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Pegsgirls added a topic in Celiac Disease - Parents of Kids or Babies With Celiac DiseaseLots Of Symptoms, But Negative DiagnosisI have a daughter, almost 13, who is always tired. Always. She also has enamel spots on her teeth, gets canker sores all the time, seems to have low bone density with as many issues as she's had, and has been declared "failure to thrive". She only weighs 76lbs. She also gets headaches all the time. Her doctor suggested getting tested for Celiac. The blood test revealed an iGa deficiency, which threw the test results out the window, I guess. We then saw a GI doctor. She had an endoscopy with biopsies this past Tuesday. The results show no Celiac Disease. She did, however, come out of it with pneomonia! It has been a horrible experience!!! My gut tells me I should still see a dietician. I have 2 othe younger daughters... one is 11, and the other is 8. The 11yr. old has the typical gastrointestinal issues and was told she has IBS. We had blood work done on her, but are still waiting for results. My 8yr. old has headaches almost nightly, stomachaches, and yellow teeth. She also seems to be getting more ADHD by the day. Her blood work revealed the same iGa deficiency as my oldest. What do I do!?!? I do not want to go through any more endoscopys based on my oldest daughter's horrible experience!!! Plus, she got a negative result. They all have symptoms!!! Am I crazy!!
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