This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
I went in this morning for my colonscopy. While there, he asked about my symptoms and we decided to go ahead and do the endoscopy. He got about 6-8 samples and said I should have results within 2 weeks.
I was so pleased. I didn't have to fight for it or anything.
So, I can now go gluten free with confidence. I feel overwhelmed by it but glad to be getting stuff done.
They also removed 5 polyps and said they'll also let me know within two weeks what the report says about them. I've gotten them since 9, so most likely, another colonscopy next year. Oh yeah.
But home now, tired as can be and so happy to have food.
Thank you! I'm thinking I'm actually good to go for the most part. No cast iron or teflon. I'll get rid of my wooden spoons. I do have glass measuring bowls/cups. I have two blenders. One I have used just for my smoothies: nothing gluten there. I'll just replace as I can.
And quite a bit of my bakeware is glass, thank goodness.
Thank you! That is a bit more reassuring. When I first mentioned it to my daughter, she was like "Uh, that's going to be expensive. Can't we just clean it really well?" I am also hoping to not get withdrawals! I am in the final weeks of classes at school and so do not want to get sick on top of it. Guess time will tell. And the way I figure it, I've already been feeling bad for this long, what's a bit longer?
So, tomorrow is my "Go Gluten-Free" day. I have read and read for a few weeks on all the steps I need to take to avoid CC. However, one thing is a huge issue: my cookware. I do not have the funds to afford replacement. I just don't, not right now. The toaster will be easy for a while since I won't be using it since I'm not eating any of the marketed gluten-free products for a while. But replacing my cookware is not a possibility right now.
Is there a way around this? Cleaning the stuff really well or whatnot?
That's a good idea, thank you. I'll do it that way as well. I will ask my dr. about it Monday when she calls to see if I should be doing anything else. But I think I'll just stick to the smallest amount I can until the endoscopy, if they do it after I get my blood results.
I agree with this completely! I went through this years ago when I had a hysterectomy at 24. I had just quit nursing 2 weeks before it and my hormones were already nuts. I went to dr complaining on hot flashes, dryness, etc. He wanted to put me on depression meds. I told him no, found a new dr and had testing done that proved I was in menopause! My dr now is amazing. In the 2 years I have seen her, she has NEVER pushed meds on me, preferring testing and alternative approaches. I'm sorry you are going through this, but I agree, it's time for a new doctor.
I so know what you mean. The mouth sores bothered me, too, but luckily, aren't contagious. If I get the blister on my lips, they go away fast and I'm sure no one notices. At, least no one has said anything.
I'm the same way. If I have my coffee black (my preference), no issues at all. But my daughter brought home a flavored creamer (non-dairy, she has severe milk allergies), I felt horrible! So I just stick with what i like and what doesn't make me sick.
Smylinacha, For me, the rash is my scalp (so uncomfortable, so started a new shampoo, not helping!), little on face, neck, chest, back and arms. Exact same places every single time. That was one thing that also made my doctor take notice.
I have a man I've been dating but since we've started, I've had these symptoms so bad. I joke with him that when I am off gluten and dont' have my budda belly and itchy rash, he may not recognize me. HA! Luckily, he's cool and still thinks I'm pretty but seriously, between the bloating, rash and dark, dark circles under my eyes, I don't feel at my prime. I mean, I'm not wanting to do the gluten-free for vanity, but feeling bad and then looking bad doesn't help at all.
It was, thank you. I know, in the past, once I see my G.I. doc, I'm usually scheduled for the colonscopy within a week due to my history, so I don't think 2 weeks gluten free will mess up anything if they do the endoscopy. I'm going to start Monday and see how I feel from that point on.
As I stated in a previous post, I had my blood work done Wednesday this past week. I discussed with the doctor about going ahead and going gluten free. She was supportive of it, regardless of my results due to my symptoms. But I also told her I am worried about doing it in case they do an endoscopy at the same time as my colonscopy and that being gluten-free can skew the results.
But then I realized that some say on the forums that the endoscopy is to see if damage has been done due to gluten. So if I have been heavy gluten and go off it and only off for like 2-3 weeks, would that skew my endoscopy, if they do one?
I'm miserable and just want relief. My rash is back (never fully went away) and even this morning, I had some whole wheat bread, touched my face and now my face and neck are itching. And, as is typical from what I have read, the rashes tend to show up in the same spots. For me, that is true. And let's not discuss the bloating, gas, D and overall feeling of Blah!
I don't know if my logic is off or not. I guess I just figure, if the Celiac panel comes back positive, I go gluten free, have the endoscopy, would being gluten free for a week or two make that much of a difference in biopsies?
Thank you! Her and I did talk at length and decided that with my G.I. background being so worrisome, even if the tests come back negative, it wouldn't hurt me to go gluten free. So I'm going to consider it regardless. However, I know myself very well and without a positive dx, it'll be easier to cheat.
Thank you. It really puts my mind at ease to have a doctor so willing to listen and to order testing and be so proactive. I adore her. She is also going to work with my G.I. to take the necessary steps to get my insurance to cover a specific genetic test to check for markers re: my history of precancerous polyps since I was a child.
So yeah, lots of upcoming tests and procedures, but I'm ready to feel better. Also, once I get the results Monday, I'm going either gluten-free or gluten-lite depending on if they recommend a biopsy. At least I know I'll be having a colonoscopy, so adding in the endo. won't be a chore, ha.