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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About gypsyrosenfmommy

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  1.           So a bit of an update for everyone. I took DS off gluten since I posted this. His belly has gone down DRAMATICLY and his skin is clearing  up some. He still bloats like this down from time to time and he still has a SMALL constantly bloated belly but NOTHING like before. I know lactose intolerence and Celiac can be an issue so I am going to try and keep him on almond products and coconut products.  I will try and get a picture up soon of how his belly is improving. Still not great but better. 
  2. We just moved. The soonest they can get a new patient in is 2 months . Yes a nero follows NF. He has already had his yearly exame 3 months ago. 
  3. The problem is getting a referance to a pedi GI. My old pedi refused to do it. (So glad we moved!). Insurance wont pay and the pedi GI if there is no referral. 
  4. I agree 100% that something just is not right. He also has Neurofibromatosis type 1 and I know it's slightly more common in people with it than a "normal" person. I feel like ripping my hair out sometimes. All the Drs i have spoken to besides his old alergist seems to think I am over dramatizing it because he is growing right. 
  5. Last year DS wsa 2 years old. He was tested for celiac (it was a basic test and did not do the DNA test) and it came back negative. He was tested by his Pedi. I honestly still feel he has it. (or that and something else is going on) He bloats SOOO bad, has gritty poop, he is VERY irritable (the slightest thing bothers him), his skin is very dry and he gets chicken skin. He has had cases of dihareha so bad that when he poops it leaves his diaper and covers the floor (this is uncommon but has happend a few times). He gets VERY gassy and lets out toots so strong you can feel the floor shake a tinny bit, he has a chronic runny nose (started at a week old), dark circles around his eyes (at a very young age before age 1 he got these) to the point he looks ill often. I am just at a loss. His test was a blood test. I am TRYING to convince my husband to remove ALL gluten from the house. (we have 5 kids total so this will prevent any chance of him"accidently" getting some). I also have bad bowel problems, and dark circles.      (when he bloats his pants will NOT fit!)              
  6. If my son has celiac will we have to remove all gluten from the house? I hear many people do.
  7. My 2 year old just had blood drawn for a comprehensive test. We should hear back tomorow. He gets very bloted, gassy, has diareaoften, wakes up with gas pains crying and very foul poops. I know they say 25% of people with our geneti disorder (nerofibromatosis) has it. I also have bowl issues. Such as i often have mucus in my bm. Often that is all i poop is mucus. What are the chances of a false negitive for a comprehensive celiac test? Does it sound like celiac?