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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About learning2cope

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  1. Things Are Going Well - Mostly. :d

    Well, since my last post things have really turned around in a good way. My mom is now on my side fully with going gluten-free. I feel so much better, though I am now having huge flare-ups of new and typical allergies, and also now having loose stool and gastro pain. I think it's my daily pills... I'm having issues with lactose still, gluten (of course), my tea tree organic castile soap (Dr. Bronner's Tea Tree Bar Soap), any shampoo (currently am using Mane and Tail), an organic body wash called 100% Pure White Peach Hydrating Body Wash which I used to be able to use to wash my face and now it causes an awful full-faced itchy, burning rash, and I'm sure other things which I can't think of at the moment. I take 40mg Lexapro daily for depression and anxiety. I have for about 10 years. Well all of a sudden on Thursday when I took all my pills in the afternoon I began having this awful panic attack - but it wasn't the kind where my brain is panicking - like "THE SKY IS FALLING" no, it's a body-only thing where my body gets super hot in the core and upper arms/legs and my hands and feet get freezing cold! and It's like there is a fire burning inside my torso. It's freaky and awful and I hate it! I eventually got over it mostly Thursday night and was finally able to fall asleep at about 4am. Then Friday afternoon I took only 2 Lexapro and no other medications. Same reaction, though not as severe. So I googled it and it seems it may be seretonin toxicity. Hmm. My gut may be healing - so it's absorbing more of the Lexapro - which makes my brain more saturated or whatever. So today I will only take 1 Lexapro (20mg) which is half dose. I'll see how I do tonight. I think I will take my blood pressure pill though. I do need that one. So, yeah, my body is freaking out severely and I have no idea why. Allergies, pain, rashes, panic attacks. I'm a walking mystery at this point. But hopefully I can get over these problems. *shrugs* I do see my allergist March 21st - this coming Friday. I will tell him everything that is going on and hopefully he can help me figure this out.
  2. 4 days. But I understand. I don't typically have much of an intestine problem when I eat purely gluten-free foods. I had no reaction with the Chex gluten-free cereal with our gluten-free soy milk last night (as an example.) Yes I could be having reactions to anything that I eat since my body is inflamed right now.
  3. While I understand your reasoning I do know that I am having different reactions to cheese versus gluten. I've been paying attention for a few weeks with what I eat and how I feel and finally decided to go gluten-free. And when I say I was "glutened" that to me means that I apparently ate gluten and had a reaction that is typical to me such as diarrhea, bloating, nausea, heart burn, etc. You are right, I don't know if I do have Celiac Disease. But I do know at a minimum that I am sensitive to gluten.
  4. A great thing happened! Mom is so much better dealing with this. Mom and dad went to the store yesterday evening and picked up a good amount of gluten-free food like pasta to try, 2 bread mixes and an all purpose flour, 3 gluten-free cereals, and the gluten-free Bisquick pancake mix.    We tried the Bisquick today for our biscuits and it wasn't bad at all! I really liked it! We've tried store bought gluten-free bread before and it was just awful but this was really good! Hopefully the mixes we buy will be nearly as good or better! I'm hopeful. Even if we don't find a gluten-free brad mix that is good it's not a huge deal. I had a sandwich last night made with Mission white corn tortillas and the first 2 or 3 bites were really weird but after that it was pretty good. Had a mexican food taste which I rather enjoyed.   We'll see how I do with our regular plastic utensils. Nothing we ate for breakfast had gluten in it. We used our usual skillet, mom lined her old metal baking dish with parchment paper for the biscuits. She used an old plastic spatula for the eggs.   I'm noticing a moderate reaction right now. Nauseated, bloated. May have to go to the bathroom soon. Mom said everything was washed VERY well. I'm not sure what to believe. Oh well. Hopefully the longer I am gluten-free these food issues will go away, unless it is a true gluten reaction.
  5. Yes, I realize now that my system is unhappy in general so a lot of things might make me have gluten-symptoms. I did call my pharmacy and told them that from now on I need to have gluten-free medications and they checked my current meds and didn't see any specific ingredient in any of them that could be problematic. 
  6. Yes I don't plan on eating a lot of processed foods. Maybe once per day I'll have a sandwich and some mornings we'll have biscuits. I know gluten-free processed foods tend to be high calorie and I want to avoid gaining weight. I'd prefer to continue losing weight. Yes I will start formally logging my food and symptoms. I'm already sure I was glutened when I took Excedrin Extra Strength and my prescription Gabapentin at the same time yesterday evening. I had a very strong reaction to them.
