Katharine25 replied to Katharine25's topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsThanks so much for all of your input! The results came back from my endoscopy and everything looks like it has healed. We have concluded that it is not celiac related and I am going to get tested for other food intolerances. I've had my thyroid checked twice within the last year thinking I had hypothyroidism but it looked fine. If nothing comes up with food intolerances, I'll go back to the rheumatologist! Thanks again!
Katharine25 posted a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsI am hoping that some of you can help me figure out what's going on. I was diagnosed with Celiac Disease 6 years ago ( I am now 20 years old). Back then my symptoms were mainly gastrointestinal, such as bloating, gas, diarrehea, and very bad stomach cramps. I felt extremely sick and got to the point that I was afraid to eat anything. I lost almost 15 pounds within 6 months. After finding out I had celiac, all of these symptoms went away and I regained most of the weight I lost. I felt a lot better. For the past year, however, I have been experiencing incredible fatigue and joint pain. The pain started in my hands but recently it has spread to nearly every joint in my body and the fatigue has worsened. I went to a rheumatologist who did some test- all of which were negative. She had a strong feeling it was connected to celiac disease. I went back to the GI and he did another endoscopy. Since I get so sick from eating gluten he decided it was best if I remain gluten-free and he would see if a.) I am doing a good job on the diet and/or b.) if I have refractory celiac. I had the endoscopy done last week and I am anxiously awaiting for the results. I am very strict with my diet and do no cheating. Does refractory celiac disease sound like a real possibility? I was just wondering if anyone else has experienced these symptoms and if they have figured out what it is? I am becoming so frustrated because none of the doctors seem to know why I feel this awful. Could this be related to Celiac? I would appreciate any feedback! Thanks!!