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About cyclinglady

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    CD diagnosis: 3/2013, DGP IgA positive only, Biopsy: Marsh Stage IIIB,
    Hashimoto's Thyroiditis, Diabetes, Osteoporosis, Thalassemia
  • Location
    Orange County, CA

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  1. No, to my knowledge there is no serious damage from intolerances. You might get bloated, experience inflammation, etc., but you will not trigger an autoimmune reaction. Only gluten can do that to a celiac. The histamine intolerance may or may not apply to you. The problem is that everyone has different levels of damage. it is trial and error. The most common intolerance is lactose. Best to keep a food journal for a while.
  2. What an amazing story (that is not the right word, but i think you understand). By sharing, you will help so many (as you have been for years). You are an inspiration! I can see why you continue to help so many on this forum. Not everyone has a classic textbook case of celiac disease. It is one of the reasons I remain active on this forum too. Here's to continued good health! 🍷
  3. Okay, so now you know that a gluten exposure (aka "glutening") can knock you for a loop. Celiac disease does NOT produce consistent symptoms. Each glutening can vary. You still need a new Gi, but the advice that your hubby go gluten free might be good. Once I went gluten-free after my diagnosis, my hubby's health improved (he had been gluten-free for 13 years). I was good about cross contamination and reading labels, but i really went overboard because it now affected me! Probably stopped him from taking too many risks like eating out often and not grilling restaurant staff. Anyway, your hubby can get his gluten fix outside of the house and he can brush his teeth before kissing you. My kid eats all her gluten at school and out of the house. Because, we need a safe place to relax!
  4. The gluten-free diet has a steep learning curve. Besides avoiding gluten, you must figure your own particular set of food intolerances that may resolve or may not. Remember the small intestine is damaged. First, I would recommend a whole foods diet until you feel well. That means not eating processed bread which contains a variety of ingredients that you might not tolerate. For me, I still can not consume Xanthan Gum. I bake using other gums. I also can not eat garlic or onions even after being gluten-free for three years. Second, consider a histamine intolerance. This occurs with me after a glutening. Google the foods to avoid. Avocados are on that list. You might be able to eat small amounts, but for now, an entire avocado does not seem to agree with you. Once healed, many of your intolerances will be eliminated. Just be patient.
  5. Were you diagnosed with celiac disease? If so, you may experience hair growth after being on the gluten-free diet for six months or longer. Other issues like hypothyroidism can impact hair loss or you could be like my hubby -- genetics is his cause. Hard to say with so very little information.
  6. Congratulations! So excited for you. I would not worry. (I know, easier said than done.). The good news is that you have been gluten free for a year. I would imagine that avoiding gluten at all costs is critical. Stick with whole foods and I personally would not eat out! My cousin had placenta Previa. She was able to carry until full term. There was a lttle tearing when she went into labor, so she had a C-Section. She is gluten free now, but was not at the time of her pregnancy. We do not know if she has celiac disease, as she went gluten free prior to getting tested. There is no way she'll ever consider a challenge. I've seen her belching and looking six months pregnant after a glutening. Not to mention brain fog, abdominal upset, etc. So, we at least know gluten gets to her. My OB though I had it too. But turns out it was actually a strangulated fibroid tumor. This happened around week 23. Yeah, the rest of my pregnancy was spend in and out of the hospital with uterine contractions. I was in bed the rest of the time. The tumor grew so large that my baby was in an inverse position and every kick was torture. Everyone came to see the pregnant tumor lady at the hospital. But she was well worth it. My celiac disease diagnosis was a few years ago. Anemia was my main symptom (has been since they started recording it at 16). I am pretty sure I had it while I was pregnant, but it worked out. Took us over a decade to get pregnant too and nothing was even wrong with us, but i bet it was celiac disease. I recall my hubby packing me a lunch in a cooler next to my bed. It was the same lunch every day! 😳If your hubby is not good in the kictchen, ask for help, but train them to keep you safe from gluten. If help is offered, take it! People can shop for you and clean. When they offer, they mean it! Do you have thyroid issues? Make sure that is monitored closely by your OB if that is the case. Make sure all meds and supplements are gluten free. I would be extra safe and stick with certified gluten-free. Pack your hospital bag with gluten-free snacks. Talk to the hospital dietitian and confirm that they can feed your properly. Try not to worry. Get some books, watch TV, and enjoy your older child and hubby.
  7. I am not a doctor, so I can not make a diagnosis. The test is negative, but there are some folks who test negative and still have intestinal damage, but that is very rare. Was he consuming gluten daily for 8 to 12 weeks prior? A gluten diet is needed. My house is 100% gluten free. I test my kid every few years (so far she is negative), so I have to make sure she is back to eating gluten daily for three months prior to the blood draw. Obviously, something is wrong with your child. I hope you figure it out! 😊
  8. I agree with Karen. Besides, the IGG test versions were run and they were negative too.
  9. Thanks for the warning. But seriously, why not just eat a varied whole foods diet? I take no supplements, am not deficient in anything per my GI (who runs a complete nutritional panel annually), eat natural foods with very little processed foods and exercise. Of course, I have been on the gluten-free diet for several years now, so I healed enough to absorb most nutrients. I get the occasional need for quick foods, but long term, I think it is best and safest (especially for celiacs) to eat real food. I am glad that you are doing a great job protecting your son. So far, my daughter has tested negative to celiac disease which is shocking since her Dad and I both have gluten issues. Do you have a 504 plan in place for school? Are his teachers and Adminstration supportive?
  10. Get a new GI. At my dx, anemia was really my only issue. Got glutened last summer. I was vomiting and had all the ab symptoms. Got hives, rashes, itching, passing out......too. I just toughed it out as I was on vacation. Four weeks later, my GI tested my celiac antibodies and they were sky high. Off the charts! I was "barely positive" when i was diagnosed. You should get your antibodies run annually as part of normal celiac follow-up care (per celiac centers and GI Associations). (I assume that you meant that you had celiac disease testing done only when you were newly diagnosed.) Oh, call and ask for the lab order before you dump this doctor. Get a complete panel.
  11. The elevation in your DGP still indicates that your celiac disease is active. Going down? Going up? Maybe. You do not know what the levels were just prior to your getting glutened. Even though your symptoms might improve (or not), about 1/3 of celiacs do not experience intestinal healing. Consider the "Dr. Fasano" diet (eat whole foods that are naturally gluten-free for the most part). It might be worth a shot. Also really evaluate your diet. gluten may be sneaking in despite your best efforts.
  12. With your slightly elevated calcium, has parathyroid issues been ruled out? Look at this site's yellow box of symptoms. Read about even slightly raised calcium can be overlooked by doctors, but the impact to the patient can be awful.
  13. I have taught Water Aerobics and Water Arthritis for 25 years. I highly recommend it. It puts less stress on your joints. My students swear that it helps arthritis, heal from surgeries like knee replacement, back issues, Fibro, and MS. Helps with balance too. Find a class and a warm pool. It is fun and social and it is not just for old people. Families participate in my classes too. Get those kids to excercise for life! 🏊
  14. Here is some information about getting tested for celiac disease from a reliable source: The University of Chicago. It is CRITICAL to be consuming gluten daily until all testing is complete. Celiac disease is an autoimmune disorder like lupus, Crohn's or MS. Gluten just happens to be the "trigger" for launching an attack on the body (destroys the intestinal lining). A small gluten exposure can set off a reaction that can last weeks to months. Healing can take months to YEARS. So, giving up gluten for a week is pointless in eliminating symptoms. It is great that your are researching and learning. Best to get the test done to know for sure.
  15. If you consumed it, I hope you feel better soon.