  7. Wow Huge Shocker Here!

    I am surprised! Mom had been not really all that willing to help me go gluten-free. She was saying "you'll be fine" in regards to cross contamination. I had sent her 2 emails to maybe spark her willingness to help out. Here is what I included in the first email:[quote] From [url=""][/url] “mushroom” wrote: A celiac diagnosis in the family can be totally overwhelming at first, I give you that. But at some point you have to stop and take a big breath and say, not that this is not going to work, but "How am I going to make this work?" (I see that Karen has added a response so I will revise a little what I was going to say. The first thing that jumped out of your post is that you have two teenage autistic boys. Gluten is believed to play a large role in autism by many. If your husband tests positive you should definitely test your boys (and your daughter, too), but even if they test negative a gluten free diet would probably be quite beneficial to them too. So instead of isolating your husband, join him. It need not be expensive although it will require a bit more cooking. But since you love to bake, learning gluten free baking should be a breeze and the home-made is better than the bought gluten free because it does not have all lthat junk added to it. It is wrong to think that the gluten free diet involves running out and buying every box marked gluten free on the supermarket shelf. In fact, what you would probably do is avoid almost everything in boxes marked gluten free -- which means avoiding almost all food in boxes. It is much cheaper to buy the whole foods than to pay a processor to process the foods, put them in boxes and label them. To start with the only processed foods I would recommend you purchase is rice (which you undoubtedly already have), Tinkyada pasta, Udi's bread, and a bag of Pamela's baking mix. Armed with these items you can shop the perimeter of the store and buy the fresh foods that are on special, the chicken legs, ears of corn (okay, it's winter now so the produce will be a bit of a problem and I will make the exception of going to the freezer case and buying frozen vegetables -- but you will have to read the labels to make sure they haven't added a sauce with gluten or some such thing). At any rate, if money is tight I am sure you are a canny shopper If you don't have one already, get a big crockpot, ideal for winter meals for a busy mom. Toss everything in in the morning and presto, dinner is ready when you are. Thicken with cornstarch or rice flour for gravy. If you approach it with a can-do attitude, rather than a can't-do, it does become a lot easier. You think about the foods you can have rather than the things you can't, and pretty soon you stop thinking about the things you can't. [/quote] Here is what I included in the second email:[quote] What does "Gluten-Free" Actually Mean? Since gluten is found in wheat, rye and barley, it is obvious that you will need to avoid these grains. Less obvious however, are the myriad of products that contain gluten as a hidden ingredient. The Food and Drug Administration (FDA) has not yet regulated the use of "gluten-free" on a food label, but it does require manufacturers to declare wheat if it is used as an ingredient in a product. Unfortunately the regulations do not require companies to disclose ingredients that are made from barley or rye, which unfortunately requires you to learn to read and understand ingredient labels. Many additives, natural or artificial, can contain gluten. Sometimes companies label products as "gluten-free" or the ingredients are naturally gluten-free, but the product may have be contaminated if it was manufactured on shared equipment. You will have to decide if you want to include such products in your diet. It is also important to remember, for reasons just mentioned, that “wheat-free” does not mean “gluten-free.” Batch Testing: According to current FDA proposals, products testing at less than 20 parts per million (PPM) for gluten will likely be allowed to be labeled "gluten-free," and, according to them, are considered safe for people with gluten-intolerance or celiac disease. There are several organizations that offer gluten-free certification for companies who follow their guidelines and batch test their products. Check out the link below for more information on gluten-free certification and labeling. • Gluten-Free Food Certification Program by the Gluten Intolerance Group Gluten-Free Shopping Shopping will likely take much longer for you than it used to. Don't rush. It is important to read all ingredients carefully. If you are in a hurry, you run the risk of overlooking a key ingredient that might contain gluten. I find it helpful to plan my meals in advance. There is nothing worse than coming home from work hungry and realizing that you have nothing to eat (and it isn't like you can go to the first drive-thru you find). So planning my meals on the weekend and doing my shopping in advance, cuts my stress level down considerably and keeps me from going hungry. Check your products against your gluten-free guidebooks, and contact the manufacturer if you are unsure about something. The following links will help you take the guess work out of shopping for gluten-free products: • Safe Gluten-Free Food List (Safe Ingredients) • Unsafe Gluten-Free Food List (Unsafe Ingredients) • The Gluten-Free Mall • Gluten-Free Food & Drug Lists: Downloads/Software Programs As mentioned, there are also many products that are naturally gluten-free that are not labeled "gluten-free," and there are some very helpful books that can help you find these foods when you are shopping: • Self Help Books (Gluten-Free & Celiac Disease) A Gluten-Free Kitchen A gluten-free kitchen is very important. If you can have an entirely gluten-free kitchen, that is ideal, but it may not be an option for many households. Therefore it is especially important to keep your house clean and free of gluten contaminates. It is also important to dedicate special kitchen supplies for gluten-free cooking. I bought a new cutting board that is dedicated only to gluten-free cooking. You may also want to have separate kitchen utensils such as sponges, toasters (a dedicated gluten-free toaster is highly recommended), sifters, bread machines, etc. This is especially important if you use utensils that are made of wood, plastic, or other porous materials that could harbor gluten and possibly contaminate your gluten-free food. If possible use an electric dishwasher to clean your dishes. If everyone in your household is going gluten-free it is important to clean out and empty all of the gluten products from your kitchen. If you share a kitchen with gluten eating family members, it is a good idea to store their food products separately from your gluten-free products, and to clean off all surfaces before you prepare your gluten-free food. Dedicating gluten-free cupboards and refrigerator shelves is a great way to start. Here are some important links that will help you cook gluten-free meals with ease: • Gluten-Free Cooking • Gluten-Free Recipes • Gluten-Free Cookbooks Kitchen Checklist - Possible Sources of Contamination: • Bread-machine • Toaster • Sponges & cleaning pads • All kitchen supplies & utensils • Colanders • Cutting boards • Door handles • Soaps For more information on maintaining a safe kitchen environment, click the link below: • What You Need If You Can't Have A Gluten-Free Kitchen A Gluten-Free Bathroom Believe it or not, your bathroom is another place where you might be getting sick from gluten contamination, and not even know it. There are many products in your bathroom to watch out for as many body products contain wheat and/or hidden gluten ingredients. Most celiacs can use body products without a negative reaction, though some people experience rashes and other unsavory reactions from gluten body products. However, if you are using face or body products that contain gluten, it is very important not to ingest them. I find it difficult to avoid getting shampoo or makeup near my mouth, so I don't take any chances. I use gluten-free soap, shampoo, conditioner, face-cleaner, toner, make-up, toothpaste; basically nothing goes onto my body that contains gluten. Using gluten-free body products allows me the freedom to worry less about accidental contamination, and gives me more time to enjoy my life. Many gluten-free body products are not labeled gluten-free, so it is important to read ingredient labels carefully and check with the manufacturer if necessary. • Gluten-Free Personal Care: Gluten-Free Lotions Gluten-Free Soaps Bathroom Checklist: • Toothpaste • Shampoo/conditioner • Make-up • Lip-stick, lip-liner, lip-gloss, cosmetics, etc. • Lotion • Sunscreen Gluten-Free Medications (Prescriptions and Supplements) Most people with celiac disease or gluten-intolerance also suffer from malabsorption and sometimes malnutrition. Your doctor may prescribe pain, anti-inflammatory, digestive or other medications or supplements to help assist with your recovery. It is very important to note that some medications and supplements can contain gluten. Do not assume that just because your doctor knows you have celiac disease or gluten intolerance that the medications or supplements they may prescribe for you are gluten-free. Be your own advocate and read the ingredients and contact your pharmacist and/or the manufacturer and find out if your prescriptions, vitamins and supplements are gluten-free. • Gluten-Free Vitamins & Supplements • Gluten-Free Medications List Additional Concerns Children with Celiac Disease Raising children with celiac disease or gluten-intolerance is no easy feat. Your kids will have to deal with immense peer pressure and there will be a great deal of temptation for them to eat gluten-containing foods. Talk to the staff at their school and help them to understand your child's special needs. The more support you have, the better off your child will be. There are many support groups that advocate for children with celiac disease, and it is important to get involved and learn everything you can to help support your child. • Raising our Celiac Kids (R.O.C.K) Support Group Pets Your pets present another source of potential contamination, especially if you have pets like mine that love to smother you with unexpected kisses, sometimes on the mouth. What your pet eats can affect you too. Handling your pet's food, cleaning your pet's dishes and having young celiac children in a house where they may eat dog or cat food are all legitimate concerns. I decided to switch my pets to gluten-free pet food. Most pet food is not labeled gluten-free, so it is important to read ingredients carefully. I found grain-free, all natural pet food to be a great alternative to gluten-containing pet foods, that way I don't have to worry about accidental contamination or getting kisses from my pets--and it's healthier for them too! It is also important to check all other pet products that you come into contact with for hidden gluten ingredients, like shampoos and soaps. It is of course always important