This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
I have a friend, from Asia, who I work with who has had celiac all of her life she is now around age 50. She only finally figured out what her problem was about a year ago the same time I discovered I had celiac. So yes Asians do get it and this friend was not so fortunate to have been young when so much information was available, she had to suffer. Any young child today has far more available to deal with celiac. Not only can she avoid the health problems which may already be in progress but not visible, but she could also do much better in school if she is not being affected physically with these things. I would print out a few articles and give them to this lady and then consider your job done. You can lead a horse to water but you can't make them drink. Too bad it is her daughter that will suffer at her ignorance.
Good Luck, Nin
I am also sensitive to casein. My doctor just gave me some new pills and the fine print shows there is lactose in the ingredients. I gather lactose is milk sugar, does anyone know if it still contains casein?
A friend of mine had the Naet treatment and was told she was cured of her gluten sensitivity years ago. She continued to suffer with ill health, but believed candida was the only problem and after many years of doctors and treatments was retested to be told she is still gluten sensitive.
According to what is written on Celiac, gluten sensitivity is not curable at this time. Hopefully one day they will come up with something.
take care, Nin
My tests fell in the normal range, but I had considerably reduced my wheat due to a doctor telling me it would help me detox. Luckily my doctor warned me the blood test might show negative but I might still have the gluten/celiac problem.
I also have always had a high bilirubin. It would be interesting to know if other celiacs have this problem. It is also called Gilbert's syndrome, and your liver has a harder time with cleaning out certain food/medications. You can find a lot on the internet on this subject about what to do and what not to do.
I was on my third doctor (a Naturopath) and by that point showed her various labs that had gone out of the normal range (Liver/Platelet/thyroid) and showed her celiac articles that confirmed that this happens with celiac and goes to normal once the body is recovering, plus I showed her the enterolab tests. I think she was a bit uncertain at first, but after a few visits and various discussions of my two year experience she began putting the diagnosis as celiac. I feel grateful to have found her as she is very thorough and patient with the various things that keep popping up and so far we are making progress on getting things fixed.
Good luck, hopefully the medical establishment will soon catch up with Dr. Fine at Enterolab. There was a great 3 day conference at NIH in Washington, and I got to go to day 3, and I think they have come a long way in understanding today's celiac patient and how differently celiac is now presented. It is a challenge for doctors to recognizel.
I'm a mother and found out last year I have celiac disease. My stomach problems only started two years ago in my late 40's. I have had my two teenagers tested (they have no symptoms) and they both came up positive.
As this is genetic, and some people do not have symptoms but damage is being done, I would highly recommend your parents get tested or try out the gluten free diet for a few weeks and see if they notice any difference. Not everyone gets the stomach symptoms, or any obvious symptoms.
If you check out the www.enterolab.com site, "testimonials" you can see the wide range of symptoms for those that get them.
I've read that many people are being diagnosed in their 50,60 and 70's and unfortunately by then you often have developed other auto immune disease.
Good luck with your healthy new diets, it will become second nature to you and your young enough to avoid all the other things that people get who stay on the gluten diet. Do point out to your parents that one or both may have this, it is genetic.
I found out I was gluten/dairy/yeast/egg sensitive through stool tests done with>www.Enterolab.com
They give the prices on their site, and most insurance companies will cover at least part of the cost. I found out both my kids also have the same problem, so it makes it a lot easier to know what to avoid.
I had previously done the allergy/sensitivity testing and found other foods I was sensitive to, and I have read that it is difficult to heal unless you avoid all the things you are sensitive to. If you can't afford this,I have read you can avoid the food you think you might be sensitive to for 4-5 days, and then first thing in the morning eat just that thing. Check your pulse before eating it and again during the 2 hours following, if your pulse increase it supposedly means you are reacting to that food.
good luck, Nin
I have several relatives who felt healthy but had GERD. After they heard I was diagnosed with Gluten Sensitivity they gave up wheat and their GERD went away.
I just had my 13 yr old tested (she looks fine) enterolab shows she is sensitive to gluten/yeast/dairy and eggs. I am glad I was diagnosed first (almost a year ago). She has been able to see my health improve and see the other foods that are available and taste good. Believe me she still wants to continue with pizza and I still have work to do but what are the options?
I truly love my new way of eating and if tomorrow they found a cure, I probably would not eat much different as I feel tons better than before this whole thing started. Start off very simple, vegetables, fruit, rice, fish/meat and then slowly you can add to your collection.
You can do it!
Drinking lemon squeezed in warm/hot water first thing in the morning helps clean your liver etc, and helps your body detox. My grandfather drank this every morning, and I suppose those old fashioned remedies had a reason behind them that people didn't always fully understand but knew they were good.
Glad you are feeling fine. I too sometimes get water retention in the feet/legs.
I notice it more so when I have been exposed to gluten. I suspect our bodies are ridding us of toxins from the gluten and this means the liver and kidneys have more work. So probably drinking lots of water, and lemon in water could be helpful.
A lot of what you described in your earlier email in terms of improvements have been what I have experienced. So i think you are on the right track, I think it just takes some time. I have been working on this since June of last year.
From all that I have read I t hink you probably are pre-celiac, and you could do a stool test with "enterolab" which is more sensitive than the blood test.
The Italian Doctors who are way ahead have now come up with a test similar to the stool test, they think this is the way of the future because the blood test doesn't pick up everyone.
I agree with Elaine. I had been going in circles with doctors, and found the Enterolab site on my own and just went ahead and ordered a bunch without fully understanding. If you can get guidance from Dr. F. that might be a good idea.
You can ask for a receipt and then send the claim to your insurance.
Good luck, Nin
The ND I am dealing with tells me that people with Celiac often develop other sensitivities, and not only to food, also to other chemicals etc. in the environment. Once your intestines and body begins to heal (after some period on a gluten free diet which varies from one individual to another) you likely will lose the intolerances. I would guess it is safer to limit exposure to any chemicals you can as we are bombarded with so many in our environment that we can't do much about.