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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About bambino716

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  1. Hi, my son is 5 and has struggled with GI issues ever since he started solid food at 7 months old.  We had a difficult time finding a doctor to treat him, so we finally put him on a 100% gluten-free diet when he was a little over 2.  His improvement was dramatic, so we have continued the diet.  He has very bad reactions even when he just touches something that someone who has eaten gluten has touched.  He is also off dairy because he seemed to have trouble with that too.  Although not as bad as the gluten.  Well, almost 4 months ago he started having rectal bleeding.  It was daily for about 3 1/2 months but has let up in the past 2 weeks.  It was concerning so we took him to a specialist and they scheduled him for a colonoscopy and endoscopy next week.  All that to say, do any of you have experiences to share of your kids having a colonoscopy?  I am a little nervous about it.  Thanks so much! 
  2. My three year old son has had digestive issues since he started solid food at 6 months.  He was horribly constipated, sometimes for more than a week or two (before he was prescribed miralax).  He cried every time he went to the bathroom and he would push and push until a huge ball of poop would come out (size of a softball at least) from his little body.  Then he would shake and cry and recover from the pain of it.  This was a daily occurrence.  He also had iron deficiency anemia and he is missing enamel on his teeth which is causing a bunch of dental issues.  He would also throw these tantrums that had no rhyme or reason, and it seemed like he wanted to stop and couldn't.  Our doctor was very unhelpful, so we just started researching things on our own.  We started a gluten-free diet about 6 months ago.  From about 2 days in, we could see a huge difference!  His constipation went away and we were able to wean him from the daily adult dose of miralax that he had been on since he was 6 months old.  He is no longer anemic.  His tantrums stopped.  We are so thankful!  However, I know this means he can't get an accurate diagnosis.  I do not think I can put him through a gluten challenge.  He got glutened from some cross contamination recently.  He was sick for 6 days.  All he did all day was cry and then fall asleep.  He was horribly constipated for the first three days, and then had terrible diarrhea for the next three.  It was awful.  I actually think a gluten challenge would kill him!  I can't imagine him actually eating a piece of bread or something! My one year old had all the same symptoms when she first ate gluten, so she is also gluten free.  She has no symptoms at all since we started the diet.  I guess I need to hear that it is okay to have them undiagnosed.  Or alternatives to a gluten challenge.  We have switched peds a few times to try to find someone who will help us, but they all have little to no experience with it.  Please help me in any way you can.  We are happy gluten-free, but I don't want to overlook something by not having them diagnosed and monitored.  Thank you for reading this loooong post!
  3. We have had problems with Silk almondmilk.  It took me a couple days to figure out where the problem was coming from, but we finally figured it had to be the milk.  We usually use Almond Breeze, but we got Silk because it was on sale and my son (three years old) was SO sick all of a sudden.  He is very sensitive, so that may be it.   I know we have had it in the past, though, with no problems.  Maybe a batch got contaminated somehow?  I don't know, but I do know that I hate seeing him crying and writhing with stomach pain!  Poor guy!  As for applegate farms, we have never had an issue.  We have had the turkey dogs and turkey bacon. 
  4. Our favorite gluten-free cookbook is The Healthy Gluten Free Life.  I use it daily!  Very easy to read, pictures for every recipe, explanations of flours and other ingredients in the front of the book.  Really well done.  All recipes are gluten, dairy, soy, and egg free. 
  5. We believe that two of my kids have celiac, but we had a terrible pediatrician who just really didn't care to find any answers with us.  My daughter will be one tomorrow.  When she started eating at 6 months she had gluten in her diet.  Between her 6 and 9 month check ups she barely grew.  She dropped from the 75th to the 10th percentile.  I was shocked and a little scared!  My ped blew it off, though, and said it was nothing to worry about.  Since we have a history of gluten issues, we took her off gluten immediately.  She shot up more than two inches and gained three pounds in just two months.  We have switched pediatricians and I am glad I followed my gut.  The gluten free diet also cured her of her tummy issues and constipation.  Find a new doctor!