to talk to your veterinarian before making any dietary changes for your pet. Other Food Sensitivities Most people who begin a gluten-free diet experience almost immediate relief from their symptoms. However, many people experience gluten-like reactions to other foods, and often suspect that their food was contaminated by gluten. As it turns out, many people who experience such reactions may in fact have additional food sensitivities. Some of the most common food sensitivities include, dairy/casein, soy, corn, sugar, nuts, shell-fish and processed or fatty foods. While many people report that they are able to add these foods back into their diet after they have established a gluten-free diet for many months, and after their intestines have had time to heal, it is up to you and your doctor or nutritionist to determine which foods may be causing you trouble. The 'elimination diet' is often recommended for determining what additional food sensitivities you may have. Ask your doctor if the elimination diet is right for you. • Elimination Diet Food Diary It is important to keep a food diary, especially when first initiating a gluten-free diet. Making notes of the foods you eat and the reactions you have to the foods you eat, and how you feel that day, can give you more insight as to which foods are hurting you and which foods your body can easily digest. Final Thoughts Be Picky Having a gluten intolerance means taking pride in your body, but not being too proud to say, "no, thank you." Don't worry about appearing too picky to others, you simply can't take care of yourself and worry what others think of you at the same time. You have the right to eat what you want; if something doesn't look, smell or taste right to you, or if you just don't feel right about eating something, don't eat it! It is better to come across as too finicky, than to spend the night in the bathroom or worse yet, the emergency room. Everyone has a different level of gluten sensitivity and you will have to find out through trial and error what works best for you. Be Prepared As a former Boy-Scout, my high-school teacher used to always say, "Be prepared". I cannot emphasize enough the importance of this statement. It is important to be prepared and think ahead. Keep gluten-free snacks on hand at all times, because you never know when you are going to get hungry somewhere that doesn't offer gluten-free food. Keep shelf-stable snacks in your car, office, purse, and anywhere you spend time. It is better to have gluten-free snacks on hand, then to get hungry and make a bad decision to eat something you might later regret. • Gluten-Free Snacks Gluten-Free Quick-Check: • Read all labels carefully • Call the manufacturer whenever necessary • Avoid cross-contamination at all times • Keep your hands clean • Check personal-care products for hidden gluten • Check all vitamins, supplements and RX prescriptions for hidden gluten • Make sure your pets are gluten-free • Maintain a food diary • Get involved-join a support group • Rule of thumb-if you think it's possibly contaminated, don't take any chances. It's better to go hungry than to suffer later. • Above all, trust your body Additional Resources: • Gluten-Free Forum • Celiac Disease Support Groups • Gluten-Free Newsletters & Magazines As always, [url=""][/url] welcomes your comments (see below).[/quote] Just copied and pasted from :) I think those emails helped her to understand this is real and this is a real lifestyle change for me and hopefully them at home. I don't care if they eat glutened foods but I do hope we can keep the kitchen as gluten-free as possible. Mom bought some good food to try out. We have 2 bread mixes to try and a basic baking flour. I'm not sure if we'll use it very often mainly because it's expensive but also because it may not taste very good. I just ate a sandwich with gluten-free corn tortillas. It wasn't altogether bad. It was chewier than I expected. After the first 2 bites it was pretty good. It reminded me of yummy mexican food :D Plus I had pepper jack cheese on it so that was good, too. Well I'm having intestine issues right now. It's been probably about 1/2 hour since eating that sandwich. Everything was brand new, supposedly gluten-free. My guess is my intestines are not happy right now so everything I eat is causing problems. Plus I was glutened by a prescribed medication today, a few hours ago. I had to take a generic Phenergan and it totally took away the nausea, bloating, intestine burning, etc. I think I took that around 7:30 or 8pm. I can't remember as I didn't write it down. Well, I had taken my Gabapentin at the same time I took Excedrin for my headache. So I’m not really sure if it was the Gabapentin or the Excedrin that caused the problems. Tomorrow I will take the Gabapentin without any thing else and well after I last ate or took anything. Hopefully I can narrow it down and see which medication caused it. I did look up both medications but couldn’t find an answer for Excedrin Extra Strength tablets. I went to and looked up my specific Gabapentin profile and it doesn’t list any obvious gluten, BUT it does list corn starch and I think I’ve read that corn starch is usually contaminated with gluten if not specifically considered “gluten-free.” All I know is that reaction I had was BIG. There was no question I was glutened. I’m feeling less stressed trying to become completely gluten-free. I already checked and my toothpaste is gluten-free. though I am not sure about Listerine yet. I haven’t checked that out - so I haven’t used it.
