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Renaye

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About Renaye

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  1. Plaquenil helps my fatigue and joint pain. It is also supposed to slow down the progression. I see the rhuemmy every 6 months and get blood work every time. I am doing well and my doctor thinks my sicca symptoms are in remission due to the gluten-free diet. He plans on seeing me yearly after this next visit since I am stable.
  2. I did not get a final biopsy report but the last one was taken in 2013 and my discharge papers indicate scalloped mucosa in duodenum and duodenal mucosal changes consistent with celiac disease. This was 2 years after going gluten free. Biopsies were taken and nurse called that they were negative. Yes, I am doing fine on the diet but did not have typical symptoms. My rhuemmy doctor believes that my sicca symptoms are in remission due to the diet. I see a gastro doctor yearly due to obtaining a prescription referral for dexilant and monitoring for possible barrett's. Going for egd late in April. Thanks for your reply.
  3. I am on plaquenil also. It is the first thing that they put you on if your symptoms are mild. Plaquenil has worked wonders for me but the only risk are eye problems which you would need to have an ophthalmologist follow you. I don't have antibodies but have a positive ANA and dry symptoms which are much better since treatment. The key is finding a good doctor. Join sjogren's world website. There are many nice people there and have great advice.
  4. Back in 2011, I had a Prometheus test run which consisted of a +DGP IgG, +DGP IgA, -TTG IgA, -EMA IgA, Total IgA was normal. My gastro did a genetics test which was unable to interpret but started me on a gluten-free diet and sent me to a rhuemmy doctor. A later biopsy was negative. Now that doctor is gone and my new doctor which I like, does not think much of my results. He believes there needed to be more to the panel - IGG maybe? which is better than the DGP. I tried to explain to him that the DGP was the newer more accurate tests but I didn't get through to him. Is there some tests missing from the panel that was taken? Am I wrong? I am starting to believe that gastro doctors are only good for prescribing drugs and doing procedures and bloodwork. My health and nutrition is mainly in my hands and base on my ability to identify problems and follow through with them. Very frustrated.
  5. I don't believe in weight loss products like these but wondered if anyone has used them? I noticed they have a gluten free brand, not sure about dairy. I don't need it for weight loss or energy but heard that it may help constipation and I am in desperate need of help in that area.
  6. I discovered this place last week and they have dairy free and gluten free options on their menu and website. I am anxious to try it. Has anyone had any experiences with this place? I noticed that they use a separate blender for each drink you order.
  7. I was always told to only eat Bush's beans but I notice that Aldi has naturally gluten free chili beans and refried beans in a can. Are they safe?
  8. Thanks for the boost, Colleen. I will keep trying. I have a step and need to start using it. I get up at 5:30 to go to work at 7:30 already but sometimes I wish I had more time. I can't sleep in on weekends because I don't go if I miss my time. I tried coffee and it bothers my acid reflux. I have not acceptable "manageable" yet. I am 44 and want desperately to be "normal" but it looks like I will need to settle for "manageable." Thank you
  9. Ravenwoodglass I have been gluten-free since 2010 and there has been no changes in my constipation. I am on Dexilant, plaquenil, vitamin D and take calcium but was constipated way before taking calcium. Insurance only covered 10 sessions this summer which was very time consuming for me. She did diet training and exercises to strengthen my muscles but no biofeedback. I did the balloon exercises at home which only caused my hemorrhoids to bleed. I am dairy free. Only soy that I have is in my mayo. I have muscle twitches in my legs sometimes and also have a difficult time emptying my bladder completely. Not sure if that is neuro symptoms. Thanks for helping me problem solve.
  10. I am struggling with my new me and wanted some help. I have positive DPG tests. I also have food intolerances to eggs, peanuts and dairy which I have probably had from day one of life. I am treated with plaquenil for fatigue, mild joint pain and dryness. I also have chronic constipation which I thought was related to celiac but there has been no change. I have discovered that I have poor rectal muscles and also failed the "balloon" test during physical therapy for constipation. I am on a high soluable diet and miralax. Nothing was explained to me but I gather that I have at least lost my muscle control of my lower bowels which is the cause of the constipation since I am unable to push anything out. Is this autoimmune related? Can it be caused by delivery of a child? I struggle with this daily and I am bummed that I need to take something to be "normal" for the rest of my life.
  11. I have some sort of dysfunction where my lower colon muscles don't work. I take miralax and eat more soluable than insoluable fiber and this seems to help. I have done everything and now have just accepted it.
  12. I ate them today!!! I eat them for breakfast with milk and when I was little they used to be one of my favorite snacks. I would melt a tablespoon of butter in a pan and add honey nut cheerios. Buttered honey nut cheerios!! Yum!!
  13. Thanks for the recipe!! I went to a health food store the other day and found soy free mayo but it was $7 for a tiny jar. So my next step was looking up a recipe on line. I think this one looks simple enough and I think I got all of the ingredients except white pepper! Renaye
  14. I had blood work for food allergies several years ago and I took out the foods that were moderate reaction to both delayed and immediate reactions. Almond, soy and several others were mild responses. It may be worth taking them out. I watch my soy carefully and the only things I eat that contain soy are my mayo and occasional bread/cracker products by Scharr. I find it difficult to buy mayo that is gluten, dairy, egg and soy free. Yes, I ate mayo this week. I am long time sufferer of constipation. I developed it about 2 years after my last child (11 years ago). So I know it is not my gallbladder issues that is causing my constipation problems. Nothing seems to help except miralax and I pray that it keeps on working. That is why my gastro is sending me for therapy for pelvic floor dysfunction, although the results from the test were unequivocal. I am having a difficult time grasping that my muscles are causing the problems but would be pleased if it worked.
  15. I have been gluten free for several years and have also taken other things out of my diet. No diagnosis but have improved with taking out eggs, dairy and peanuts along with gluten. Last year I had pancreatitis and the doctor took out my gallbladder although there was no definite cause. This week I have been feeling bad, my stomach is bloated, constipated - even with miralax and I am not sure what is going on. Which makes me stressed, which doesn't help. Gastro is new and doesn't ask much about possible celiac diagnosis but is sending me for physical therapy for my constipation. Nothing has been done with the exception of tracking bm and food/water daily intake. I am missing something. What symptoms does not having a gallbladder cause? Stomach pain/upset stomach? I know it can cause loose stools which I don't have. Tomorrow we have a family get together and I don't feel like eating anything. Any suggestions would be appreciated.