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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About cyclinglady

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    Advanced Community Member

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  • Gender Female
  • Interests CD diagnosis: 3/2013 via antibody testing and biopsies
    Hashimoto's Thyroiditis, Diabetes, Osteoporosis, Thalassemia
  • Location Orange County, CA

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  1. belinda63

    Thanks!  I am not sure I would eat anything there at all except for a drink (my humble opinion!)
  2. Heart problems

    The IGA deficiency test is just a control test to see if the IgA tests (TTG, DGP) are valid.  Otherwise your doctor would have to run the IgG versions.   It is hard to say, but since you had been gluten free for so long I think the tests are invalid despite your attempt at a gluten challenge.  You might just have to go gluten free without a formal diagnosis.  It can be done.  
  3. Welcome to the club you never wanted to join!  I am not a doctor, but you appear to have celiac disease.  The next step is an endoscopy to obtain four to six  tissue samples (biopsy).   Keep eating gluten until all testing is complete!  Research, research, research!  Get prepared to go gluten free and soon your tummy will not be 😡!
  4. Any autoimmune can flare up or calm down and that includes lupus.   I would send an email requesting lab testing prior to your going.  It is worth a shot and I always do it.  Save time and it is documented.  
  5. Sorry, , in my haste to get my kid to school I forgot that the Electric Company shut down our power for line repair today.  Spent the day at the Mall 😄 I would create another posting and in the title reach out to fellow Canadians.  It will get you a faster response.  Our NVSMOM is a terrific source but she is homeschooling and coaching and I can imagine she is super busy. She does check in very often.   I will answer some of your questions (kid is at Water Polo practice).   Yep, I have other intolerances and watching out for histamine load is one of them.  I get rashes and tummy aches thanks to a glutening in July.  Got another issue, but what is one more?  I am getting better though and I suspect that I am finally healing.  Took me three months to recover from that glutening.  Ugh!  😠   A food and symptom diary can be very helpful.   The TTG test is pretty specific to celiac disease.  Experts say 95% of Celiacs are caught with the TTG.    New  research shows it might just be 70%.   I bet a few months on a gluten-free diet rich in fats, protein and healthy carbs (veggies and fruit) will help heal your gut and you will finally gain weight.  How can you gain weight with a damaged gut?  What are the doctors thinking?  Read up on cross contamination.  Eat simple unprocessed foods.  Do not get glutened!  Do not eat out until you have gained weight.  Eat well-cooked foods (even fruit) in the beginning.  Nuts and raw foods are hard to digest. You can eat those later.  When I was glutened, I could not eat peanuts, so I ate Peanutbutter. No tummy aches!  😃 IBS stands for "I be stumped"!  It is hard to get away from a label.  There is something wrong and it is most likely celiac disease based on what you submitted.  It will be up to you to decide on what action to take, but if I was as sick as you........    
  6. Welcome!  How fortunate that your daughter's celiac was caught early.  I am not a doctor, but I would bet that the GI did not take enough tissue samples or he did not take them at the recommended locations.  😩 Make sure that she is consuming gluten prior to that next biopsy (4 weeks daily) if you decide to go forward with that procedure.  It is such a bummer that we have to make ourselves sick in order to get a diagnosis.   Her IGA result is strange.  I always thought that once you were IGa deficient (or not) you would always test that way.  I will have to look that up in my spare time (not!) 😊 My daughter has tested negative so far.  No major symptoms and she is not anemic (my main symptom at Dx time).  Good thing you kept up on testing.   Kids tend to heal fast, but be patient.  It will take time!      
  7. Winter! I am sorry that your posting was overlooked!  Thanksgiving holidays here in the States made things pretty slow.  I am getting a kid off to school but will respond later.   I think you have celiac disease.   I understand the long wait times in Canada for a GI and I bet that only they can run a full celiac panel (I tested postive barely yet had moderate to severe intestinal damage.    Many of our Canadian members just get diagnosed by their GP based on only the blood test for that reason even with just the TTg.  A positive is a positive!   Got to go....lunches to make. Hugs!  You can get better!  
  8. Nope, I still have trouble with Xanthan gum after being gluten-free for three years.  Funny thing is that my gluten-free hubby has no issues with it at all.  So, I use guar gum instead when baking and do not eat commercial gluten-free bread and things that contain this product.   If I recall, it is corn -based.   I know I do not have a corn intolerance.  
  9. New

    Yes, even a tiny exposure to gluten can cause a flare-up.  I understand that this spice is usually diluted with wheat flour.  It is best to contact the manufacturer or find a certified gluten free source.  
  10. Lab ranges would be helpful as they vary from lab to lab.  The rediculin tests are not recommended anymore for celiac disease.  Read here: These are the current tests: -Tissue Transglutaminase (tTG) IgA and (tTG) IgG -Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG -EMA IgA  -total serum IgA and IgG (control test)     -endoscopic biopsy - make sure at least 6 samples are taken   VERY IMPORTANT:  Keep eating gluten daily until ALL testing is complete or the tests can be inaccurate.     (Source: NVSMOM -- 😊)   I would strongly recommend obtaining copies of all your lab results!     Welcome to the forum and let us know how it goes!       
  11. Gluten withdrawal?

    Were you not able to get a celiac blood test?  The saliva test is not even accepted by celiac experts.  It can be difficult to adhere to the diet if you are not confident about your diagnosis.  Depending on the amount of damage, healing can take months to years for a celiac.   Flowerqueen offered excellent advice!  Eating whole foods and avoiding processed gluten free foods is best for expediting the healing process too!  
  12. What are these pains from?

    I am sorry that you are sick!  Have you been tested for celiac disease again (just to rule out a glutening?). Symptoms for celiac disease can wax and wane (change).   Do not jump to conclusions about cancer!  I had lower abdominal pain and doctors though it was a female issue.  Turned out I had a non-functioning gallbladder that did not present in a typical fashion!  
  13. Conflicting results?

    You are in a tough position!  A positve TTg of over 200 sounds like (labs ranges can vary) your  son could have celiac disease.  The TTg is just one celiac disease a screening test.  I would ask for the complete panel. If that was not ordered.   Some of the other celiac tests are very specific to celiac disease.  A genetic test can help rule out celiac disease as 30 % of the poulation carries the gene but only a few lucky ones 😃 actually develop celiac disease.  That might be worth getting too!   Here are the tests:   -Tissue Transglutaminase (tTG) IgA and (tTG) IgG -Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG -EMA IgA  -total serum IgA and IgG (control test)   -endoscopic biopsy - make sure at least 6 samples are taken.  The small intestine is vast!  Over 20 feet in length and when stretched out is is the size of a tennis court!  How many biopsies were actually taken?  And where were they taken?  It is so easy to miss damage areas!     VERY IMPORTANT:  Keep eating gluten daily until ALL testing is complete or the tests can be inaccurate.  About 8 to 12 weeks for the blood test.  How much gluten is he getting?  I had to give my daughter gluten daily (we have a gluten-free home) for three months before I had her tested.     (Source: NVSMOM -- 😊)   Welcome to the forum and let us know how it goes!   Get all copies of lab results too!    
  14. Muscle pain

    You really need to remain on a gluten diet until that GI appointment.  A biopsy requires consuming gluten for four weeks daily (8 to 12 for the blood test).  I would hate for you to get negative biopsies and remain in diagnostic limboland.   You need to do some more research.  After all, you are your best health advocate!  This link to the University of Chicago can help: By the way, it took me two years to heal.  That seems to be pretty common around here.  My anemia resolved within a few months, but all the other little symptoms took time!