This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
I know what you mean by feeling like there is a knot in your intestines! Before I was diagnosed I almost always felt discomfort in my intestines like that. I also had constipation as well as a first symptom. I had a lot of pressure and pain my upper abdomen.
All those symptoms are gone now that I am gluten free.
I know I can't say whether you have Celiac or not, but I just wanted to let you know that you aren't alone in those symptoms!
Have you considered getting the blood test despite what your doc says? If you do want to get the blood test, don't go gluten free until you get it because it can mess with the results
Good luck with your health and I hope you get to feeling better! Digestive issues can be so frustrating. Hang in there!
I was recently diagnosed and I really want to go out for sushi, and i know that most simple sushi (except most crab) is often gluten free.
Koi Sushi & Thai is very close by and I was wondering if anyway has any experience with their sushi that they can share? The woman on the phone said that they have sushi that is gluten free but I'd like to hear of anyone's personal experiences with the restaurant!
Okay so I know that Post claims that their fruity pebbles are gluten free. But I ate them the other day and had AWFUL stomach cramping. I didn't really see the connection then, so I ate them again this morning and I'm having bad symptoms again.
Fruity pebbles are the only new thing I have added to my diet in the past week.
I was only diagnosed about 2 months ago so I know I am still healing, but has anyone else had issues with fruity pebbles?
My very first celiac symptom was chronic constipation. For months that was my only symptom- no pain, just never being able to go! I know it's the worst feeling and I'm sorry you've been dealing with it for so long
I hope if you talk with your doctor he will be willing to do a blood test. I know the IBS diagnosis can be an annoying one to get. But DON'T cut out gluten products until you get testing because you need to be eating gluten for the tests to be accurate.
I can't give any insight to the itching and sneezing, but maybe someone else on the forum can.
I had a positive ttg and then had a biopsy. I was told on the phone that I had a negative biopsy and then when I looked at the pathology report WEEKS later it said I had slight gerd and an increase in intraepithilial lymphocytes and that a full celiac panel was needed to truly exclude celiac disease. (My first doctor was awful) Then, my celiac panel was positive for 3 things and I was diagnosed by someone new! My villi damage was missed in my biopsy. You should ask to see your pathology report, that's always a good idea!
What parts of the panel did you have done previously? I'm so sorry they won't run everything- doctors can be so annoying.
You could have NCGI, but you could still consider getting the whole panel. Because if I hadn't, I wouldn't know that I have celiac!
Good luck with your health and I hope you get answers as soon as possible!
Okay so I'm newly diagnosed (a few weeks ago). I've only been truly gluten free for just under a month, so I know I am still healing and need to be patient. I'm still having abdominal pain occasionally and my BM definitely aren't normal by any means. I still have weird symptoms (cramps, gas, discomfort) and keep getting worried that something else is going on, even though I've tested negative for basically everything else.
How long did it take for you guys to have your digestive system back to normal? I know one month is not long at all, but I was wondering how long it took you guys to return to normal and if you had bumps in the road like I have.
Thanks guys! All of these links were extremely helpful. I want to slam this on my old doctor's desk and maybe he'll realize how little he knows about celiac testing, but obviously I never want to see him again!
Thanks again guys, I'm definitely going to show my PCP all of my tests results and hopefully he'll realize that three positive blood tests and early signs of celiac on a biopsy AND response to a gluten free diet warrant diagnosis.