This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
my first post here just to say I sympathise and share same concern with Hermom and your daughter. I am 32 yrs old and was diagnosed celiac seven months ago. Had no real digestion problems exept anemia which wouldn't go away. At that time, first results on tTG-IgA were >200 (normal is below 20). Now seven months after the results on tTG - IgA are still >200.
The DGP-IgG is 24 (normal is below 25) - so DGP is ok. They didn't do DGP for first time seven months ago. As Gemini mentioned the test doesn't give exact numbers above 200 so I can't really tell if antibodies have dropped. Even a small drop would tell that there is some reaction to gluten-free diet. So I am very concearned. I'm getting different info on how much time does it take for TTG to lower down when on gluten-free diet. My doctor said that this takes a while and that I shouldn't be concered, that 7 months is not enough time, other say it takes 6-8 months. And now I have to wait another six months for new bloodwork on tTg-Iga.
I am from Croatia and celiac people have much more difficulties being gluten-free. I am vegetarian, I cook my own meals, almost never eat out, of course there is this problems getting traces of gluten in my food with which I really try to be careful. But I am very worried if I have this refractory celiac disease.
Can somebody answer me what DGP results acctually tell? I read somwhere that elevated numbers show that gluten is still entering organism..? And tTg-Iga damage, inflamattion of gut? I really don't know about these antibodies.
I guess we have to be patient and hope that the next bloodwork will show improvements.