Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts

  • Announcements

    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


  • Content count

  • Joined

  • Last visited

Community Reputation

210 Excellent

About cyclinglady

  • Rank
    Advanced Community Member

Profile Information

  • Gender Female
  • Interests CD diagnosis: 3/2013 via antibody testing and biopsies
    Hashimoto's Thyroiditis, Diabetes, Osteoporosis, Thalassemia
  • Location Orange County, CA

Recent Profile Visitors

8,576 profile views
  1. Winter! I am sorry that your posting was overlooked!  Thanksgiving holidays here in the States made things pretty slow.  I am getting a kid off to school but will respond later.   I think you have celiac disease.   I understand the long wait times in Canada for a GI and I bet that only they can run a full celiac panel (I tested postive barely yet had moderate to severe intestinal damage.    Many of our Canadian members just get diagnosed by their GP based on only the blood test for that reason even with just the TTg.  A positive is a positive!   Got to go....lunches to make. Hugs!  You can get better!  
  2. Nope, I still have trouble with Xanthan gum after being gluten-free for three years.  Funny thing is that my gluten-free hubby has no issues with it at all.  So, I use guar gum instead when baking and do not eat commercial gluten-free bread and things that contain this product.   If I recall, it is corn -based.   I know I do not have a corn intolerance.  
  3. New

    Yes, even a tiny exposure to gluten can cause a flare-up.  I understand that this spice is usually diluted with wheat flour.  It is best to contact the manufacturer or find a certified gluten free source.  
  4. Lab ranges would be helpful as they vary from lab to lab.  The rediculin tests are not recommended anymore for celiac disease.  Read here: These are the current tests: -Tissue Transglutaminase (tTG) IgA and (tTG) IgG -Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG -EMA IgA  -total serum IgA and IgG (control test)     -endoscopic biopsy - make sure at least 6 samples are taken   VERY IMPORTANT:  Keep eating gluten daily until ALL testing is complete or the tests can be inaccurate.     (Source: NVSMOM -- 😊)   I would strongly recommend obtaining copies of all your lab results!     Welcome to the forum and let us know how it goes!       
  5. Gluten withdrawal?

    Were you not able to get a celiac blood test?  The saliva test is not even accepted by celiac experts.  It can be difficult to adhere to the diet if you are not confident about your diagnosis.  Depending on the amount of damage, healing can take months to years for a celiac.   Flowerqueen offered excellent advice!  Eating whole foods and avoiding processed gluten free foods is best for expediting the healing process too!  
  6. What are these pains from?

    I am sorry that you are sick!  Have you been tested for celiac disease again (just to rule out a glutening?). Symptoms for celiac disease can wax and wane (change).   Do not jump to conclusions about cancer!  I had lower abdominal pain and doctors though it was a female issue.  Turned out I had a non-functioning gallbladder that did not present in a typical fashion!  
  7. Conflicting results?

    You are in a tough position!  A positve TTg of over 200 sounds like (labs ranges can vary) your  son could have celiac disease.  The TTg is just one celiac disease a screening test.  I would ask for the complete panel. If that was not ordered.   Some of the other celiac tests are very specific to celiac disease.  A genetic test can help rule out celiac disease as 30 % of the poulation carries the gene but only a few lucky ones 😃 actually develop celiac disease.  That might be worth getting too!   Here are the tests:   -Tissue Transglutaminase (tTG) IgA and (tTG) IgG -Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG -EMA IgA  -total serum IgA and IgG (control test)   -endoscopic biopsy - make sure at least 6 samples are taken.  The small intestine is vast!  Over 20 feet in length and when stretched out is is the size of a tennis court!  How many biopsies were actually taken?  And where were they taken?  It is so easy to miss damage areas!     VERY IMPORTANT:  Keep eating gluten daily until ALL testing is complete or the tests can be inaccurate.  About 8 to 12 weeks for the blood test.  How much gluten is he getting?  I had to give my daughter gluten daily (we have a gluten-free home) for three months before I had her tested.     (Source: NVSMOM -- 😊)   Welcome to the forum and let us know how it goes!   Get all copies of lab results too!    
  8. Muscle pain

    You really need to remain on a gluten diet until that GI appointment.  A biopsy requires consuming gluten for four weeks daily (8 to 12 for the blood test).  I would hate for you to get negative biopsies and remain in diagnostic limboland.   You need to do some more research.  After all, you are your best health advocate!  This link to the University of Chicago can help: By the way, it took me two years to heal.  That seems to be pretty common around here.  My anemia resolved within a few months, but all the other little symptoms took time!  
  9. What is making me sick??

    I am so sorry that you are in a situation living with a roommate who is not considerate!  Yes, you could be getting glutened.  Can you see your GI and get another celiac test to see if gluten is actually your problem?  When I was glutened on 7/7/2015, 30 days later, my celiac antibodies were as high as they had been when I was first diagnosed.  Everything, even safe food, hurt to digest.  My GI thought I might have SIBO, but it was simply gluten!  It took two months to feel better and another month to get back dairy.  Yes, I became lactose intolerant again!  That was a really a bummer!  I also picked up a new illness (rashes, hives and intestinal pain).  So that initial glutening and probably another few while on vacation, Set off a celiac autoimmune response and triggered a new illness!   I have no clue (but a few suspects) as to what glutened me to this day!  (I am not even going to test my theories either!   I hope you can manage for another six months!  Good luck and feel better soon!    
  10. Waiting is so hard!  😩.  Visually, my doctor said I looked okay, but my biopsies revealed a Marsh Stage IIIB (moderate to severe damage).   Keep us posted and hang in there!  
  11. Newbee,

    These are the celiac tests.  The catch is for the blood tests you have to be consuming gluten daily for 8 to 12 weeks.  That is pretty awful, but that is the way it is.  😫   -Tissue Transglutaminase (tTG) IgA and (tTG) IgG -Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG -EMA IgA  -total serum IgA and IgG (control test) -AGA IGA and AGA IgG - older and less reliable tests largely replace by the DGP tests   -endoscopic biopsy - make sure at least 6 samples are taken   VERY IMPORTANT:  Keep eating gluten daily until ALL testing is complete or the tests can be inaccurate.     (Source: NVSMOM -- 😊)   Let us know how it goes!   
  12. Welcome!  It is a shame that your chiropracter ordered a gene test, but failed to do a celiac blood panel which would be more definitive.  Unfortunately, you need to be consuming gluten for those blood tests to be valid (8 to 12 weeks).  About 30% of the population carries the celiac gene.  This test most often helps to exclude celiac disease and not to diagnose it.   Your choices are to consume gluten for a month for a biopsy or declare yourself gluten intolerant and continue on with a gluten free diet.   The second option is possible.  My hubby went gluten free per the poor advice of two medical doctors.  Gluten makes him sick.  Does he have celiac disease?  We will never know.  He will tell you that I have had it easier with my diagnosis in terms of medical and family support.  It made it easier for my child to get and to continue to get tested too. Only  you can know what is best for you and your family.  I strongly recommend more research.  You are your best health advocate.   Take care.  ☺️
  13. Newbee,

    Welcome to the forum, LeeroyC! If you truly suspect gluten as the source of your problems, experts advise getting tested for celiac disease first before going gluten free.  Your doctor can order the necessary blood tests.   FYI.  It took me two years to feel really well after being on a strict gluten-free diet and avoiding cross contamination at all costs.   Healing time does vary for everyone.   There are over 300 symptoms attributed to celiac disease.  It can be hard for doctors to catch.   I wish you well!
  14. Yes. Gums in the freezer.