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pryforma

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About pryforma

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  1. Thanks everybody the only reason I am not sure about is because her siblings are much younger than her so I am not sure if they will show positive in the blood test.
  2. My daughter was diagnosed with celiac (biopsy/blood) her gi doctor asked if I wanted to test her siblings since there is a higher chance for celiac actually he said all of us. He said we could do a blood test , he wouldn't even do a biopsy since my kid has celiac and if the blood it's positive, for him that would be enough to diagnoses with celiac if any of the siblings test positive. Not sure if I should even bother get them tested ...what do you think? If I do get them tested it should be soon we cut a lot of gluten of their diet because of my daughter. Thanks!
  3. her biopsy came back and it's positive, thanks everybody for the help!
  4. Hi I updated about the endoscopy of my daughter on my first post , but I have a question... is it possible to come back negative the biopsy after what doctor saw on the endoscopy? He said to go off gluten but I didn't like the fact the he said before that of the biopsy is negative she does not have celiac :/ regardless we will be gluten free, just wondering what do you all think .... thank you@!
  5. an anybody tell me if he will be able to give me any information after the endoscopy like if he saw anything ,.. can he tell me anything after? I know I have to wait for the biopsy but I was just wondering if he will be able to give me any info .. Thank you
  6. Thank you for your reply ,eventually we will all get tested,it was hard to put her back on gluten she got all of her symptoms back , stomachache , paleness , low energy, thank goodness this will be over soon and we will be back on gluten free.
  7. Yes she is having a biopsy soon. No my husband and i don't have any problems with gluten . She has stomachache , gas, bloated, constipation, very irritable , got worse since last year. Anybody else wants to help me out? Would you consider based on this test a diagnosis for celiac? Thanks!
  8. I finally got a copy of the results of my 8 year old, so here it goes...trying to write exactly how it shows IgE - 116 reference range <91 Gliadin, IgA, tTG Ab IgA IgA 106 reference range 41-368 Iadin (deamidated ) Ab Pnl , IgA/IgG DGP Antibodt IgA 25.67 reference range <20.00 DGP IgA Reference Range <20.00 Negative 20.00-30.00 Weak Positive >30.00 Positive GP Antibody , IgG 44.36 reference range <20.00 DGP IgG Reference Range <20.00 Negative 20.00-30.00 Weak Positive >30.00 Positive TISSUE TRANGSGLUTAMINASE Ab, IgA tTG Antibody , IgA 98.67 reference range <20.00 <20.00 Negative 20.00-30.00 Weak Positive >30.00 Positive IgE 116 DGP Antobody IgA 25.67 DGP Antobody IgA result - weak positive DGP Antobody , IgG 44.36 DGP Antobody , IgG - Positive tTg antobody IgA 98.67 tTg antobody IgA result - Positive She was off gluten for 10 days when she had the blood test done Any opinion? UPDATE ON THE ENDOSCOPY- She had her endoscopy today, before it was done I asked her gi doctor how many "pieces" he was gong to take out for the biopsy, I was worried that it wouldn't be enough so when he said 15 to 20 I was pleased because I knew the chances of missing would be very little... I asked if maybe he would be able to tell me anything today, he said that sometimes he can see something , sometimes nothing at all but of course we would talk about after the procedure and even if he didn't see anything the biopsy would give the results of course. Mind you she was GLUTEN FREE FOR 3 WEEKS then BACK ON GLUTEN FOR 10 DAYS for the biopsy today. When she had her blood test done she was gluten free for 10 days . After the biopsy he came back and said that pretty certain is celiac from what he saw which was lots and lots of redness everywhere, he showed me one picture of a small red lump ( can't remember the name) that was ready to burst so with all the inflammation/redness this is it he said to go gluten free from now on....BUT whatever the results were going to be, she was going to be back on gluten free diet today, I was not going to wait for the biopsy , regardless of the results I was going to get her back on her diet, she feels so much better no way I was going to put her through more pain just because of the results , she even wants to be back on gluten free and she is the pickiest eater so no doubt she feels really crappy when she eats gluten. A little relieved that we found for sure what is going on with her. Thank you for the replies .I will update with her biopsy.
  9. Thank you , for your reply , yea he is willing to leave as it is but we would never know everything for sure he too wants to give a formal diagnosis so that is why i want to get it done . I just worry that 10 days on gluten is not enough although she is only been off for 3 /12 weeks . So far she has not complain about her stomach and she is been eating gluten since yesterday . Thanks again
  10. My daughter (she is 8) tested positive for celiac ( blood test) at the time she was 10 days gluten free, she did test negative one year ago for celiac but her health and growth went downhill from there and the last couple of months got worse so i decided to cut the gluten and make a doctor appointment as soon as I could. She started to feel better within a week as of 2 days ago she was 3 1/2 weeks off gluten ( she had one day couscous) most of her symptoms disappeared the bloat, hard tummy, the irritability, stomach pain , etc... Well yesterday we got the results and her gi doctor said that to make really sure and to fully give her the diagnosis we should do an endoscopy he said it would be up to me... that for some parents the blood test is enough but to see the full picture it would be a good idea to do the endoscopy, I know people have different opinion on this... so here is the thing I put her back on gluten she will be on gluten for 10 days before the biopsy (she was only off gluten for 3 1/2 weeks) He said that as soon she starts to feel all the symptoms again it's a good sign that we could see something in the biopsy ( I think that is what he meant ) regardless her appointment is in 10 days. My question is do you think that will be enough time to see something ? I've read so much already but some say it takes months to heal some say days .I don't want to have a false negative. But I don't want to put her on gluten more that I have to.What do you think? Thank you for your opinion ! I called hr doctor's office for a copy in the meantime I asked for the results and she was telling me over the phone but of course my 2 year old started to scream she said something like igg 44.3 ig 98.7 iga 106 iga 2567 - (maybe these is not right I think that is what I heard) not even sure if it makes sense the results I should have asked for a copy ... When i will get the copy and post here