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starrymazed610

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About starrymazed610

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  1. Thanks for the responses! I have been gluten free for over a week now, regardless. I know that something is not right with all my stomach issues. I have been feeling a lot better since going gluten-free, but the craziest thing I've noticed is that my throat has not been "growling"! I have noticed my children all have that issue too. I guess right now I will wait and see what my GI doc says and go from there.
  2. Well, i got my labcorp results tonight: Test Low Normal High Reference Range Units Immunoglobulin A, Qn, Serum 123 91-414 mg/dL T-Transglutaminase (Ttg) Iga <2 0-3 T-Transglutaminase (Ttg) Igg 3 0-5 U/mL Deamidated Gliadin Abs, Igg 4 0-19 units Deamidated Gliadin Abs, Iga 7 0-19 units Endomysial Antibody Iga Negative Negative NEGATIVE for celiac??? This is completely frustrating. I haven't talked to my doctor yet, but how can I have a positive biopsy????
  3. Thank you for the responses. I already had a CBC and some blood work for deficiencies done. This is just for Celiac, I believe. The doctors office just called me and told me they are faxing over the paper work to the lab so I can go and get my blood drawn tomorrow. When the doctor called me the other day to give me the results of the biopsy he told me he wanted to get blood work taken next, and if that was positive then I would have to meet with a Registered Dietitian and have my children tested. When I mentioned the fact that there seems to be a lot of false negatives for the blood work, he agreed, and said that the biopsy is still the gold standard for diagnosing, yet fell short of actually diagnosing me. I guess that is why I am frustrated. I have spent years not feeling well, and feel as though these doctors admit possible celiac, but fall short with actually diagnosing me. Problem is, it is hard for some doctors and family to take me seriously without an "official" diagnosis...
  4. Hello everyone! I am newly returning to these boards, as I once frequented them a few years ago. In 2008, I heard about Celiac's and read a list of frequent symptoms. I have always had too many stomach issues to mention, and so I made an appt with a GI dr, but immediately went gluten free. I was gluten-free for a few weeks when I visited the dr and explained what was going on. They gave me the barium test, blood work for celiacs, and then I had an upper endoscopy. The results left me more confused than ever. The blood work was negative for Celiac, but the other tests found a hiatal hernia, GERD, a stomach ulcer, and possible slow emptying stomach. The results of the biopsy stated there was damage to the villi but when I went in for a follow up, I was told I did NOT have celiac disease. Since then, I had another baby, developed more food (fruit and and vegetable) allergies, and stomach issues progressed. I was kinda gluten-free on and off, here and there but not really. I recently moved and found a new GI dr. I scheduled an appt with him, because at times, the bloating is unbelievably painful and my stomach hurts so bad that I cannot eat anything without pain. This comes and goes. He did routine blood work and scheduled another upper endoscopy. After the endoscopy, he told me they found inflammation of my esophagus and stomach and that biopsies were taken. The biopsies were positive for Celiacs he told me, but NOW he wants to have blood work to confirm. I have only been gluten-free for two days now, so I am sure it wouldn't affect the blood test, but my fear is that it will be negative again and then I'll be back to where I was before- not knowing whether I have it or not. Has this happened to anyone else? I have three children who have stomach issues, too. My oldest had an upper endoscopy when she was eight and it was negative. Any input would be greatly appreciated!!