This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
Oh brother! I have been recently diagnosed through endoscopy and biopsy. All of the symptoms I had - brain fog, migraines, stiff joints, etc have an explanation. My diagnosis was curt and by phone by one of the Dr's office workers. "Your biopsy results are back, you have Celiac Disease. Quit eating gluten and we'll see you in 4 weeks." I make the follow-up appointment and my blood is tested - I am supposing for being glutened. The only advise I receive is a packet of xeroxed handouts with websites to go to. When I asked the nurse about recommendations for seeing a dietitian, "That's your job, honey, not ours". "You have to ask for it."
I wonder how often one is diagnosed with cancer and is given the diagnosis, given handouts or told to "go check the internet".
Guess I need to link up with some Celiacs in my area to ask this question. I have run into some ND's and either the fees are so expensive or they are slightly off the deep end of the treatment bend. Just wishing for someone that recognizes celiac disease and its complications.
I have the same problem. I have Gastroenterologist that diagnosed me with Celiac and GERD in Oct. Basically all I received was a phone call with the biopsy results and told to go gluten-free. I was given 'handouts' to explain celiac disease and that's as far as it went. They now want another upper scope done to 'see how I'm doing'. After 4 months is there going to be any noticeable difference? And then what? Another handout?
Is there such a thing as a doctor that treats a patient as a whole person? I go to a Neurologist, Orthopedist, Hematologist and Gynecologist and somewhere in there my GP will put a word in. However, none of my "body part" physicians seem to be able to link all of my symptoms and some just smirk when I mention that I am a Celiac. Is an Osteopath a viable option? I would like someone familiar with celiac disease and the other auto-immune difficulties that are associated with the disease. I am at the end of my rope and wallet as well. Any ideas?]" It seems like the majority of us here have to teach our doctors about gluten instead of vice-versa." is right!
I'm new to the circuit, but I can give you a view on iron infusions with the chemical called Faraheme. I received two IV injections over a week apart. The nurses will establish an IV line and administer the drug through the line, slow push. I relaxed and read post injection. They will monitor you for at least 30 minutes post to watch for reactions. I had very good luck with the injections and felt much better within 3 weeks as far as energy levels and stamina were concerned. The only drawback I had with the injection is that I couldn't have an MRI (the results could be inconclusive for 90 days after iron therapy). I needed one for a possible orthopedic procedure and had to wait. I did not have benedryl pre-injection. The Faraheme has a very low reaction incidence. Good luck!