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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About Currantbun

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  1. Hi,   I'm wondering do any other members have the above?  I don't have H-Pylori but my Doc insists I keep taking Nexium.  I am sceptical that long term use of this drug could not be good?? 
  2. I went out for lunch with my family yesterday and ordered some gluten-free food as you do!  Within 3-4 minutes of eating I knew I'd been glutened.  My body began to feel like it was on fire and my throat began to feel tight.  I was quickly rushed outside to get some air.  When all the commotion settled down I was told that during the episode my skin had began to go beetroot red and my veins looked like they were protruding through my skin.  The heat radiating from my chest was immense.  I also had a heat like rash between my thumb and forefinger; always on the right hand.    I have had these episodes before and they almost always happen when I have been glutened through supposedly gluten free food.  What I find ironic is I recover relatively quickly after these attacks.  I woud be recovered within an hour or less.  If I am stupid enough to eat non gluten-free than I will be in free fall for days.   Not that I am complaining but what's with this really quick recovery after eating contaminated gluten-free food?    
  3. I have had chronic constipation my whole life and since going gluten-free and DF I have yellow diarrhoea   
  4. Thank you.  Hopefully its onwards and upwards from here 
  5. The results of the endoscopy proved I have coeliac.  I am both relieved yet very annoyed.  I went back on gluten for eight weeks to prove the Doctors wrong but in my pursuit for the truth I am wracked with anxiety from weeks of gluten in my diet.  For the past two days I've had yellow diarrhoea and heart palpitations along with a ponding pulse like sensation in the upper centre of my gut.  Why is this?  I've been told to continue taking acid supressing meds for the gastritis but I don't feel they are helping me.  I am afraid to stop taking them because of the stomach polyps.  They also informed me that they are doing further analysis on my biopsies to find out why I have so many polyps for somebody in their thirties.  The waiting on further results is not helping with the anxiety.    
  6. Hi guys,   I finally had my endosocpy.  I was proved correct.  I do not have acid reflux and there was no damage to my esophagus even though I felt it was badly irritated.  I had told my prier GP that I did not have AD but he insisted I continue to take Nexium.   During the endosocpy they found gastritis and stomach polyps.  The polyps were very, very small but could not be removed because I was not sedated.     The gastritis is not connected to h-pylori so biopsies were taken of both the polyps and inflamed areas of the stomach to find out the cause.  When the procedure was concluded I asked the Gastro. was my villi damaged.  He said it looked  'OK' but biopsies would give the true answer.   One week has gone by and I have heard nothing regarding my results and wont hear for another two weeks.  I am presuming if their was anything sinister (cancer) they would have contacted me by now???     I am not happy to continue taking Nexium because I don't feel its warranted in my case but the hospital told me its all they can offer for gastritis.     MY tongue continues to look large, white coated (not candidia) line down the middle of it and teeth marks at the sides.   Any ideas what causes gastritis that is not associated with infection?
  7. Hi guys,   A lot has happened since my last post.   I finally dropped my non interested GP and found a new GP who is actually interested in getting to the root of my problem and hopefully getting a formal diagnosis.  He ordered a copy of my medical file from the previous Doctor and told me he was dismayed that an endoscopy wasn't called for a long time ago considering my problems with an acid reflux type problem and the amount of different meds I was put on for the reflux.  I explained to him that I was convinced I did not have acid reflux in the traditional sense, that the AR meds were destroying my stomach and that my issues with oesophagus irritation only happened when I ate wheat or consumed dairy.        He discussed the previous GP's findings on my coeliac blood work and said in all his years as an MD he has never encountered such a negative result like mine ???   To cut a long story short, he has ordered an endoscopy and I have to return to a full gluten diet.  It's living hell of course and my mouth is full of canker sores as I type this post as well as a white tongue with a crack down the middle, pains and aches, erratic bowel problems and being woken during the night with heart palpitations. 
