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cyclinglady

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cyclinglady last won the day on November 12

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About cyclinglady

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  • Gender
    Female
  • Interests
    CD diagnosis: 3/2013, DGP IgA positive only, Biopsy: Marsh Stage IIIB,
    Hashimoto's Thyroiditis, Diabetes, Osteoporosis, Thalassemia
  • Location
    Orange County, CA

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  1. I think you can have celiac disease and an allergy to wheat. But since a functional doctor diagnosed your wheat allergy I would be leary. Here is why. Was the testing IgE or IgG? There is a difference. From what i read (i am not a doctor or scientist), IgE responses can cause anaphlyatic responses. The IgG is more like an intolerance. To me, allergies are hives, swelling, nasal, breathing, ab pain, low blood pressure, fainting, and vomiting (epi pen can be needed) -- scary and can be immediately life-threatening. The IgG response may be harming you , but it won't kill you fast. But there are other members who can better explain it to you. But really, gluten covers the wheat allergy. No gluten and you are safe. 😊
  2. Consumer Reports rates this diet very well. My SIL has been on and off it several times. Long term effectiveness? I don't know. I can tell you a low carb with fat diet took pounds off me and my blood sugar loves it. I try to "eat to my meter". Easy to do when the holidays are NOT upon us. 😊 My sweet tooth is back. So hard to give up those foods when family is eating them. Not to mention making up for all those years of not being able to eat ice cream and egg nog (four bottles in my frig now). (Dang, that Strauss' Organic nog without any gums is fantastic. I will not touch the other brands that taste artificial or have gums. I try to portion it out or workout after drinking it. Someone else at Sprouts trys to load up on Strauss' per the dairy employee. It would be fun to meet this person who is like-minded about egg nog.). I digress..... I like eating to my meter (cheap meter at Walmart). Nothing puts a halt to eating when you read post paradial (sp?) readings over 140. The meter does not lie. I can tell myself that gluten-free cupcakes are okay to eat, but my meter tells me differently. Falling off the wagon? I start testing again. Mind you i have never been heavy. BMI always normal. Nothing like a glutening to drop a few dress sizes (but that is NOT good weight control). But that stubborn 10 pounds i gained after baby and hitting perimenopause at the same time (40) refused to budge (unless i was riding hundreds of miles per week), dropped on a LCHF diet. Meno pot? It is all about food and eating too much -- not age like I thought. 😒 Seriously, just maintaining my gluten-free and diabetic diet is the most important thing. A few pounds might not make me look good, but i like feeling good. But that is a perspective coming from a 55 year old, an age where you realize that you do NOT CARE what others think about you. So liberating (one good thing about menopause). 😄
  3. Just make sure you daughter gets the complete panel. Often providers only allow first-line doctors (GP, PCP) to only order the TTG tests. Kids often test better on the DGP. That may mean insisting on a GI referral. This should not be an issue since you had positives. You can see why now that an endoscopy can help in more ways than one (firm diagnosis and thrfore helping first degree relatives, etc).
  4. Are you sure it is the avocado? What about the garlic or onions? Are the spices gluten free?
  5. Welcome to the forum! You have a positive on the celiac panel. Your doctor should have referred you to a Gastroentrologist for further testing. Celiac disease is not a gluten allergy. Celiac disease is a autoimmune disorder that is triggered by gluten. Other autoimmune disorders like thyroiditis, lupus, MS and RA have unknown triggers. http://www.cureceliacdisease.org/screening/ If you are still consuming gluten, consider testing. If you have been gluten free since 2015, read our "Newbie 101" coping section to insure that you are gluten free compliant (plus, great tips). As for cancer, that is one thing your doctor (and i would get a new one) got right, but cancer is really rare.
  6. Thank you for sharing! Your posting will help many!
  7. Were these the result of a second biopsy done in 11/2016 or 12/2016?
  8. Shannon, My heart goes out to you! With two little ones and the holidays soon approaching, I can imagine the stress and anxiety you must be feeling (and made worse by being ill). You need help! Take a few minutes to make a plan of all your activities and chores. Then start crossing off a few if possible. This is the time to simplify. Buy cookies -- don't bake. Cut out any extra entertaining. Do not volunteer for anything (let those other parents help at church and school). Do you have any family members who can assist you? Clean your house? Watch the kids while you shop? Hire a mothers helper? (I paid a 6th grader to watch my child while i paid bills, etc. In the other room). Keep menus very simple, etc. The holidays are meant to be enjoyed. It is all about the people in our lives and not the stuff! Your kids are little and will not know the difference if a few corners are cut. Hugs!
  9. dMason might be too young to recall Chinese Baby Formula that had Melamine in it and killed and sicken so many Chinese children. It has just been 10 years, but I do not buy food items (even from American parent companies) from China. I hope China's food supply has improved, but do i need to take additional risks? http://rendezvous.blogs.nytimes.com/2012/06/21/from-milk-to-peas-a-chinese-food-safety-mess/?rref=collection%2Ftimestopic%2FMelamine&action=click&contentCollection=timestopics&region=stream&module=stream_unit&version=latest&contentPlacement=6&pgtype=collection
  10. Welcome to the forum. Why did you go gluten free for a year?
  11. Antibodies can take a long time to rise and to drop. A gluten challenge requires a person to consume gluten daily for 8 to 12 weeks in order to get an accurate celiac blood test. I got glutened last summer. My antibodies were measured four weeks after my initial glutening. They were off the charts. They continued to rise even after being on a strict gluten-free diet. It took months to heal (about six) and that is just me. Remember, celiac disease is an autoimmune disorder that happens to be triggered by gluten. Other AI disorders (lupus, MS, RA, thyroiditis, etc.) have no known triggers (some say a virus, bacteria, stress, etc.). Once a flare up starts, it can go on and on...... As long as the antibodies are heading in a downward direction, most doctors are happy. Many folks take over a year to drop their antibodies to the normal range. Some heal much faster than others. We are all different!
  12. It is possible, but the Gold standard is still biopsies obtained from an endoscopic procedure, along with testing for antibodies. CT scans are often ordered when adults have unexplained abdominal pain. In the old days they would use xrays like the procedure the OP had. Radiologists are hoping to catch more celiacs by looking at abnormal thickness, etc. Still they usually refer patients to a GI for an endoscopy and blood tests. https://www.asrt.org/docs/default-source/publications/r0713_ctceliacdr.pdf?sfvrsn=2
  13. I am so glad to hear that! The OP has been having a difficult time for the last few months. So, i was being overly cautious. So happy for your family!
  14. I retract my statement. The results were said to "appear" to be gluten free. That batch sample was okay...but so are Some Cherrios, right? The gluten-free watchdog normally tests food and not paper products.
  15. Hey, i had an opportunity to check the Gluten Free WatchDog (kind of a Consumer Reports for gluten). This product tested at below 5 ppm. Maybe a good batch or just fine. Time will tell!