millasmommy replied to millasmommy's topic in Celiac Disease - Parents of Kids or Babies With Celiac DiseaseThanks for the replies. CHLA was amazing. She didn't shed one tear the entire time and they made us all feel very comfortable. She was in and out in a flash and all was well! They did find some indication while doing the upper endoscopy that showed possible signs of Eosinophilic Esophagitis, which I think makes me more nervous than the Celiac. Now we just wait for Pathology.
millasmommy posted a topic in Celiac Disease - Parents of Kids or Babies With Celiac DiseaseThis is my first post. My DD is 5 and goes in for her biopsy tomorrow. We are extremely nervous and wondering why we are even doing this considering she responded very well to having gluten removed for a week when her blood test came back positive. She only tested positive to 1 of the 4 tests, however her Vitamin D levels were very low and she has a lot of joint pain, so they recommended the biopsy in order to know what we are dealing with. Dr. Dan Thomas is performing the procedure at Children's Hospital Los Angeles. He is the Chief of the GI department. Does anyone have any experience with him or the CHLA team?