  8. Thank you all so much for your responses.  I started back gluten-free, DF and SF this morning and look forward to feeling a lot better in the coming days.  It's great to chat with people dealing with similar issues.       Hi Bartfull, no he didn't check my calcium levels.  He just dismissed any futher investigation after my presuls came back negative.     Hi Adalaide,my brother and uncle are both celiac so I am sure I am also.       Hi Frieze, your words is all I needed to hear to lift my mood, thank you.  Mood wise I have been at rock bottom dealing with all this an the Doctor almost had me convinced that all of this was in my head.
  9. Hi all, I joined this forum some months ago with a list of symptoms I had but never updated, so here goes!   I had not been well for some time but looking back I have not been well for years.  Sadly I must have just got used to my symptoms and my body took them as being the norm.   Long story short, I went for coeliac blood tests and they came back negative.  I do not know my scoring as I was not told.  I was told what I was suffering from was anxiety and PSOS, not celiac.   I was not happy with the diagnosis as I believed that what was wrong with me was food related and I would get to the bottom of it myself.  I whipped my hands with my GP.   Within a few months I lost 70lbs on a gluten-free, DF and SF diet.  I regained my life and my confidence; people, I knew, stopped me on the street to comment on how well I looked.     Long, long story short, I spoke with my GP again and he asked me why I was depriving myself of calcium when I had no allergies.  Hmmmm   So since the Christmas, I have returned to eating gluten and consuming both dairy and soy again.  I sit here tying this post with a stomach that looks like I am 6-7 months pregnant.  I also have irritation to my esophagus.   This morning I got a fright when I got what felt like a head rush from the centre of my gut to my head.  I felt really shock.   Any suggestion what I should do next please?
  10. I had blood work done for Celiac over two weeks ago and my doctor has still not had the results back from the hospital.  I know the hospital are busy but I'm starting to get concerned something might be wrong.  How long does tests normally take when trying to find celiac?
  11. Hi Everybody,   I am so delighted to have found this forum and have the opportunity to read posts from people going through a similar situation as myself.   To give a summary of what I have encountered over the past couple of months, I would be grateful for any feedback please.   I was doing some cleaning at home when I suddenly got an over whelming feeling of tiredness over my body, this was a tiredness I had never experienced before.  I lay down but this seemed to make me feel worse, my heart began beating very fast.  At this point I jumped from the bed, which was probably stupid, and felt light heated.  My stomach felt like it was rising towards my chest.  Also the heat in my chest area was something I will never forget.  I crawled on my hands and knees to downstairs.  To cut a long story short I ended up in hospital.  Everybody thought it was my heart but umpteen examinations and ECG’s nothing untoward showed up.  I was released from hospital and told to have a follow up consultation with my Doctor.    I went to my doctor who followed up with more blood work and again all was clear apart from a raised esr.  The doctor did not seem concerned by this and diagnosed me with acid reflux.  I did not find his diagnoses plausible but took his prescription for reflux medication anyway.  I went home took the medication and woke up violently ill.  I continued to take the medication and began feeling light headed, dizzy and my heart continued to race.  I went back to the GP and he changed the medication but also prescribed medication for depression.  I objected to the pills but he said I it was not possible I was feeling as unwell as I was saying because my bloods looked normal as did umpteen examinations I went under.  I took the prescribed pills but after a month I felt no different.  I threw the pills away and began doing my own research.   My symptoms were:   Diarrhoea and sometimes constipation.  Stool was yellow in colour (sorry!) and full of mucus (sorry again!) Stomach upset Dry retching Raw oesophagus Chest pain Gurgling noise in throat, stomach and intestine, Anxiety Numbness Pins and Needles Very white saliva that I felt like I was choking on Always felt better when I didn’t eat Grossly obese and getting fatter Loss of periods Joint pain Bone pain Heart seemed to beat faster Constant burping   I ended up in the accident and emergency four more times and yet they were unable to come up with an explanation.    I met with family and have since found out there are two celiac’s in the family.  My sibling is one of them and we were unaware of this.    I went on a gluten free diet for 48hrs and all my symptoms went apart from the white saliva.   I went back to my GP and demanded he send me to be tested.  I am still waiting on the results   The white saliva continues and it has now put a white coating on my tongue which will not go away. Does any have any idea what is causing this please.   Thanks in advance for any response.