This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
Sounds like u need to ask doctor for a celiac test, it may be more serious than a intolerance. I can relate to some of what you've described w/ my kids. Gluten-Free may be the answer. You have enough symptom for doctor to suspect, but too often celiac is overlooked.
7/8 is not too young to understand. My 6&7 yr old r gluten-free & completely understand what food is safe & what food is dangerous for them and that different people have different problems with food. May I suggest u arrive with your own snacks to share... maybe something they can relate to as "normal" like tortilla chips & salsa, ice cream, cut up fruit w/ caramel dip or delicious cupcakes that happen to be gluten-free..that way they don't think you are "odd" just eat a little different.
So many of us have heard doctors label our/our childrens celiac pre-diagnosis as a virus. Get him tested, demand it...if it is celiac, a gluten-free diet will improve his health but it may take some time and may require additional supplements for deficiencies. My advice, don't accept doctors dx if as a mom your gut tells you they are wrong. My 1yr old would have died from his diagnosed virus had I not taken research intoy own hands, and yes, celiac was the answer. Also please research a kid named Taylor, I think he uses glutenaway as a social media name, he may be inspiring to yoy and your son.
When grocery shopping...a lot of manufacturers are starting to label gluten-free. I alsood google products as I shop, many of their websites provide gluten info im faq or allergy section, if u cant find it, dont buy it!
Someone else mentioned FIND ME GLUTEN FREE. its a must have app to learn what restaurants offer gluten-free menus & even more useful are the consumer reviews of their gluten-free experience. In a restaurant, I say I have an allergy to gluten (celiac or autoimmune disease is confusing to food servers but allergy gets u attention).
My church offers a low-gluten communion wafer, its better than nothing. You can ask, or just go for the wine, I doubt Christ would mind!
Its debatable about cosmetics/soaps/lotions...best bet is to do your best to find gluten-free options, especially for anything on your lips.
you are not alone, it is very hard at first but i promise it gets easier. The one lesson I learned quickly...we were eating to much wheat/gluten-containing ingredients...bread, pizza, pasta was too much the center of our meal instead of a "side-item". Do yourself & your family a favor & focus on serving foods that are "normal" and naturally gluten-free...proteins, potatoes, rice, fruit & vegis. Make eggs & bacon for breakfast (lots of bacon are gluten-free but check first), dine on roastbeef & potatoes, a delicious potroast or a hearty chicken and rice soup, just use a gluten-free flour to make gravy & be sure to select a gluten-free stock (progresso, emerils, pacific) or make your own. Serve the family bread on the side. Think about favorite meals that are naturally (or easily) prepared gluten-free. A little less gluten wont hurt the family and can still taste great and will prevent you from making 2 meals and feeling tortured. Good luck!
dairy is really hard for a damaged intestine to digest (google it for explanation why) so thats a easy,place to start. Trying it for a few days, cant hurt & usually the little ones show improved reaction quite rapidly so you'll know if its the cause. Apparently the same issue with soy, often dairy & soy reactions go hand in hand.
My little guy was diagnosed with celiac at 22months & was also reacting to dairy & soy. I was told that this is very common and may be outgrown as the intestine repairs itself. I've been slowly reintroducing dairy and he seems to be tolerating it well in small amounts (yogurt w/ added probiotic, cheese, butter) - if he has too much (such as sneaking his sisters glass of milk) he shows various symptoms - itchy, unusual diaper and stomach pain (noticable when he is sleeping unfortably). Might be worth trying dairy/soy free for a few days, my little guy is happy with almond milk which is rather nutrient rich.
it can take some time before you feel great, but i suspect you'll start feeling better a little at a time. You mentioned taking vitamins, one thing we learned is that deficiency of B vitamins is common & can be related to some of your symptoms, but can be really hard for the intestines to absorb..we found that B vitamins in disolvable tablet forms work, they disolve under your tongue and get absorbed right away. Also, be sure your vitamins are gluten-free too, many are not!
Oh April, what an ordeal. Doctors are not perfect & celiac diagnosis is for some reason a mystery. In Aug, my 22 month old had been sick for 2 months, in & out of the hospital...gas, bloating, vomitting, diarrhea, constipation, dehydration & was failing to thrive (out of nowhere). Peds GI specialist said did VIRUS not celiac, went dairy & soy free, said lots of calories and carbs. He kept getting sicker. I found this sight (wanted to try anything) took him off gluten for 1 day... next day his improvement was DRAMATIC, got up to play for first time in 2 wks & had his first normal bowel movement in 2
months. GI Doc saw us within days & confirmed celiac...THEY MISSED THE DIAGNOSIS! Apparently little ones rebound very quickly. Always follow up with a doc, but TRY gluten-free for a day or two...one day wont ruin their tests...and see if you notice a change. Moms instincts count for something
I'm no expert on test results, that part is complicated & best left to the doctors. However, what I can tell you is that I had no idea that I had issues until my 1 yr old was diagnosed. Our first assumption was that it stemmed from my husbands genetics (partially true) because he had years of undiagnosed problems. For me, I never would have guessed celiac, I suspected I had an underactive thyroid but thats it. Surprise surprise...after going gluten-free, I had more energy, lost weight & realized I had been bloated all the time & didn't know it, migraines disappeared, brittle fingernails grew strong, etc, etc. Celiac is a malabsorption issue & causes vitamin deficencies - thus the signs & symptoms vary by person & aren't always obvious gi symptoms. Good luck and keep in mind, its the only disease completely in your control - no drugs, just food!
Sounds like you've figured out your own problem, like a huge number of people with gluten issues. Your reactions scream gluten intolerance or likely celiac. It is no secret that the medical community is far behind in diagnosis of celiac. It can be important to know if you are gluten-intolerant or have celiac disease...however you need to have gluten in your system to test accurately for celiac, so call your doctor ASAP, tell her your find & get blood test immediately. Dont worry about what your doctor might think...celiac is one of those diseases that requires you to be your own advocate. I discovered my baby's celiac after 2 months of misdiagnosis by gi docs thanks to this website & it saved his life!
completely understand, my husband has had this issue for years..it is frightening! He's been hospitalized, seem many gi docs, colonoscopies, etc. 5 yrs ago at 35yrs,old a GI doc said "you have the colon of a healthy 90 yr old man, come for another colonoscopy in 5 years". Ridiculous. His hemroid situation got worse & then he developed rectal prolapse (of which he feared surgery. Then my 1 1/2 yr old got sick, after 2 months of hell, we learned it was celiac and threw away all glutenous foods. My,hysband got crazy gluten withdrawl symptoms BUT his bathroom issues immediately showed improvements. His doc blew it off so, we've been going at it alone. 8 months later, he still gets bouts of bleeding but much much improved! I also think sugar is a factor...look,up candida/yeast infections. We also supplement with lots of vitamins...multis, omega 3s,, b12,, niacin, c. There was a
point where he could barely work, no energy & needed to be close to a bathroom. Now, he's back to functioning normally. Our goal this year is to find the right doc, until then, he is doing good. Try gluten-free diet, cut back on sugar/soda, eat healthier...fruits, vegis, meqt & potatos...and see if the changes are as obvious as theyas were to us. One word of warning, it is good to get tested for celiac now, because once you go gluten-free, tests are not accurate! Good luck.