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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About chairtechno

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  • Birthday 01/05/1988

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  • Location Manchester, UK
  1. Eek. Just found out my waiting time to see a gastroenterologist could be 74 days. I can understand why some people decide not to wait it out now. Nevertheless I'm gonna hold on. I've not tried a gluten-free diet at all so I have no idea yet whether it might help yet. Cheers for the advice everyone.
  2. Yeah, I'm pretty much loading on gluten - including it in as many meals as I can. I feel terrible, but then my symptoms have been pretty constant so it doesn't make much difference at the moment - I don't really know any different. I'm not worried at all aout the endo. I'm gonna opt for conscious sedation as I had that when having some teeth removed and I found it helped loads. I'm so phobic of dentistry I shake too much to be able to receive a filling safely without being sedated. I'm not really scared of the endo and I think I could manage it without sedation, but I'm gonna go for it any way because it certainly won't make things worse…
  3. I think I want to press ahead with the endo because I might not get another chance. This way they can have a look inside and figure out if any thing is majorly wrong. I don't want to mask anything majorly wrong in there by ameliorating my symptoms. I will attempt the gluten-free diet even if my endo is negative. I'd just rather have a negative endo than nothing so that I know whether my choice will be to try and alleviate symptoms or to prevent major damage.
  4. The thing is, I was vegan for three and a half years and I still had the same symptoms. One of the main reasons I started eating meat and dairy again was so that I could keep my weight up. This led me to the conclusion that since I'm not adversely affected by meat, dairy or eggs that it wasn't my diet causing my symptoms. I hadn't thought about how the pervasiveness of gluten in all but coeliac diets meant that it would be unlikely that there would ever be a time when I was not consuming it. At this point I'm not letting myself get too invested in the idea of having coeliac disease cause it may well be that it's something else, but it's reassuring that my doctor is taking it seriously and I will be undergoing some proper investigation. I'm pretty lucky I'm in the UK where all this will be free. I looked up the price of just an upper endoscopy without biopsy from a private healthcare provider and the cheapest they were quoting was £1000. If I didn't have the support of my GP then there's no way I would be able to afford to investigate this on my own. I will update this thread as new developments arise so hopefully this could be a good resource for those in a similar situation - now and in the future. Also, cheers for the advice guys. If I exhaust all testing and get no answers I will try going gluten free any way and see if it helps.
  5. I have endured gastro-intestinal symptoms for a long time such as cramps, gas, constipation, fatty stools and diarrhoea. As a result I was diagnosed with IBS twelve or so years ago. Along with this I have experienced low weight and unexplained weight loss for nearly a decade. This has progressed from me finding it difficult to stay at a low but healthy BMI, to struggling to stay in the underweight rather than dangerously underweight category. I went to a doctor (not my usual GP) as I was worried about my weight loss and felt that it might be related to my GI problems. I explained that I felt as though I was not getting any energy from my food and was worried that despite gorging myself on high calorie food, I could not even maintain my weight, never mind gain any. This doctor said it was probably nothing to worry about as I am young and healthy. At this time I had never heard of coeliac disease. Not too long afterwards my sister started experiencing similar symptoms and saw our usual family GP who gave her a battery of tests. Her coeliac test game back positive which led to me looking into coeliac disease and realising how well it could explain the problems I was experiencing. I went to the same doctor who duly gave me tests for coeliac, iron levels, and inflammatory bowel disease - and expressed surprise that I'd had no such tests. After waiting what seemed like an age, all my tests finally came back. To my annoyance, the coeliac test was negative. I was so hopeful that I might have found the answer to my problems that I felt somewhat defeated, and sure that I was just going to by palmed off again as a time waster. The only thing that came out unusual was my iron levels, which were low. As a 25 year old man who puts a lot of effort into my diet this seems very difficult to explain. When I went back to my doctor he took my weight (60kg). Which he noted was a 9kg reduction from the last time I had been measured just five months prior. He also agreed that there was no easy way to explain why my iron levels were so low and told me he was going to refer me for an upper and a lower endoscopy with biopsies. He even said that in his opinion he feels coeliac disease is still the best candidate for the cause of my problems despite the negative blood test. I must say I feel fantastic that my problems are finally being taken seriously, though I have absolutely no idea what my endoscopies throw up. I really hope it turns out to be coeliac as it could be something much worse or even worse it could be inconclusive in which case I have no idea what might happen next. I wonder, has anyone else had an experience like this where their symptoms indicated the need for biopsy even after a negative blood test. If so what was the result? Are there any other conditions that might turn up which would cause the same profile of symptoms?