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LT1313 added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsCan Celiac Symptoms Come And GoI'm new to this forum stuff and have never posted before so please bear with me. I'm not sure where to start but here goes.
I'm a 48 yr old male and have always had on again off again stomach problems for as long as I can remember. I have always been active and in excellent shape (until lately) except for smoking for 30 yrs (quit yr and half ago). I'm 6-2 and have always been skinny. I work in a high stress job.
Back in January 2013 my wife got a stomach bug, which I also caught. Since then I feel like I never got over the stomach bug.The symptoms covered a wide range (all classic celiac disease symptoms except for no rash) so my Primary Doctor sent me to cardiologist (chest pain)and GI Doc(nausea, stomach pain, diarrehea and so on). Cardiologist gave a stress test which went bad and ended up have a heart cath, but that only found 30% blockage, but cholesterol level was 900. Not a big deal so treating with meds and come back in 6 months. Gi Doc does a CT Scan nothing found except fat on liver. Then does endoscopy which didn't show anything and biopsy was negative (don't know if they tested for Celiac). Mean while I was out of work on sick leave so I'm losing money. GI Doc recommends some other tests but was dragging his feet. Ends up his nurse pissed off my wife so it was on to new GI Doc who runs tests, all negative except that I was backed up and bloated. So I get to drink the wonderful stuff to clean me out. Next day no change. So he recommends going back to Primary and recommends brain scan. Primary said said it didn't make sense so sends me to new doc (colon doc) due to family history of colon cancer. So I get cleaned out again in less that a week and get colonscopy. All negative except for diverticilosis (sp?). So I pretty much gave up and went back to work. Also was sent for sleep study and it showed mild Apnea and restless leg Sydrome. So the put me on Nuvigil (i work nights).
So this week I decide to go back to primary to ask about relief for severe arthisis and tingling pain in my hands, shoulders and neck. Mind you I have had one cerical fusion surgery and numerous broken bones and dislocations. (Occupational hazzard). So that is scheduled for Monday.
Now for the kicker. I was talking to my mother yesterday and she said "is it Celiac Disease". I'm like "whats that, never heard of it". She said you were diagnosised with it when you were a infant back in 1964, guess you out grew it. So I started reseaching it and all the symptoms fit and my wife said "that's you to a T". That would explain a lot of the issues I have had over the years.
My question is how reliable were the test back then and am I gonna run into problems with docs now. Is this really Celiac or was I misdiagnosised back in '64. Plus I never remember eating a gluten free diet when I was young. Or should I just figure I have it and start a gluten free diet.
I'm tired of feeling like crap and getting the run a round and taking multiple drugs every day that dont work.
Sorry for long post
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