This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
I know, in a *perfect* world, I would be able to have a gluten-free kitchen for my 19 y/old son (& me). But I'm married & our daughter and her s/o also live with us...so we have the oxymoron of a mixed kitchen.
My Celiac isn't so bad. My son....he gets sick looking at their loaf of bread (or at least it SEEMS that way!)
I've separated everything I can think of. Their toaster & ours. Their pots/pans & ours. Their dishes & ours. Their cooking utensils & ours. Their eating utensils (for glutened food, it's plastic ware that gets thrown out) and ours.
I've wondered for a long time (& asked wherever/whenever I can) does it matter if something glutened gets into the dishwasher with the gluten-free stuff? What if the dishwasher does a load of glutened stuff & then gluten-free stuff?
Handwashing we do in separate basins at separate times & THAT is when all glutened stuff gets washed right now.
For what it's worth, both my son & I "washed out" of the Alvine phase III test of the new Celiac drug, what a pain it is to go through all that to be dropped because we are "TOO HEALTHY".
Guess what? If you go look in depth on the U.S. government website that covers drug testing & see what they are testing...and read the labels on the commercially available now supplements...it's the same! Phase I & II did show promise and there's a reason it's into the end of Phase III. I just SHUDDER to think what the co$t of THAT Rx is gonna be!
The U.S. Military is a bit of an anomaly. They say they want the best & will help their troops....but it ain't always so!
I was in a Celiac Support group. One of our members was an Army reserve officer on active duty. He just got diagnosed and was having a dickens of a time with rations out in the field. Everything seems to rotate around WHEAT for the U.S. Army. A lot of the MRE's are pasta based and then when they shipped in "fresh" food, it was often.....SANDWICHES. He told us about one female enlisted soldier who pressed the diet issue and received a discharge. He was bidding his time, hoping to be able to climb the chain of command and help real change happen. I don't attend that group anymore, so I don't know how he's doing with it.
edited to add: I guess this falls into the beyond diagnosis into life situations category, sorry if it's posted in the wrong place.
Wow, y'all! I'm fortunate that I've not had the panic attacks you describe, but then again, I've had major depressive disorder for over 20 years.
I just finished Jennifers Way by Jennifer Esposito. She describes her panic attacks and other issues that went hand-in-hand with her un-diagnosed (& then newly diagnosed) Celiac.
I realize how Celiac is a RANGE (maybe like Autism?) my Celiac can be bad when I get gluttened but not to the degree that some folks have.
Maybe some of the things Jennifer does & has found can help? (if we are allowed to put in links, I would put in one over to amazon.com....that's where I got a kindle version of her book) some forums I've been on don't allow that & I'm too new here to rock any boats.....
Education is the best advice ever. Just be careful where you get it from. I just finished reading Jennifers Way by Jennifer Esposito. Another good author is Elizabeth Hasselbeck. Your public library probably has most (if not all) of Elizabeths books (she has a few). There is a lot here on line, too. Just be careful.
My 2cents for your first little bit of time after diagnosis: shop the outside of your grocery store. Fresh fruits & vegs., fresh meat, seafood. Lightly steam the vegs & don't over-do the heavy fiber ones. Be careful with dairy...sometimes folks find that they are sensitive at first because of the damage done by the disease. I'm lucky that there's a gluten-free bakery w/in 30 miles of my home. If there's not one near you, poke around here at the Glutenfree mall. Also check out same brand items on Amazon/other on-line retailers.
Good luck & God bless.
edited to add: there are a few gluten free bloggers out there...poke around them. Some aren't my cup of tea, but since you can read their previous postings, you can see which one's know what they're talking about.
Burts Bees lip balms are all gluten-free as far as I know. I've also found that the higher end department store stuff is all going gluten-free now (but who can afford $35-$50 a tube for lipstick???)
I had an extraordinarily BAD reaction to hair coloring right before my diagnosis. I used that as an excuse to stop coloring my hair. I'm glad I did, the money I'm saving from THAT is just going into EVERYTHING ELSE I have to do gluten-free!
Like others have said, the Celiac reaction is in your gut...so supposedly only if the item is going into your mouth somehow will it "matter". I've found that RETAIL THERAPY helps me sometimes and getting into the habit of reading labels & looking for gluten-free is only a good thing. If it makes you feel better, then do it. It can't hurt for something to be gluten-free if it doesn't have to be but can REALLY hurt if it's not and it needs to be!
My son is 17 y/old. Whenever he does eat at school, it's a gluten-free pb&j made at home...and he eats separately from the other kids (to keep out of their crumbs).
The jars of mayo/miracle whip are all considered glutened. I only use squeeze mayo for any gluten-free cooking. The tubs of "I can't believe it's not butter" are either unmarked (for rest of family) or it has "Gluten Free ONLY" written on it (which, in that case, I'm the only one to use it).
Turns out the kitten chow does have wheat...so DS & I don't mess with her food anymore. As for the adult cat food, it was poured into the bin & we have no idea about it's gluten-state (so, DS washes his hands as soon as he's done filling up their dish).
My son & I *have* lived our lives for the past year-with the Celiac being a "mindful" thing, NOT Full in our mind. It's just that the fact DS still has antibodies a year on, it means he's been continually exposed to gluten. Not a good thing.
Now, when my DS & I were first diagnosed, the support group we were in encouraged me to get some dedicated cookware...so I bought a set of RED pots & pans. I thought that the glassware & glazed plates/bowls would be ok to share (I have to run a "mixed kitchen").
No one has ever been able to answer this question of mine: will I cross contaminate my cookware by having it washed it in the same dishwater as thing that were glutened?
Also, my stoneware isn't brand new so there are some scratches in it.
So, it's been more than a year since we were diagnosed & son STILL had ttg antibodies at his 1 year check up!
I'm so fed up with this (both him & I getting sick for no discernible reason) that I've gone ahead and purchased dedicated EVERYTHING for my gluten-free cooking. I've purchased everything in RED and have told DD (who does the dishes) NOT to wash our things...I do that separately in a brand new RED basin that I bought specifically for this. We store our things separately, also. I feel like maybe I'm going overboard until I remember the let-down feeling I had when I learned that DS STILL has the antibodies in his system!
Bartfull-Thank you; yep--every label, every time (my new motto). I knew about the cat litter (actually saw some at Target the other day) but didn't think of the cat food.
I will pop in to that 101 thread & see what I can see.
Before you send it back, throw on some katsup or scoop something else off of someone elses plate (ask their permission firs) and plop it on top. Tell the server that you CANNOT have this bowl because you CANNOT pick all the gluten off. The katsup/sauce from other plate should act as a marker that this is the original/glutened problem plate.
You can also cut meat in a strange way before sending it back if it got glutened. (I read both of these suggestions either on Elizabeth Hasselbecks website or in 1 of her books.)
This restaurant is actually very close to my sons GI Dr's office. The 2 times we've gone in there have been disasters! And that's not even really about the gluten free we need.
The first time the service was just soooo bad. Was told it was our waitress' 1st day.
The next time (about 6 months later) I realized they only gave us the gluten-free menus...which don't have any prices on them...and are more of a food allergies than gluten-free menu. The service was again HORRIBLE (the waitress asked how us gals were doing--only my son & me sitting at the table!) and I was again told that it was our waitress' 1st day.
DS says he'll never go back there & I have to agree!