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Gleepers added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsShould I Have Her TestedMy daughter will be 8 here in a couple of months and has had digestive issues almost from the start.
At about 3 mo old she developed cholic. Took several tries on different formulas to get that to even out a little. Around 9 mo she started having constipation issues. Not usually going, as she went regularly (most of the time) but her poo came out in hard pale little pebbles that continued until she was around 5. Now adays she will occasionally have a non pebbly stool and the color is browner than it used to be. At the same time (9mo) she started have night terror like episodes nearly every night. So bad that the doc suggested an MRI for epilipsy but we argued that someone having a seizure doesn't usually chuck things at your head. She didn't sleep through a night until she was over age 4. She has been falling in the height % for the past several years, she's gone from 65% to 45% in the past 2 years but her weight gain is steady and in the 98%.
When she was between 2 and 3 she quit eating almost all together, for the better part of a year all she would take was milk and occasionally pasta. Durning this time she put on 15 lbs. (alot for a toddler) Doc refered us to an Endo, but we lost our insurance before we could get an apt. and she started eating after that so we just dropped it. Blood work showed normal but elevated blood CO2 levels.
So now she is nearing 8 and is quite a heavy little girl and starting to notice it. Especially in the tummy as she has always had the "toddler buldge" and still does. She has occasional bouts of general stomach aches that usually last a few weeks, but then subside. She gets headaches now and then. Still has trouble sleeping at night and wakes up groggy alot. But overall she's an incredibly healthy kid. Rarely gets sick, and has only been on antibiotics since age 2. Doesn't have any food allergies or even bad seasonal allergies. The doc just says to keep an eye on her, but aside from recomending some OTC stuff for the tummy upset really hasn't said anything other than that.
I just can't shake the feeling that something is off.
I know many of you have been through the gamet of issues before getting a celiac diag. What do you all think. Should I have her tested? I don't really want to go gluten-free just cause as that is the majority of her diet and I know for a fact that when she isn't eating enough she packs on the pounds quick and I don't really want to make her bigger just on a hunch.
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