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medaidemom

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About medaidemom

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  1. I'm looking for some opinions/support here. I am the mother of two celiac boys. Both diagnosed a year and a half ago. One has Crohn's as well. We are convinced that the Crohn's was triggered by undiagnosed Celiac, but that is another subject. My niece is 13 and has all the symptoms of celiac. They did a trial of no gluten and all her abdominal symptoms and skin rashes subsided. However, once I was told of this I encouraged them to get her tested and that she'd have to eat gluten for the accurate results. So, today she had the blood work done and we are anticipating an endoscopy. The endoscopy won't be done until May due to not wanting to miss school. My question to all of you is this: What should she do between now and then? Can she completely go off gluten until shortly before the endoscopy, can she jus eat a small amount daily? How much does she need to keep eating to keep positive results? If she minimizes her consumption will it make a difference in her symptoms? For example instead of eating gluten at every meal, if she just ate one cracker a day would it continue the damage ( and thus a positive result) but not make her feel so crummy all day. Or would eating a cracker cause her to feel just as bad so she may as well eat whatever? Thanks, Kris