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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About cyclinglady

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    Advanced Community Member

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  • Gender Female
  • Interests CD diagnosis: 3/2013 via antibody testing and biopsies
    Hashimoto's Thyroiditis, Diabetes, Osteoporosis, Thalassemia
  • Location Orange County, CA

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  1. Yes. Gums in the freezer.
  2. The flour should be good even after a year.  It can pick up funky flavors or scents from the frig though.  Not sure how good the original packaging was that you had originally.  But when in doubt throw it out is my motto.  We get enough tummy aches as it is!  I keep unopened Bob's in zip-lock freezer bags (we use their hot cereals).  But I keep all my grains/flours well wrapped/contained in the freezer.     They can last for years there!  Google it.   I just baked pumpkin cranberry bread this week.  Made chocolate mayonnise cupcakes last night.  Today I am making cranberry orange coconut cookies.  I am loading up my freezer for the holidays.  gluten-free baked goods do not last on the counter.  I like my bakery items fresh.  Counter-top defrosted baked goods taste pretty darn good.  🍪   Well-wrapped or stored baked  goods last about three months in the freezer.      
  3. Sad about Holiday food you cannot eat?

    Those are terrific ideas!   😊
  4. I think you meant an endoscopy, not an ultrasound!  😀. Anyway, as long as your test results  are going down, you are doing well.  They do not have to hit zero from my research.  Just below the lab range.  
  5. Just the EMA is missing.  That test, if I recall, is very specific to celiac disease but is expensive to run.  You have a positive on the DGP IGG though.  Two positives, I would say that you mostly likely have celiac disease but I am not a doctor!   It is recommended that more that four biopsies are taken.  This will help insure that they catch damaged areas.  The small intestine is vast (stretched out the size of a tennis court).  It is 22 or so feet long. Even Dr. Joseph Murray, GI at Mayo Clinic and one of the leading celiac disease experts in the US, has said that it is easy to miss damaged areas (heard that on a video recently).  So celiac disease tests are not perfect. Do you have a copy of your previous biopsy and endo reports?   Do you mind if I ask what were your initial symptoms?   Here is more reading:  
  6. A2 milk is being sold in California.  I actually saw it tonight at Stater Bros.  
  7. Yep, that is about as positive as it gets!  I am sorry, but you probably have celiac disease 😢. The good news is that with a gluten free diet and LOTS of time, you should feel better.   The endoscopy?  That is a personal decision you need to make with your doctor.  Some doctors will not give an official diagnosis without it.  Others are willing to give that diagnosis based on the blood tests and improved symptoms on a gluten-free diet.   I personally needed it.  Anemia was my main symptom (no tummy issues).    My hubby had been gluten-free for 12 years and I could not believe that we both needed to be gluten free.  So, I had the endoscopy.  Biopsied revealed a Marsh Stage IIIB a (Moderate to severe damage).  It gave me a baseline of damage in case I need a follow-up endoscopy.  Having a very firm diagnosis made it easy for my family to get tested even those without symptoms (all first degree relatives should be tested).   I am sure you will do what is best for you!   Welcome to the forum!  Check out the Newbie 101 section under "coping".  It contains valuable advice!  
  8. Sad about Holiday food you cannot eat?

    What?  I just baked some Nestle Tollhouse cookies and pumpkin bread using the recipe off the Libby's pumpkin website.  Both recipes I used before going gluten free.  I only use Pamela's or King Arthur's pre-blended flour.   I serve these to folks who eat gluten daily.  No one has even noticed that they are gluten free.  I use real butter,  extra large eggs, parchment paper, chill cookie dough first (do not over beat) and immediately freeze leftovers.  gluten-free baked goods do not keep well outside of the freezer.   Stuffing is just veggies and seasonings that pretty much mask any kind of bread.   I use my gluten-free bread crusts that I hoard throughout the year in my freezer.  But, I confess that only my hubby like stuffing.  I can live without it.  😊 Our Thanksgiving will be gluten-free 100%.  Pumpkin and apple pie, rolls, pumpkin cream cheese rolls, lemon poundcake, cranberry cheesecake....oh, yeah, turkey and all the fixings!    
  9. Will your insurance run the rest of the celiac panel or was that already done?   The TTg is often used for initial screening.  A positive result usually requires a full celiac panel as the next diagnostic procedure before  biopsies.  
  10. Dates

    What about suggesting outings that do not require food?  Like the movies, bowling, museums, concert, etc.  I can tell you that I used to pack picnic meals for my dates.  Everyone loved them!  We'd go to a museum and then picnic outside.  I can tell you that my husband still asks for picnics (so this strategy worked).   I was not gluten free back then -- just a poor college student (as were most of my dates).  
  11. Dear Looking, Just as there are many symptoms and problems from having undiagnosed (or diagnosed) celiac disease, there are as many for lupus.  I think you are just trying to wrap your head around this new health problem and I completely get it.  I felt the same when I was diagnosed with diabetes a year after my celiac disease diagnosis.  I did some research and learned to deal with it and you will do the same!   I do not know much about lupus.  My grandmother had it.  My sister-in-law's 20 year old niece has it and she is a university student, working part-time and managing it.  There have been a few flare-ups, but she has gotten through them.  I bet that GI doctor thinks having celiac disease is a breeze.  "Don't eat gluten and you'll be fine."  We all know that is not that simple!   Hang in there!  Eat healthy, get rest and do a little grieving (that's so normal!)    
  12. 7-11

    Hey Swingtime!   What Karen said is true, but we are glad that you joined the forum!  I confess that I play it safe and order plain coffees.  I sometimes cart my own creamer blend around in my tiny cooler and no one is the wiser!  😊  
  13. Newbie to gluten-free diet

    I felt some improvement after being gluten-free for six weeks.  But all my symptoms did not resolve until I was gluten free for about a year.  Hang in there.  A lot of patience is needed.   Remember celiac disease is an autoimmune disorder and it takes a while for the body to stop attacking itself.  Read our Newbie 101 thread under ther "Coping" section of this forum.  It may help you speed up the healing process.  😄
  14. Well, if your gut is inflamed, the coffee might be temporarily bothering you.  It is pretty acidic.  My Grandma said you should never drink tea alone.  She recommended eating a cracker or cookie (maybe that is just a British thing....).  Was there anything else in your stomach to offset the acid?  Also, both of those "milks" usually contain that seaweed stuff (carrageenan) or a gum.  Those might be bothering you.  Xanthan gum still bothers me!  Look for brands that do not add additional thickeners.  Is dairy out for you?  Lactose free milk might be good.  Again watch for additives!   Hang in there!  😄
  15. Testing Daughter

    Consider having your doctor ruling out celiac disease which is an autoimmune disorder and not an allergy.  Thinkabout doing some research at the University of Chicago's celiac website too. These are the celiac tests:   -Tissue Transglutaminase (tTG) IgA and (tTG) IgG -Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG -EMA IgA  -total serum IgA and IgG (control test) -AGA IGA and AGA IgG - older and less reliable tests largely replace by the DGP tests   -endoscopic biopsy - make sure at least 6 samples are taken   VERY IMPORTANT:  Keep eating gluten daily until ALL testing is complete or the tests can be inaccurate.     (Source: NVSMOM -- 😊)   Welcome to the forum and let us know how it goes!    Oh,