  8. Mom got 2 gluten-free pastas to try out, several bread mixes, Lay's classic potato chips, Tostitos tortilla chips, 3 Chex gluten-free cereals, more soy milk, our pasta sauce which I think is gluten-free. says it is and I think I looked it up online elsewhere and it says it is. string cheese which is gluten-free according to the Frigo Cheese Heads FB page customer service person. A new pasta scoop thing.    She came in the house bringing groceries in and surprised me completely. She said we are going gluten-free for meals and stuff like that. She bought herself oreos (which we always have on hand) but she put them directly into her bedroom. Awwww my mommy is really trying! I feel so much better now. 
  9. I am trying. I had researched celiac disease hard-core early last year due to my suspicions. I had a skin biopsy and blood work and the blood work was negative for celiac disease and the biopsy was inconclusive for anything. So it looks like the person who looked at my skin cells botched it up or wasn't educated at all in anything skin-related. (sigh)   So, due to that I gave up on the idea of celiac disease and just put up with my awful feeling self with the crazy inconsistencies with my bathroom habits, the chronic heartburn, even a few weeks or so of severe nausea with no apparent cause. Last year in August I did get an upper GI scope but the idiot doctor didn't take biopsies. Thanks, doc. He was apparently only looking for ulcers. He noted grade 1 esophagitis at the esophageal junction (I think that's what my doc told me he wrote down) but nothing else other than that. Yeah we knew I have GERD. *sigh*   So anyway. We've been through the gamut with medical tests. I'm sure there are plenty more I could do though. But since gluten intolerance and celiac disease are fixed with lifestyle change (don't eat gluten) that would tell me if that's what my problems are caused by. We can't really afford to continue doing test after test unless it's necessary. This - IMHO - is not necessary (yet) since I can go gluten-free and find out if that's the cause.   Mom I think, mainly, is just tired of bleeding money. I can understand that. I've been through diet after diet over the years and nothing worked well or at all. I was even on a prescription diet pill called phentermine (Adipex before it was called Adipex-P) circa like 2007. I only lost 11 pounds the first month but then gained all but 3 pounds back during the next 2 months on it. I quit taking it since it didn't work and is potentially dangerous. Plus you can't legally be on it more than 3 months at a time with I think 6 months off of it between on-times. Crazy...   Dad just called as they are on their way home. He thinks they got a bunch of goodies for me to get me on my way to staying gluten-free. (aww how nice) I think dad may have talked with mom while at the store and helped her out some with this decision. I hope that's the case. He said he'd talk to her about it.
