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angelluv1019 added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsI Didn't Know Who To Turn To...My doctor told me about a month ago that I needed to go on a gluten free diet to see if it improved my stomach issues because I told her I was miserable and tired of drinking Pepto on a weekly (sometimes daily) basis.
SO I have and I feel so much better! I have energy. I'm not feeling weighed down after meals. I actually know what it means to be full and not feeling like I over ate when I didn't. I have even seen improvement in my diabetes.
But the more I look into things, maybe I'm not doing the right thing! Should I have the testing done? Does it matter whether I have celiacs or not? I'm so confused.....and scared for several reasons.
I don't want to go back to gluten and being sick. Period. It was awful to live like that for years and being told I'm crazy for all the aches and pains I had including random swelling in my joints on my thumbs. And the fibromyalgia diagnosis was bogus now that I know that having celiacs and gluten sensitivity could cause me to hurt the way I was hurting.
I don't get to see my doctor until May due to changing jobs. If I do need to get tested, I will already be about a month and 1/2 into the diet and from what I read, my tests may not show it. Which refers me back to reason number 1. I can't imagine having to eat it for 2 or more weeks.
My family thinks I should leave it alone and just accept that I'm gluten intolerant and move on. I kind of want a definitive answer without the pain and suffering. Does it matter if I feel better and plan to eat this way for the rest of my life because I have noticed a significant change? Can I 1/2 and 1/2 it until I go see my Dr. again and maybe it will diminish my symptoms?
Hopefully your guidance can help me make a decision....
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