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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About JessF

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    1. JessF added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      How Long For Results After Biopsy?
      HI everyone,
      I finally had my biopsy to confirm/rule out celiac.  My bloodwork was not all conclusive(one of the tests was positive not all?).  She stopped by quick and said it went well she found some small diverticulitis.   I am going to call to make a follow up appt tomorrow and maybe they can tell me how long the results take. I have started being gluten free today though as soon as I got home.
      I would like to know if I have celiac though bc my family said we would become a gluten free household if I was:)
      If I had damage to my villi she would have seen it today, right?
      • 2 replies
    2. JessF added a post in a topic Freaky Symptoms Freaking Me Out!   

      Thanks for the reply Mushroom. I have headaches, muscle and joint pain, fatique yet wake up numerous times at night, IBS, GERD, constipation, fibromyalgia diagnosis,the list goes on...
      I gave up gluten for a couple days and began to feel better so no matter what the biopsy shows I will be gluten free.
      • 0
    3. JessF added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      Freaky Symptoms Freaking Me Out!
      Hi all,
      I am waiting on my biopsy to confirm celiac in two days thank goodness. The past month/two weeks I have had wierd scarey symptoms. My fingers became all wrinkly on the fingertip pads. They do this when they are cold. My hands and feet are cold all the time now (this is one of my wierd symptoms that started this past November). When my fingers do warm up they get all swollen and red and feel wierd too. They hurt most of the time. I went to my GP and she didnt really have an answer for me we were thinking raynauds but my fingers dont turn blue or white.

      I have googled it and have seen celiac and hypoT as possible reasons for wrinkled fingers but I am unsure about why they swell when warm. Anyone else have this happen as a symptom before going gluten free?

      Its scarey because it seems like I am losing my feeling in my fingers and we use our fingers all the time!

      • 3 replies
    4. JessF added a post in a topic Pain! Help!   

      So sorry you are going through that! I am also waiting on the endoscocpy while glutening myself, UGH! I have done some research and alot of people say to drink tons of water, make ginger tea, eat healthy foods (fruits and veggies), eat healthy fats like olive oil, avacodos all to help with the glutening and to flush the toxins out of your body. I have my endoscopy in three days so I only have to torture myself a little bit longer. I bought some ginger chews and eat those after I eat gluten which I am only doing 1 time a day, the bare minimum. Good luck! I am sure others whom have more experience than me will chime in.I am totally new to this whole celiac/gluten free life:) Just wanted to let you know that you are not alone!
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    5. JessF added a post in a topic Need Help With Symptoms   

      Hi there,
      I have some wierd finger/hand symptoms too. My palms are red also. My hands go from being cold and wrinkled to warm and swollen like you describe with a waxy type appearance. They hurt and are very sensitive too. I am hoping this is celiac which I have my endoscopy in a week to confirm the diagnosis. I have also been borderline hypothyroid after having thyroiditis two years ago. I am waiting on the celiac diagnosis and then will get my bloodwork done again for hypoT to see if I need to be on medications for that. Good luck!

      • 0
    6. JessF added a post in a topic Anyone Have These Symptoms?   

      Thanks Nicole! I am sure I will be on here alot once I get my official dx! I am going to go gluten free anyway just from the couple days I mistakenly did it I felt so much better:) I will have my Dr. do the test for hypo too. He did test for all those things you mentioned and I was always just in the range for everything except my TSH which was a bit above it .
      • 0
    7. JessF added a post in a topic Anyone Have These Symptoms?   

      Oh I forgot to add I am constantly congested, and get frequent sinus infections. I am allergic to many things but have controlled my environment and have gotten allergy shots for 4 years now. I have also been getting gassy from dairy so I have switched to almond milk and I am doing much better with that. I do still have a yogurt for breakfast and seem to do fine with that. Thanks again for any responses:)
      • 0
    8. JessF added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      Anyone Have These Symptoms?
      Hi all,
      I am waiting on a biopsy in a little over a week to confirm my celiac dx. My symptoms are severe gerd, indigestion, some constipation, muscle and joint pain, insomnia (can fall asleep yet wake up numerous times throughout the night), many more.

      Here are the things I am concerned about because they are new and not part of my normal fibromyalgia symptoms which I have had for years: feeling cold all the time, cold hands and feet (sweaty feet too), my hands have now began to hurt, they are sensitive to the cold but do not turn colors like Raynauds, my fingerpads are wrinkly (especially when cold) and when they are warm they feel swollen. My palms hurt and are kind of orange colored. It is so wierd and freaking me out. When I googe it alot of symptoms are indicative of thyroid issues and sometimes celiac shows up.

      I am going to get bloodwork for thyroid soon, I have had it a couple of times with borderline results. I didnt want to start meds for it in case it was all due to the celiac.

      Thanks for any replies I would love to hear if any one else had crazy symptoms like me.

      • 4 replies
    9. JessF added a post in a topic Should I Be Gluten Free While Waiting For Biopsy?   

      Thanks for your replies everyone! I started back on gluten. I feel yucky agian too:( I am trying to think positively and eat all of my favorite gluteny food that I may never be able to eat again-my favorite pizza, McDonalds fries, garlic bread, etc

      Julia I am sorry you are going through this too. I started feeling crummy 11 years ago after my daughter was born and after many doctors, specialists, etc I was finally diagnosed with fibromyalgia about 6 years ago. Now I am wondering if I had celiac then, ugh! I hope not because that is alot of years of destroying my intestines with gluten! Good luck!

      • 0
    10. JessF added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      Should I Be Gluten Free While Waiting For Biopsy?
      Hi everyone,
      I had the celiac panel bloodwork a couple weeks ago. One of the antibodies was positive but the rest were not so I already had an endoscopy scheduled so she is going to do the biopsy then (in two weeks from now).They did try to move up my endoscopy but I wasnt able to do the couple days they had free. I began going gluten-free to see how I felt. I have been feeling better on gluten-free. I recently read that you shouldnt be gluten-free before testing or it may show a false negative. Do I really need to go back to eating gluten when it makes me feel so bad?
      Thanks for any advice:)

      • 6 replies

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