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avtastic added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsFeel 'fake' If I'm Not DiagnosedHi All (slightly long, sorry)
I just got back from the doctors office, I have had a terrible week. I am not diagnosed Celiac but for the last 3 months have been on a gluten free diet after doing some research. Quick recap : I have always had stomach problems, bloating, pain, constipation, blood in my stools but never really diarrhea. I have a history of depression and have psoriasis, and osteopenia. Back in September I discovered I had some cysts in my breasts and that is what lead me to reading about gluten and wheat being inflammatory and that psoriasis -- anyways, I cut gluten and started to feel great. Really great. It was amazing.
Fast forward to this weekend. I know I had gluten on Saturday, something I thought was made gluten free was not and I only discovered this after I ate it. I tried not to stress or think about it, thinking maybe I'll be fine. But this entire week has been rough. I was constipated and in pain for 3 days then the opposite (which is new for me). It has been a bad week, so bad I had to leave work early today because I was in pain, which is when I decided to call my doctor.
They took blood today and are going to test for celiac even though it could come back negative the doctor thought it'd be a good idea to do it while I was there and if it comes back negative but I still am having problems then we'll take it from there.
Anyways, after all this I am pretty sure I feel best off gluten but for some odd reason I feel like a fake without that diagnosis. Any thoughts on 1. my actually having a gluten intolerance - maybe if someone else had a similar story but not diagnosed will make me feel better and 2. my going for further tests if and 3. how to feel better I'm in terrible pain!
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