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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About SeekingSarah

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    • Birthday September 10

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    • Gender Female
    • Location Ohio

    SeekingSarah's Activity

    1. SeekingSarah added a post in a topic Opt For Genetic Test?   

      Good luck, make sure that SED rate gets followed up in case there is something else going on.
      I see my FL PCP in a couple weeks, she is more receptive to my concerns since she has treated me for 9 years, she is on top of the SED rate, after the 84 one in May I found out from another doc that I had a common bac infection occurring so that might explain it...but was it occurring in April with the 65 SED rate? Who knows, But PCP will recheck it for sure! 
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    2. SeekingSarah added a post in a topic Opt For Genetic Test?   

      Well I'm hoping if I can get some sort of DX for will encourage my sister and my mom to steer him in the right direction for his issue. I have little say, but for a kid who rarely would ask for something for him to bring up these things to my mom show they must be bothering him. 
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    3. SeekingSarah added a post in a topic Opt For Genetic Test?   

      When I first read about Celiac I told my mom I wondered if my nephew's mild behavior issues growing up were due to it?
      Well just spent weekend with him, he is 18, noticed right off he has a sore spot on his LIP exact spot where I get one. He also has rash on his chin like I get. Then during lunch he was not eating and told my Mom that food makes him sick to his stomach!!!!!!!! He even asked her about the place on his lip, if she thought it was an infection (she's a nurse) because he said he's "popped" he would a pimple...3 times and it's still not gone away.
      I'm definitely going to push to get the genetic text now! My mom thought he needs some OTC meds...or to see a doctor, I know the docs around here would just give him some prescriptions and send him on his way. 
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    4. SeekingSarah added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      Skin Issue...either Hard Bumps, Or Blisters.
      The "rash" or skin issue I have are either yellow blisters on my face, or hard painful bumps that are not pimplelike (no core or head). Just had a few tiny sores appear on my chest, again, I have visible scars from previous outbreaks. Face, scalp, neck/hairline, back, chest, scars on arms from previous sores, bump on roof of mouth, and blister cluster in arch of foot. I've made an appt for a derm my PCP in FL recommends. Yes I now live in Ohio but seem to have to travel to FL to get decent care...I lived in FL for 9 years. 
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    5. SeekingSarah added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      Why Are Gi Symptoms Worse In The Morning?
      Any thought to why GI issues are worse in the morning? I spend at least and hour in the bathroom, just cannot empty bowels, not constipated per say, just cannot move everything out., stomach continues to cramp the rest of the morning, might actually need to have another BM or it's just cramping...maybe mucus, but I feel completely wiped out many times I just crawl back into bed and sleep if at all possible, I have even called off work a few times because it was that bad and I could not function. I find that if I survive until afternoon the issues pretty much go away or at least the painful cramping/spasms. I often say if I could just find a way to make these symptoms occur before bed instead of before work I could manage somewhat better...although ideally I want to get resolve them all together.
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    6. SeekingSarah added a post in a topic Opt For Genetic Test?   

      Yes, I know I stated the IBS, Low Vit D, Low B-12 and the anemia can come be after effects of gastric bypass but they are all also related to Celiac or Gluten, intolerance as is the skin rash, acid reflux, missed periods, night sweats, weight gain...etc.etc.etc.etc.etc. Thus the reason I'd like some real answers instead of just blaming the surgery...before I had surgery everything was just blamed on being obese. 
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    7. SeekingSarah added a post in a topic Opt For Genetic Test?   

      Just got my retested SED rate via the patient's now 86. Something's not right....awaiting to see what PCP will recommend tested this week. The local doctor who ran the original SED rate that was 65 has NEVER said a thing about it....grrrr hate some doctors.
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    8. SeekingSarah added a post in a topic Opt For Genetic Test?   

      What is the name of the cheek swab genetic test?
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    9. SeekingSarah added a post in a topic Opt For Genetic Test?   