  6. Can Testing Wait?

    Wow, thank you all so much!  You are all very helpful!  I actually called today and set up an appointment with a new pedicatrician.  I am hoping I can get the referrals I need from a different doctor.  I would love to find an understanding GI who can give me some options and ideas on what the best steps to take would be.  Good idea on my husband and I getting tested.  We all went gluten free with my son, and I have noticed dramatic differences in my health and moods.  It makes me wonder... If you have any other ideas or information for me, I would love it.  Thank you again!  It is so refreshing to "talk" to people who take my concerns seriously.
  7. I have a 3 year old son who has had severe GI issues, iron deficiency anemia, missing tooth enamel, and unexplained outbursts since he was 6 months old and started solid food.  I could not get my pediatrician to understand how bad it was.  I even took video of my son screaming in pain as he went to the bathroom.  And this was a daily thing!  In my heart I knew it had to do with food.  So the first thing I did was eliminate dairy.  It helped for a little while, but then things went back to the same as before.  Still no help from pediatrican.  He even refused to give me a referrral to a GI doc!  (We are switching pediatricians, btw).  Anyway, I was desperate to help my son, so we put him on a strict gluten free diet about 4 months ago.  The change in him is amazing!  No more GI issues.  No more anemia.  No more tantrums.  He is more outgoing and happy.  He could finally potty train.  And we were able to get him off the laxatives the doctor had prescribed for the past 2 1/2 years.  Here is my dilemma: I have backed myself into a corner when it comes to testing!  I know he has to be eating gluten in order to get an accurate diagnosis.  I am reluctant to give him gluten because when he has had it by accident in the past few months, he gets SO sick.  I don't think I could do that to him.  So, can the testing wait until he is older and can handle a gluten challenge better?  Should I bite the bullet and do it now?  I also suspect my 11 month old daughter has similar issues as my son. She does not eat gluten either because it makes her very sick and constipated. Any opinions and experience would be great!  Thank you!
  8. Thank you, everyone!  I figured I would need a real diagnosis at some point.  I have a lame pediatrician and I have to find a new one.  I have been asking for a referral to a GI doc for a couple years and have been refused the referral.  I have called the GI docs and they say that I need a referral from my pediatrician.  Ugh.  Now to research pediatricians...  Any advice?  I have been keeping a detailed food journal since we went gluten-free, and even that was not enough to convince my ped that gluten could be the problem.  He said that my son was just finally outgrowing his GI issues.  Same thing with the iron.  And the tantrums.  What exactly does a gluten challenge entail?  How invasive is the testing?  I really have had a hard time finding out exactly what has to be done.  Is a GI doctor the kind I need to see, or is there another type of doctor that could help me?  What about the kits I've seen online (pretty expensive) that do DNA testing for celiac disease?  I also think my 11 month old daughter has the same problems as my son.  Should she also be tested or is she too young?  Sorry for all the questions!  I am a little lost in this new world...
  9. Hi Everyone!  This is my first post and it is regarding my 3 year old son.  From the time my son started solid food (6 months old) he had GI issues.  He was severely constipated.  The first time it happened he did not poop for 16 days!  Our doctor said it was fine, but my baby was in so much pain. At that point our pediatrician prescribed Miralax to be taken daily.  We started that, and it helped some, but he still needed suppositories at least once a week.  Our ped had to increase the dose more and more as our baby kept adjusting to it.  In my heart I believed that there was something wrong, like a food allergy.  Along with his stomach pain and constipation, his iron was extremely low.  He had cupped shaped big toenails.  We also found out that his teeth were missing enamel.  And on top of that were the unexplained tantrums.  So, I finally decided to eliminate gluten.  We started a completely gluten free diet 4 months ago and he is a completely different child!  We were able to take him off his miralax for the first time in 2 1/2 years.  He was finally able to finish potty training because he poops daily now.  His mood is amazing.  Even other people have asked us what changed.  His iron test the other day was in the normal range.  Also, when he has gluten he is SO sick.  Even the tiniest speck of flour or using play doh has an effect on him.  It lasts for about three days.  He is irritable and constipated.  He complains that he feels sick and he cries more.  I feel like this is Celiac disease.  I want to call it that because I feel like people take it more seriously and I need them to take it seriously.  So, what is the protocol in the Celiac world?  Can I give him that diagnosis on my own?  I do not want to go through all the testing at his age.  And I also don't want to put him back on gluten in order to get the testing done.  He is finally the sweet loving boy I knew he was!  Thanks for any insight and opinions!  Sorry so long!