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klv1 added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsVery Frustrated With No AnswersI've been suffering with tummy troubles for about 18 months now. I get severe bloating, gas, and feeling of fullness after eating only a small amount, no "C" or "D", or nausea though. I wake in the morning and feel OK but a few hours after my first meal is when all the symptoms start. By the time I'm in bed for the night, I am so bloated and gassy that I have laid there wondering if it's possible for your stomach to explode from to much gas in it, that's how bad it gets.
So about a month ago I went to see the doctor and described my symptoms, she was unsure what my condition was and suggested I try a low-fructose diet, and ran some test. I went on the low fructose diet and cut out a bunch of gluten as well (wheat has the fructans) and felt about 70% better. After 2 weeks I returned to the doctor and told her I felt about 70% better but I wanted a test to make sure it was fructose (because that is a hard diet to be on). She referred me to a GI doctor (still waiting for that appointment), and ran more test for food allergies and Celiac disease. That was two weeks ago. About a week ago, I decided maybe it was just gluten and not the fructose. So I've tried to cut out all gluten from my diet and did not worry about fructose. I started feeling about 85% better. I was thinking great, I can handle a gluten free diet (better then a fructose free diet), and if it is Celiac Disease, at least I will have a better understanding about what is going on.
I just got the call from the doctors office and all tests are negative! No food allergies, negative for Celiac disease, no closer to an answer about what is going on with my tummy. Could it be a false negative? Is there any other conditions it might be? I am so lost and frustrated!!
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