotic for thirty days due to a chronic sinus infection. His celiac symptoms improved dramatically while on the antibiotic. Now, we are back with white poop, diarrhea, rash, etc.

      Our house is separated into shelves and cupboards that are gluten-containing and gluten free. All our evening meals are gluten free, then I save the leftovers for our celiac child to take to daycare the next day. Breakfast is usually an Udi's muffin and banana.

      We're frustrated, because the pediatric gastro sent us on our way after doing the testing and said, "I'm not even sure he has celiac." When I pushed back and said, "oh good, then I guess we can go back to eating gluten," he responded with, "I would keep him gluten free."

      So, we have all these celiac symptoms, we have one doctor's diagnosis and instructions to keep him gluten free, but a boatload of more questions as to the recurring symptoms.

      I think we will go ahead and take him to Mayo. Any one else take their child there?
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    2. NodakMom added a post in a topic Instant Behavior Change In Son After Going Gluten Free.   

      Celiac runs in my husband's family.  With our son, who was diagnosed early (right around 13-14 months) his behavior was clearly indicative of pain (inconsolable, coudn't get comfortable, waking up in the middle of the night crying in pain); however, my sister in law has a child with autism and celiac.  Her experience was that her son's behavior wasn't obviously pain-related, but his motor coordination, speech and ability to socialize dramatically improved on a gluten free and dairy free diet. 
      She isn't as picky as me about keeping seperate utensils and other cross contamination issues and I don't think her son's reactions to being accidentally glutened are as dramatic as we see in our son. 
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    3. NodakMom added a topic in Celiac Disease - Parents of Kids or Babies With Celiac Disease   

      High Alt And Ast Even After Gluten Free For 6 Months
      My 19 month old son was diagnosed with celiac in September 2012 at 13 months.  I nursed him until 16 months when he self-weaned (too busy chasing his big brothers.)  At the time of his diagnosis, his AST and ALT were quite high (in the 400s.)  We immediately went gluten free and his symptoms were better within 36 hours.  We thought, "Whew! Crisis averted, thank goodness we caught it so fast."  He's been happily gluten free since Sept 2012.  He has no real health issues since going gluten free, other than dry skin and mild rashes that a lot of celiacs experience even when off gluten.
      Fast forward six months when we had his enzyme levels checked again this month.  His ALT and AST were worse, this time in the 500s.  The pediatric gastro had him tested for multiple things (Muscular Dystrophy, alpha 1 antitryptasin deficiency, Hepititis and even Lupus.)  Thus far, every thing has come back negative, except the HLA molecular test for Celiac and lymphoma. 
      Has anyone on this board experienced a child's symptoms improving and yet had persistently high ALT and AST?  I'm concerned there is some underlying reason for the elevated enzymes; we're even considering taking him to Mayo. 
      • 5 replies
    4. NodakMom added a post in a topic Sharing Good News   

      Yay! My little guy was diagnosed at 14 months and he's in the 97% for height and weight.  Gluten free doesn't have to mean not thriving. 
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    5. NodakMom added a post in a topic 22 Month Old Diagnosed With Celiac   

      I have a 19 month old who was diagnosed at 14 months.  When we first found out, we cleaned out the fridge and cupboards and separated them into "regular" and "gluten free" spaces.  The gluten free shelves are the shelves that are within reach of our child with celiac.  Any refridgerated gluten products are stored up high or in our second fridge in the basement, which is a lot less accessible than the main kitchen fridge. 
      Our policy is that our main meal at supper time is totally gluten free.  That decreases the risk of cross contamination.  Breakfast for our celiac kid is usually fruit and a gluten free muffin or yogurt.  Lunch during the week is served at daycare, but is usually leftovers from our gluten free supper the night before. 
      I find that making the main meal gluten free is just easier, because then I have leftovers for his lunch and I know it's not contaminated.
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    6. NodakMom added a post in a topic Ex Husband Not Supportive   

      My practice area isn't full-time family law, but I've handled a couple of cases where the child had medical needs.  It's really important to have a confirmed diagnosis with doctor's instruction.  If he doesn't comply with doctor's orders, then consult your attorney. 
      For some parents (on both sides of the fence), controlling a child's diet is perceived as an attempt by the other parent to extend "control" of the children into the reach of the other parent's parenting time. 
      Having gluten free diets becoming so popular is both a curse and a blessing.  On one hand, there are a lot more companies getting into the gluten free market and there are more choices available.  On the other hand, a lot of people think it's a fad and not a medical necessity. 
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    7. NodakMom added a post in a topic How Long After Ingesting Gluten Do You See Symptoms In Your Kid?   

      My 18 month old has vomited within minutes of ingesting a gluten pretzel, by accident. If it's a "hidden gluten" like a spice that contains gluten and so it's not a huge amount, he'll have a white, runny, burning poop about an hour or two later. In both circumstances, he'll be sick for 1-2 days.
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