This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity
Haha, I love all of these!
I have also gotten the "I wish I had that!" and I want to punch them. Every time. It's almost as bad as "I could never do that". Well, you could, if you had to...
Speaking of medical professionals, when I told my doctor that cutting out gluten stopped my migraines, her response was, "huh".
Re: people who are gluten-free but still eat it, I know someone who eats gluten all the time. Mostly she just gets diarrhea (which she doesn't mind), and if she eats it a LOT she starts to get migraines. And then it's "awe, man, I have to rest. This totally sucks". Her general philosophy, is that if she's going to eat gluten, she should have a lot so it can get out of her system...? She makes no sense. This is the same person who told me that I can't have cheese because the anticaking stuff is flour (which maybe used to be the case but isn't); that gluten can be absorbed through the skin and make me sick; and that I can't eat meat unless the animal was gluten free as well. Until I did some research, I was living off rice and fruit. I lost 7 lbs in a month! She just wants people to think it is so hard, and that it sucks being her. And then she eats it anyways. GAH!
Maybe this belongs in a different topic, but my sister believes that I'm making all this up, so she refuses to learn about it and work with me when she plans family get-togethers (birthdays are usually celebrated at her house). So last night for MY BIRTHDAY, she made tacos (there were flour & corn shells, but I didn't know the brand of taco meat and I'm sure she wasn't careful about washing things well enough to make sure there weren't leftovers from another gluten-full meal, so I didn't have any). She asked my mom if the meat was too spicy (Mom was worried about that beforehand... it was fine). Then she served cake from Walmart. My TEN YEAR OLD nephew looked at me, alarmed, and said, "I think this cake has gluten in it. I don't think you can have it" (so sweet), and I reassured him that I wasn't eating it- just feeding it to my kids. I just thought, how crazy that with five adults around, the only one who even acknowledged my dietary needs was the ten year old. Sigh.
Haha! I've never gotten any funny vegan comments, but a lady at my church approached me one week and said that since I'm gluten free, I should come to her house any time I want, and pick some of her lettuce and help myself. I thought it was so random! People seem to think that since so many things have gluten in them, that I must feel so fortunate to have every single thing that is gluten free. I actually don't love lettuce, so I've never stopped over, but it WAS sweet. My mother in law is always buying stuff and assuming I'll want it because I CAN have it. She bought some glutino pretzels (which I feel taste like stale toast), and every time I come over, it's "here's your bag of pretzels", like I'm obligated to eat them since they're gluten-free. I do appreciate the gesture, though.
This JUST happened last night:
Me (to concesion lady at museum): Do you know for sure if the popcorn is gluten free?
Her: Umm, I don't know. Do you know if popcorn usually has gluten in it?
Me: Usually it's fine. Popcorn itself is gluten-free, but it would depend on the flavorings. I've never come across popcorn that wasn't. I just thought I'd double check if you knew.
Her: *terified look* It has salt in it. Is that ok????
Me: Salt is fine.
Her: oh, good. I was thinking about not eating gluten anymore, but I don't know what it's all in...
(Really? I couldn't have guessed)
Popcorn was fine, by the way.
Right? I HATE when people are like, "oh, I couldn't do that!" Yes, yes you could, if your health depended on it, and if you felt miserable for a week after eating a cracker. My 2nd most hated comment is, "that's so expensive, though!" Ok, well, forgetting the halthcare and medication required to NOT be gluten-free, may I remind you that rice is cheap, fruits & veggies & meat don't cost more than what you pay... it's only expensive if you buy the gluten-free versions of food that has gluten in it. And not being able to eat at resturants sure saves ME a lot of money!
Same for me! I will be 27 this month, and I have had a DAILY headache since middle school at least. Maybe sooner- I can't remember. I just remember taking excedrin regularily in middle school. I HAD to get help when they changed to daily migraines. Really, it was a month-long migraine that was better or worse depending on the day. I could hardly function. At times I couldn't function. I said good bye to gluten, and they disappeared almost immediately. I've lost 40 lbs, and I have ENERGY, and MOTIVATION now. This is definitely working out for me! Yes, she's my sister. I'd love to talk to her seriously about it, but she thinks it's a load of crap. You just can't change someone's mind when they have already decided what they're going to think. I AM making progress on convincing my mom to try gluten-free and see if it helps some of her symptoms. I worry about her because she doesn't have health insurance, and if her body is being damaged, it will cost a LOT to fix it someday.
Oh, and if I get annoyed enough, I will say, "You're right. I must be making this up for attention. It's just so much fun not being able to eat my favorite foods anymore." People are so dumb! Why would we make this stuff up?!?
I know how you feel! My sister thinks I'm making it all up. I told her about how I got deathly ill after taking communion (my pastor said he'd get gluten-free wafers and gave me a regular one instead without telling me). She was like, "really?!? From just one communion wafer?" Well, yeah, it's a lot of gluten! She's always asking, "are you still doing that gluten free thing?" Yes, I'll be "doing that thing" forever so I can be able to enjoy life and not spend it curled up in a ball crying in pain.I tried to tell her about how miserable I was with my daily headaches for 12 years, and when that switched to daily migraines in January. Her response: "well, everyone has headaches." (in a tone of voice that implied that I'm a hypochondriac).
People like that are the only reason why I would consider getting an official diagnosis ("real" celiacs give me crap, too. Like their issues are genuine & mine are made up. So sad!). I can tell myself that they are just ignorant, and it doesn't matter what they think because I am the one in control of my health. But it's still hurtful. I guess just try to keep educating people if they will listen.
This morning I was thinking... I should write a book about all the ridiculous conversations I've had with people about gluten free diet, etc. I'll bet there are lots of stories out there... let's share. Laughing is a good way to cope, right?
So I told my coworker (who is also my aunt) that gluten-free diet cleared up my daily migraines (she has migraines often as well). Her response: "well I know that isn't the problem because Aunt F has celiac and she still gets migraines even though she's gluten-free". Sigh. Ok...
Here's another one:
LL: did I hear you are wheat free?
Me: yes. Well, I'm gluten-free, which is wheat free.
LL: Well, not all wheat has gluten.
Me: it does...
LL: No, there's this unaltered strain of wheat that some amish farmer in NY has.
Me: Ok, well I don't have access to that, so I'm wheat free.
LL: *goes on to discuss just starting wheat free and seeing a big difference, and using coconut wheat (?!?) as a substitution*
Me: Well that's good. So wheat is definitely a problem for you, huh?
LL: For sure. I ate pizza all weekend and I'm paying the price now!
I'm sorry if anyone has already posted about these things. I did a quick search and found nothing.
I see that the McDonald's near me now offers gluten-free burgers. Has anyone tried this? Are they on gluten-free buns? I don't think I'll ever have the nerve to try them, but I wondered if anyone has and whether or not they had reactions.
I also see that Wendy's offers frosty CONES now. And now I feel like I can't have that anymore because the machine might touch the cones and get crumbs on it, and then I could get poisoned. Wendy's frosties were the ONE thing I felt safe getting, and I'm having a hard time coping with this. Has anyone had a frosty at a Wendy's where frosty cones are served? Any reactions?
Please & thanks.