  10. Ah okay, I was wondering if that could be the case. Yeah I am paying a LOT more attention to how i feel in every way after everything I eat. I'm sick of feeling sick, and achy and tired. I really am feeling better mentally these past 3 days. I'm just amazed. I did feel awful after lunch and dinner yesterday thanks to being glutened, but I woke up feeling pretty good considering. I have LOST weight! YAY! I am super obese and since Wednesday I've lost 3.8 pounds. I weighed in at 350.0 on Wednesday morning. 348.0 yesterday and 346.2 today. It's awesome! I feel better, less brain fog and headaches. Actually I got a headache after the chicken with cheddar cheese today. And I did get a headache after the grits and then again after dinner yesterday. So it definitely seems to be gluten-related.   Thank you for your help, GottaSki. Things are looking up for me. I have a TON of health problems which seem like most may be caused by my gluten intolerance/allergy.    I know yesterday after the grits my face rash and rosacea returned. My rosacea looks vastly different than my face rash. And my eyes got very sensitive to light (any light) again so I had to wear my sunglasses most of the rest of the day until I went to sleep last night.    My parents are out at the grocery store right now. I made a short list of items I think we should try, like corn tortillas for me for a sandwich. I did put on there to get a new mayonnaise for me. My open one in the fridge is definitely contaminated with gluten. We use different mayo. I use Best Foods/Hellmann's and mom uses Miracle Whip. Best Foods (as it's called west of the Mississippi river) states on the label that it's gluten-free.   I've been lactose intolerant for at least a year. Though the weird thing was it was intermittent. Like, one day I could eat cereal with cows milk and not have any issues. A week or two later I'd have it again and I'd have diarrhea (which smelled like the cereal, so I knew it was caused by that.) but then again all the cereal I ate definitely had wheat in it. But I can't eat ice cream (occasionally I can) or I have to run to the bathroom, same with Yogurt and Frozen Yogurt and Cottage Cheese. But harder cheeses like mozzarella, cheddar, monterey jack, etc I usually don't have that problem with. I do get intestinal pain (some) and bloating and gas, but that's more of a recent thing.   This is difficult for me and my mom and dad. But Dad is fully for me doing what I need to do to get better - even if it changes his life or the way he cleans the dishes, stove, etc. Mom on the other hand is very, VERY stubborn and doesn't think that using shared utensils, plastic bowls, baking pans, and skillets will be a problem. But don't you think that if I was glutened from grits then using a plastic bowl that has definitely had pasta in it before is problematic? I think so. She thinks I'm crazy. Do you have any advice for me to help her understand that yes it is a problem and yes I need gluten-free bowls and plastic utensils (spatulas, etc)?
  11. I am working on going gluten-free. I have no formal diagnosis yet (I may not even pursue it) but I had no major issues today but around noon I had a cup of coffee (which I have every morning) but this time mom added Watkins Original Double Strength Vanilla Extract to our Half & Half for our coffee. We've done that before, but I've been now 2 full days (attempting to be completely gluten-free) without gluten. I was glutened (I think) yesterday at lunchtime when I made gritz from a brand new, unopened can. They were not certified gluten-free and do not say gluten-free on the label. So it was my fault. Diarrhea, nausea, heart burn from the grits.   But today not long after drinking my coffee (I am not a sipper, I drink it like I do water) I got up from laying down and noticed I was very dizzy and my head feels very airy, like my skull is inflated with helium. I'm hating this! ACK! Could this dizziness and helium-head feelings come from gluten? I've not had this feeling from food before. But then again I've never gone gluten-free before either.   There was only a Tablespoon of extract for all three of our coffees, which equates to 1 Tsp per coffee, which really isn't a whole lot considering the alcohol in it. Soo I'm not sure what's going on. I've eaten a protein shake for breakfast which was gluten-free. scrambled eggs for lunch and then a chicken breast for snack (leftovers) then had coffee with the cream and vanilla extract in it. This head thing only happened after the coffee. My stevia is gluten-free that I use only in coffee. Our coffee has not changed, nor cream, nor vanilla, nor stevia.   I don't seem to have any really significant intestinal or stomach problems right now. I am still getting sharp stabbing (though light feeling) pains in my intestines since after the chicken today. I put Sargento shredded cheddar cheese on it. I know I am having issues with cheese right now but never had that cause this weird head feeling and dizziness.    Any thoughts?
  12. I don't think dad would have a problem with that, but mom certainly would.  I have a large table in my bedroom that would be perfect to have my own "kitchen" set-up. We have a couple of those deep large pans like for washing dishes in. I could probably use one of those, but it's plastic. Would glutenous dish water from a previous washing be hard or impossible to clean from it?    Can I use plastic cereal bowls that we already have? I think glass-based bowls/plates would be okay but I'm not sure. I think I will start washing my own dishes to ensure they remain gluten-free. But what about plastic/rubber/silicone spatulas? Mom refuses to buy new kitchen utensils and plates/bowls. She said she would just wash them in the dishwasher and that would make them clean. Well I've read that it takes 500 degree F heat to make gluten inert. I'm sure our dishwasher doesn't hit 500 degrees heat. And I know heat like that would totally ruin our plastic bowls and spatulas. Probably even the silicone spatulas.   I'm really at a loss as to what to do here. I feel so isolated.    The pots and pans we have might be okay but I also got glutened at dinner last night. Mom cooked. She put my twice baked potato in the same baking dish near my parents gluten-filled potato things (like a breaded, cheesy mashed potato ball thing) but she said they were not touching. She cooked the chicken breasts on our teflon-coated skillet. I didn't have any issues with our garlic salt or pepper so it wasn't that that glutened me.   She made corn as well, but I don't know if she microwaved it or did it in a skillet. It's canned corn which I had 2 days ago and didn't have an issue with it.   She of course used utensils that I'm sure are thoroughly glutened.   I have no idea what to do or how to help mom come to the conclusion that this really is a big deal for me. She keeps saying "you'll be fine" in a condescending tone. she does that a lot when she's just blowing me off. It ticks me off hearing her say that and making me feel like I'm crazy.   I'm not crazy darn it! I'm seriously thinking about trying to find a low cost family counseling center or doctor to force her to go to with me.   Another thing - I have pre-diabetes and she will bake and cook tons of super sugary things and have no problem with me eating them but on the rare occasion I purchase a candy bar or something she freaks out and tries to limit me eating it. I just don't get it! She's not right in the head! ARGH!
