jennlea replied to jennlea's topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsThank you!! I will make sure to take this list with me to the appointment. As far as I know of, none of my family has been diganosed with other autoimmune dieseses. I didn't realize that Celiac disease was an inflammartory autoimmune disease...very interesting! Both my sed. rate and CRP tests came back high and same as you, my RF tested negative. My TPO ab test was 17.3 with the standard range being <35 (according the my lab results) and the ANA was negative. Thanks for all the information and thoughts! I am anxious and ready for my appointment to be here
jennlea posted a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsHi everyone! I am new here and hoping to find lots of good info but wanted to get some insights on what I should be asking my GI during my 1st appointment that is in a few days. First a little history: Over the past 2 years I have noticed annoying symptoms that have developed into making me feel really crummy every day. I gained a bunch of weight rapidly then couldn't lose that weight despite eating extremely healthy and working out for 6 months. I got more and more fatigued and am now to the point that everyday is a struggle because I am so extremely exhausted. I have a hard time focusing and feel like I am walking around in a fog. Sometimes it is incredibly frustrating to try and pull information out of my brain because it is like it doesn't want to work. My knees and ankles will ache pretty bad occasionally but not consistently. I will have diarrhea randomly one day but will be constipated the next. I have terrible and extremely foul gas that causes some pain and bloating. Sometimes my skin will randomly break out in a little itchy rash that drives me insane and every now and then my hands feel like they are asleep. My family has a history of thyroid problems and I have several nodules on my thyroid that were biopsied 6 years ago but my thyroid was and has been functioning normal. A few months ago I got to the point where I couldn't take feeling like this any more and went back to my Endocrinologist insisting something was wrong with me. He did a lot of bloods test looking for thyroid diseases and did another biopsy but all those tests came back negative. Other blood tests he ordered showed that I have low B12 levels and a high amount of inflammation in my body. However, the blood tests he did trying to pin-point the inflammation all came back negative and so he has no answers yet. He scheduled me to see a GI to talk about Inflammatory Bowel Disease and Celiac Disease. I will also be seeing a Rheumatologist to see if she has an idea where the inflammation might be coming from. I know something is going on in my body and it is frustrating to no end, but at least I am in the process of finding out what is causing me to feel so bad. What are some things that I need to ask my GI about when it comes to celiac disease? I know nothing about it and have no one in my life who suffers from it but want to be prepared when I see the GI.