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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About slf8

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    1. slf8 added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      Positive Abs, Negative Genetics
      I was diagnosed with ulcerative proctitis in 2003 while pregnant with my third daughter. In 2008 I had ulcers further up in the colon. My colitis presentation is not "typical" however, in that the inflammation is not continuous but rather spotty, but it is not all the way through the mucosa like in Crohn's. I do, however have all of the typical IBD symptoms (pain, blood, mucous, D, cramps), off and on, mild to moderate, thankfully never bad enough to land me in the hospital.
      I switched gastroenterologists last year and he suspected that perhaps I had undiagnosed celiac disease which had contributed to my IBD. I had a celiac blood panel and these were the results:
      Gliadin IgG 18.99 U/mL Positive
      Gliadin IgA 11.29 U/mL Negative
      TTG IgG      20.98 U/mL Positive
      Total IgA    265 mg/dL
      He did an endoscopy, though visual inspection saw some mild blunting of the villi, the histology was negative for celiac.
      After being on a gluten-free diet for two months, I had another test:
      TTG IgA 8.44 Negative
      I also had the genetic test done and I was NEGATIVE for both DQ2 and DQ8.
      I understand that often the blood test can be false negative when the genetics say predisposed to celiac. I think my case is perhaps unusual that I am borderline positive on the blood test, but negative genetically. Does this mean I am non-celiac gluten intolerant? And what does that even mean? I have been reading about "leaky gut". Perhaps if tested I would have antibodies to many other foods as well.
      As a result of the negative genetic test, I went back on gluten. I actually felt great over the summer but now I am in a flare again along with quite a bit of esophagitis so I am wondering if that was such a great idea.
      Thanks for your time.
      • 1 reply

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