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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About RobinL

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  1. My doctor told me that you need to be on gluten at least once a day for 6 weeks for the blood test to work. I did that, and had similarly inconclusive results... and the doctor said even on gluten for 6 weeks, it could be not enough time to see a reaction (this is just for a blood panel, not an endoscopy).   So in my experience, you might not have been on gluten enough for the blood tests to work. I have read some forums that suggest 3 months. And for the endoscopy, it depends how many samples they take, from how many different places etc.      
  2. In 1964, the classic symptom of celiac disease was 'failure to thrive"... meaning you probably lost a lot of weight as a child/had stunted growth. So on the one hand, a blood test or endoscopy was probably not done. On the other hand, if your celiac disease diagnosis was correct, you would absolutely still have it today. It cannot come and go--it is a lifelong illness that must be treated with a gluten-free diet. You're symptoms can come and go (and become less severe), but that wouldn't change the underlying illness.   I would get a blood panel ASAP. You should have results within a week. But DO NOT give up gluten before your blood panel--I gave up gluten for one month 4 months before my blood results, and even then, my doctor said they invalidated the results. So for peace of mind, keep eating gluten, at least once a day. But get a blood panel as soon as possible.  
  3. Hi there,   I just got my blood tests (Total IgA) results back: one sample came back positive, one came back negative.   In September, I was off gluten for a month, but not 100% off (cheated maybe once a week, sometimes only with a sip of beer). Then, when I went back on, I wasn't 100% on. Probably not eating gluten every day. So in Jan., I took 8 weeks to make sure I ate gluten every day, so the blood tests would work. At the end, I took the blood tests.   My doctor says my results still could be contaminated... and the only way to know is with an endoscopy.   I just had a colonoscopy, and it took me a year from referral to procedure.    What have your experiences been with wait times, from blood test to endoscopy?