  13. Well I was doing great until lunch today. Yesterday I decided right after I woke up to go gluten free to see if my mysterious symptoms resolve. I had no gluten yesterday (that I am aware of). Since we really don't have much in the way of gluten-free foods here, I ate: Breakfast: Isopure Zero Carb 100% whey protein isolate vanilla powder + water (smoothie) - couldn't finish it because mom had made it with tap water and our tap water is awful tasting. Lunch: Isopure powder + soy milk + frozen fruit (checked bag and no apparent gluten ingredients) - no intestinal reaction at all. Yay! Snack: 2 Sargento Mozarella String Cheeses - some intestinal discomfort/bloating/little gas, minor short-lived heartburn. - That product is gluten-free as per Sargento's website. Dinner: 2 Omaha Steaks 3 oz Gourmet Jumobo Franks (gluten-free), canned Del Monte Cut Green Beans (gluten-free), with Lawry's Garlic Salt with Parsley (gluten-free), and pepper (gluten-free) - Felt great! No issues at all. Snacks prior to bedtime: Pop Weaver Kettle Corn Popcorn (gluten-free per Pop Weaver's website), Bush's Vegetarian Baked Beans (gluten-free per label), 2 Sargento String Cheeses (gluten-free per website) - only mild issues from the cheese as it was the last thing I ate before bed. All around I felt rather good all day and night. My eye sensitivity was gone for the most part, less blurry than it had been lately, no headaches, no diarrhea, actually had a normal BM yesterday! Today I woke up feeling pretty good. No light sensitivity noticed with my eyes, vision seemed pretty much back to normal. Breakfast (before parents got up): 2 Sargento String Cheeses - no real reaction at all today, which surprised me! Actual Breakfast: Scrambled eggs with shredded cheddar cheese on top. - no issues at all with that meal. NONE! YAY! Lunch: Quaker Quick 5-Minute Grits - heart burn, intestine pain and bloating, went to the bathroom and am feeling a little better. - eyes are now quite sensitive to light again. Blurriness seems a little more noticeable. - face is now red again (rosacea, and full rash reappearing) DARN IT! I am not happy. But my headache is gone now that I put on my very stylish (not) over-prescription-glasses sunglasses. The kind that blocks light all the way around top/bottom/sides. Hmm well the headache is still there but very minor and it's in my forehead. So something in the grits or utensils I used had gluten on it. 2 measuring cups (both plastic), pyrex mixing bowl, flatware spoon, grits itself (new previously unopened can), water(?), plastic wrap to cover the bowl in the microwave, microwave (which is admittedly dirty) and the Mortons salt from the original can. I thought if I used the salt from the can it would be less likely to be contaminated than our salt shaker. Guess not. I don't know which utensil or product it was that glutened me but I have no idea what to do now! I guess it could have been the pyrex bowl since dad fills the sink with soapy water and soaks all the plates/bowls/utensils in the same water, washes them with a sponge and rinses them off. I'm just very bummed right now. I was proud of myself for making my own lunch. Yeah I'm 29 years old but mom is the cook in the family. I'm not sure how to proceed right now. Mom isn't in to the whole idea of creating our kitchen as gluten-free. She is pretty adamant about not doing that. But I don't think she understand how this has to work. obviously I am always going to be glutened now matter how "careful" we are. It will happen all the time. Dad understands and seems quite willing to talk to mom about this and help her come to the appropriate decision. But that means mom will not be able to bake "normal" baked goods in her own home. I think right now she is in a mental tug of war situation. Is pyrex able to hold onto gluten? Is Corelle? We have 4 or 6 Corelle bowls that we rarely use. I can start using them. My mayonnaise I know is contaminated. So is mom's. She uses Miracle Whip and I use Best Foods/Hellmann's. Here in NV it's called Best Foods brand. Strawberry jam is glutened, so is the tub of spreadable butter. Pots and pans I know are, but I didn't have any problem eating the eggs from our skillet today. I won't even touch the toaster. I know that's off limits for me! But really, what would I toast? LOL Ok I'm done babbling on and on.