      Oh geez I think I could easily find someone to discredit a test...that is IF they'd even give me a test! Especially now that the initial blood panel was neg, the derm was like "why biopsy if the blood test was negative?"....isn't a skin biopsy needed for dx of OTHER skin issues too? But after her show of ignorance I now longer trusted she'd even do the DH biopsy correctly. I am just sooo tired of no one wanting to do actual tests, they look at me, push on my belly and hand me medication for IBS. They blame my previous gastric bypass for the low Vit D, low B-12, borderline anemia and GI issues. Despite the fact I was anemic BEFORE I ever had gastric bypass. I'm just getting inpatient and tired of wasting time and money going to new doctors. I will see the PCP in FL when I visit in June but she can't do an ENDO...just frustrating.
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    10. SeekingSarah added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      Opt For Genetic Test?
      My Celiac panel was neg, very high Total Serum Iga? High SED rate 65. PCP who has treated me for the past 9 years is back from maternity leave and is said Celiac wouldn't account for that high of SED rate, she ordered it retested (from FL, I am now in Ohio) waiting to see if it's still high. Saw local dermatologist about skin rash, she refused to do a biopsy said she has two other patients with DH and my rash is not presenting in those areas. YET, her visually made DX was Eczema??? The GI I saw here said he'd be willing to do an endo, but that was before my blood results came back neg so not sure his opinion now....wondering better option might be to have the genetic blood test run, then just go gluten-free and see if symptoms get better? I really want some REAL confirmation either way. 
      • 13 replies
    11. SeekingSarah added a post in a topic Dermatologist Appointment Next Week, Biopsy?   

      NP said "well if the blood test were negative? then why test?" 
      Hmmmmm how about you should biopsy a persistent skin rash in general before you go prescribing medication??? So then the doctor comes in and says she has two other patients with DH and my rash is not the areas that DH presents. Really...currently on face, neck, back, scalp...scars on arms and chest from past issues??? Not many other areas left???
      Scolding me for scratching...that's why they aren't healing...use this medication for 14 days so the areas can heal. I ask...this will heal the areas, but will it stop new spots from developing? "If new spots occur put medication on them and DON'T SCRATCH". Ok so if medication is so strong I can only use it for 14 days...what happens after that? 
      It's like I'm asking for a full body scan or something radical and expensive???? Skin office procedure.
      So do I try to find another doctor...I mean how do you know until you get there? I don't want to waste more time and $ going to doctors who will refuse to actually DX something...I say that again because why not biopsy to see WHAT it is...of course by her ignorance on the matter I figured she'd have not done the biopsy correctly anyway. 
      OR do I just cut out gluten and see what happens? I haven't gone back to GI yet because I was going to see what the skin biopsy results were. He was certain it was "just IBS" but at least he ordered the Celiac panel which was negative. 
      PCP in FL (I'm back in OH), is concerned with SED rate of 65, normal is under 20...she wants to know what my doctors here are saying is the yeah the doctors HERE suck and have not said anything about...she would like it checked again got see if it's still high. I told her I'd try...but doctors around here don't seem to like educated patients
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    12. SeekingSarah added a post in a topic Celiac Before Gastric Bypass. Any Complications We Need To Know?   

      There is also the option of Gastric Sleeve, they do not bypass intestine, but no foreign object in you that can slip or cause erosion. 
      As someone in the opposite position it is good that he was DX before surgery. In general, I don't see a lot of information re: weight loss surgery and even his surgeon might not have definite answers.
      You might find people on a weight lose surgery forum. use the search feature to find posts that mention Celiac.
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    13. SeekingSarah added a post in a topic Blood Test Results - Positive Total Iga, Everything Else Negative   

      I am 35... my Total serum was high and my SED rate was 65 (normal 20)...other celiac panel was neg. Hitting roadblock at getting skin rash biopsied. PCP is concerned with SED rate, wants it rechecked....surprise the GI doc who ordered it never called about it.
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    14. SeekingSarah added a post in a topic Columbus, Ohio   

      Is Dr. Ackerman still at OSU? I'm not finding one on the website, just an anesthesia doctor.
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    15. SeekingSarah added a post in a topic Dermatitis Herpetiformis ... My Journey   

      I even told the derm today that I was hoping for a biopsy of skin to see if it's DH before I decide whether to have an endoscopy in you know let's do a non-invasive office procedure before I have to go under anesthesia, etc. and STILL she brushed off the possibility it was gluten related or any REAL diagnosis of the skin rash...instead it is dx'd "other atopic dermatitis or related condition"
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