  14. Ah darn. I was glutened. I made grits. I checked the grits ingredients.    Quaker Quick 5-minutes Grits WHITE HOMINY GRITS MADE FROM CORN, NIACIN*, REDUCED IRON, THIAMIN MONONITRATE*, RIBOFLAVIN*, FOLIC ACID*. *ONE OF THE B VITAMINS   I thought I'd be fine! Well it was either the grits, pyrex bowl, 2 measuring cups, spoon, plastic wrap, salt our our microwave which glutened me.    First I had strong heart burn, then as that died down I began feeling lower intestine bloating/pain/diarrhea-type issues going on. That has calmed a bit but now my head feel floaty and have a slight headache. My eyes are starting to burn again and the light from our kitchen window is making my eyes squint and hurt. I did great yesterday and up until just after I finished the grits.   I used a pyrex mixing bowl, plastic cereal bowl (yeah probably was that since it's got lots of little scratches in it), metal spoon, 2 plastic measuring cups which typically are used for wheat flour and all that (not) good stuff, plastic wrap to cover the top of the bowl in the microwave to somehow prevent gluten in the microwave from getting into my food (does that even work), or the salt from the container since I felt it might be safer than the salt shaker.   Morton's website says their iodized table salt does not contain any gluten "in the form of wheat, barley, rye, oats or triticale"   Anyway, I'm having light stabbing pains in my intestines. I'm going to have to go to the bathroom.
  15. Well actually I seem to be able to handle harder cheeses (mozzarella, cheddar, -jack cheeses) but can't handle cottage cheese, milk, cream in large amounts (more than used for coffee), frozen yogurt and regular yogurt. I seem to be able to handle sour cream in amounts used for soups/chili or burritos, etc which surprises me.   I did have a little more gas today from 2 string cheese as part of my breakfast but didn't have heart burn at all today from it, that's an improvement! Yay!    I do hope that after my gut has healed (IF I indeed do have Celiac Disease) I will be able to tolerate more typical amounts of lactose such as for creamy soups, ice cream, etc. But right now I'm in no hurry. I want to heal.    I talked to dad a little bit about the gluten-free free trial and he understands and thinks it's a great idea! He fully understands (to the extend that he CAN) about the mixed living situation (gluten-free + G) and will talk to mom about it. Hopefully he can calm her nerves some (which is probably why she's so adamantly against going full gluten-free in our kitchen.   So we'll see how it pans out. I told mom just a while ago how good I feel. She is very happy and was actually asking about which foods I can eat (like Sun Chips, Lay's potato chips, etc) and other things. So I think the more I can help her figure this out, the more she will be willing to go gluten-free in our home. Now of course I'm not forcing anybody to actually EAT gluten-free like if/when we go out to eat, or even if I'm not with them. Heck, eat up! LOL   But so far (just 1.5 days in) I feel great comparatively! I'm going to wait a while before I venture out into the sunshine without any sunscreen on though. My face is calmed down a lot and my arms are not actively angry red or itchy, stinging, etc.   I'm hungry right now but there really isn't anything to eat that isn't contaminated with gluten here. Well, we have canned and frozen veggies, frozen meats, eggs, soy milk, protein powder, vegetarian baked beans (which I ate last night as a snack), string cheese, possibly a canned soup, but I'd have to call Kroger customer service since it's their brand. There is a questionable ingredient but doesn't say made with wheat. Sooo I'm not sure about it. Plus I've read on these forums that many people have issues with Kroger brand foods even if it is inherintly gluten-free. We have Quaker Old Fashioned Oats but I'm not sure if they are even remotely gluten-free due to CC.   I may just have a soy milk protein smoothie.